Newly Diagnosed with Alopecia

Information

Newly Diagnosed with Alopecia

This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.

Members: 545
Latest Activity: Feb 9, 2020

Tips for Coping with Alopecia from Day One

1. Love yourself unconditionally, with or without hair.

2. Consult a physician when you think your hair loss has become excessive or abnormal.

3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.

4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).

5. Remember that bald is beautiful, too.

6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.

7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.

8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.

9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.

10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.

Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.

Discussion Forum

Scaring Alopecia

Started by Peace Apr 20, 2017. 0 Replies

Newly balding

Started by Momuv2. Last reply by Momuv2 Aug 23, 2015. 2 Replies

just diagnosed and scared...

Started by Catia. Last reply by Aly Dec 18, 2014. 5 Replies

How do I do this?

Started by MelodyAutumn. Last reply by PamFitros@boldlybaldwomen.com Nov 18, 2014. 6 Replies

Development of AA

Started by Cam. Last reply by PamFitros@boldlybaldwomen.com Nov 10, 2014. 1 Reply

New to this...

Started by ladyeury. Last reply by wtfsamikinz Nov 8, 2014. 2 Replies

Just diagnosed

Started by Kteacher. Last reply by alopeciamommy Nov 1, 2014. 9 Replies

Children with alopecia in New Zealand

Started by MummyWendy. Last reply by alopeciamommy Nov 1, 2014. 1 Reply

Getting Past the Pain - Three Things You Need to Know

Started by PamFitros@boldlybaldwomen.com Oct 13, 2014. 0 Replies

Sad

Started by bobbi. Last reply by BarbaraK Oct 5, 2014. 8 Replies

B-12 shots

Started by Michelle Jun 27, 2014. 0 Replies

Just realized it's probably not coming back...

Started by SBXBlackJade. Last reply by Angie Jun 16, 2014. 1 Reply

Question About AA and Eyelashes

Started by Michelle. Last reply by Kathryn Jun 11, 2013. 6 Replies

It's been a (long) Year

Started by Marissa. Last reply by Fay May 28, 2013. 5 Replies

New to this World

Started by Jackie E.. Last reply by Catia May 28, 2013. 9 Replies

Trying to learn how to move forward

Started by Lindsay Rossi. Last reply by Lindsay Rossi Apr 12, 2013. 3 Replies

Unpigmented regrowth?

Started by Jaclyn. Last reply by Annette Mar 30, 2013. 9 Replies

Comment Wall

Comment

You need to be a member of Newly Diagnosed with Alopecia to add comments!

Comment by Stephanie on October 1, 2010 at 6:50am
Hi! Welcome! You look adorable in that hat.
Comment by Maryann on September 30, 2010 at 10:14pm
I just wanted to say "hello" - I am new here this week.
Comment by Dawn on April 4, 2010 at 6:00pm
I agree with Cheryl, and also, while keeping the conversation short, also smile, as that may take the stress and ease away, from the asker, as yourself, too.
Comment by Cheryl, Co-founder on March 12, 2010 at 12:57pm
Machal, when I am dealing with people like that I just keep my conversation short and let them think what they want to think.
Comment by Leah Larson on March 12, 2010 at 11:27am
you're right and I will remember to do that next time! Thanks for the kind words, advice, support and friendship!
Comment by Stephanie on March 12, 2010 at 11:26am
I know, we tend to feel we need to fill in the conversation when someone is curious. I just stop talking and no one has actually come out and asked me. Truth is, so long as you feel and look great, who cares? :)
Have you ever heard that if someone asks you something you don't want to answer you are supposed to say, "Why do you ask?" It puts THEM on the defensive and basically shows them that the question is inappropriate. Most people just back off. Good luck. I'm sure you'll look fabulous and all the other girls will envy you!
Comment by Leah Larson on March 12, 2010 at 11:16am
yes, I agree, but easier said than done. As soon as it's styled, I will post a new photo! I'm excited, yet anxious and nervous!
Comment by Stephanie on March 12, 2010 at 11:11am
When people ask me if I've changed my hair I just say yes as it is true. If they compliment me I say thank you. No need to offer up any other information unless you want to.
Congrats on the weight loss, by the way, and I hope you post a photo of you in your new wig, Leah.
Comment by Leah Larson on March 12, 2010 at 9:52am
I'm in a predicament since I was at one job when all of my hair fell out, so most knew and who didn't know I was wearing different wigs everyday as "accessories", I didn't care. For the past year I've been at a new job and haven't told anyone here. I wore a different wig the other day, trying to get them prepared for my new "vacuum prosthesis" and got most comments from men! I guess if they haven't figured it out by then, they will with my "big reveal" in April. My piece is in and gets styled on the 17th, but I'm 20 pounds away from my weight loss goal and will come walking in looking like a different person, which will help with my confidence level! I know we should worry about what others think, but people are nosy, some rude and I'd rather not deal with everyone knowing my business!
Comment by Dawn on March 12, 2010 at 1:54am
Leah, I agree. I hate seeing minimal regrowth, while more of it sheds and is thinning. Ugh.
 

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