Comment

Comment by Shane Beard on August 30, 2009 at 11:34am

Has anyone had PUVA treatment?

Comment by joannesummerside on August 20, 2009 at 2:03pm

im not coping with my hair loss each day gets harder not easier i have a wig and my husband and children says it looks so natural but i cant accept my hair has started to grow a little but will this last

Comment by Essence on July 30, 2009 at 9:01pm

Hello,

i'm not really new to Alopecia. i've had it for over 8 years but i wanted to pass by and show my support to those who are, in fact, new to alopecia... especially the younger generation. i am here to help and share my experiences =)

~ Essence =P

Comment by LeslieAnn Butler on July 29, 2009 at 8:46pm

Candace, don't worry if you don't feel like going without your wig. It's not a bad thing, and nothing to be ashamed of. I have had alopecia for many years and I don't go out without a wig. It's a choice, like anything else -- whatever makes you feel comfortable -- that's what you should do.
LeslieAnn

Comment by candace renee meade on July 29, 2009 at 12:04pm

well, i shaved my head back in may and i still cant go out with out the wig! i wish i could let go!

Comment by Kristen Viveros on June 15, 2009 at 6:33pm

To Misti, You are not deformed at all. I have never seen you with hair, so I am seeing you for the first time with a bandanna on your head and I think that you are beautiful.
I know that this is very hard to deal with. I shaved my head for the first time a little over a month ago. Everyone around me was shocked. It happened so fast that I think maybe they didn't believe me. But, I don't care what everyone else thinks. I had to do a little bit a soul searching, but I finally realized that I am still me, with or without hair. My hair didn't talk to people. My hair didn't solve problems for me. I know that sounds funny, but its true. I am still me and I am totally comfortable with it. It's everyone around me who is not so comfortable with me being bald.
They think about it more than I do.
What frustrates me the most is that when people see me, it seems like they only see my bald head. Everyone is constantly making comments about my head. "when is it going to grow back?" "why do you keep shaving it, let it grow and see what happens."
I went off today about that... I had a long week of everyone pressuring me to let it grow, touching my head, smacking me on top my head. I have had enough. So the next person who said something about my head was my one friend, she said "You shaved your head again, didn't you? I thought you was going to let it grow?" So since I was already mad, this remark was some serious over kill for me. I said "you know what? I am tired of everyone constantly talking about my head or my hair. What is the big f^ing deal weather I have hair or not. Its my head and I am comfortable like this, so why is everyone else so uncomfortable?" Then I broke down crying for the first time since I have been bald. I wasn't crying because I am bald. It was more because I am so frustrated with everyone around me pointing, touching, smacking, and making stupid bald jokes. So from now on I am going to shave my head everyday until it all falls out so that everyone will get used to be being bald and eventually maybe they will finally shut up about my bald head.

Comment by Anna Grayson on May 28, 2009 at 4:15am

did anyone feel angry at thier hair? my hair was so long and i just couldnt deal with the gradual loss, hair brush constantly needing to be cleared out. i felt so mad? i guess. so i chopped it off! doing psychology i knew that therapy would only tell me to "take back control", so by cutting my hair short, meant i made a decison to finally call the shots,like i made the change, not the condition running the show for once. (oh btw not sayin u should cut it, just sharing my coping story) :) keep lookin good evryone!

Comment by Kayleigh George on May 26, 2009 at 11:38am

Hey Im new to this site and alopecia. I think this site is amazing as it took me ages to find places for support. There doesnt seem to be much and its like alopecia is very hush hush. Iv had so many people ask me if i have cancer. Which i guess most people associate hair loss with chemo.
kayleigh

Comment by Nitza on March 11, 2009 at 11:15pm

Hi Everyone,
l found my 2 patches on oct of 2008. by the time l was diagnosed on dec 31,2008 with A.A l had so lil left. what ever hair l had left l told my son to shave it off. it was not easy but l did it and felt much better. started treament the same day l was diagnogesd and know my hair is regrowing slowly but growing .l now that their is a chance that it could fall off again but thats ok with me.ill learn how to deal with it.

Comment by Ursula on February 19, 2009 at 3:06am

My funny experience I recently had with Alopecia...

I was with my younger sisters, I can see the pain in my family's eyes when they look at me, how sorry they feel, wishing they can do something to make me feel better about myself.

My way of trying to make "THEM" feel comfortable around me is to joke, make silly remarks etc...

My sister has a little brown puppy, it fur sheds so easily...

One of my sister's stood up and said "Oh look..."

A little chuck of fur rolled of my pants onto the floor;
I looked and said "Oh look... my eyebrow!" LOL

They couldn't help but laugh... I wish I had my camera to capture the expression on "THEIR" faces lol!

I love my sisters with all my heart... missing them ever so much right now!
I need a laugh, release all this stress!

Take Care all... God Bless!

Ursula

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