Newly Diagnosed with Alopecia

Information

Newly Diagnosed with Alopecia

This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.

Members: 545
Latest Activity: Feb 9, 2020

Tips for Coping with Alopecia from Day One

1. Love yourself unconditionally, with or without hair.

2. Consult a physician when you think your hair loss has become excessive or abnormal.

3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.

4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).

5. Remember that bald is beautiful, too.

6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.

7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.

8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.

9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.

10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.

Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.

Discussion Forum

Scaring Alopecia

Started by Peace Apr 20, 2017. 0 Replies

Newly balding

Started by Momuv2. Last reply by Momuv2 Aug 23, 2015. 2 Replies

just diagnosed and scared...

Started by Catia. Last reply by Aly Dec 18, 2014. 5 Replies

How do I do this?

Started by MelodyAutumn. Last reply by PamFitros@boldlybaldwomen.com Nov 18, 2014. 6 Replies

Development of AA

Started by Cam. Last reply by PamFitros@boldlybaldwomen.com Nov 10, 2014. 1 Reply

New to this...

Started by ladyeury. Last reply by wtfsamikinz Nov 8, 2014. 2 Replies

Just diagnosed

Started by Kteacher. Last reply by alopeciamommy Nov 1, 2014. 9 Replies

Children with alopecia in New Zealand

Started by MummyWendy. Last reply by alopeciamommy Nov 1, 2014. 1 Reply

Getting Past the Pain - Three Things You Need to Know

Started by PamFitros@boldlybaldwomen.com Oct 13, 2014. 0 Replies

Sad

Started by bobbi. Last reply by BarbaraK Oct 5, 2014. 8 Replies

B-12 shots

Started by Michelle Jun 27, 2014. 0 Replies

Just realized it's probably not coming back...

Started by SBXBlackJade. Last reply by Angie Jun 16, 2014. 1 Reply

Question About AA and Eyelashes

Started by Michelle. Last reply by Kathryn Jun 11, 2013. 6 Replies

It's been a (long) Year

Started by Marissa. Last reply by Fay May 28, 2013. 5 Replies

New to this World

Started by Jackie E.. Last reply by Catia May 28, 2013. 9 Replies

Trying to learn how to move forward

Started by Lindsay Rossi. Last reply by Lindsay Rossi Apr 12, 2013. 3 Replies

Unpigmented regrowth?

Started by Jaclyn. Last reply by Annette Mar 30, 2013. 9 Replies

Comment Wall

Comment

You need to be a member of Newly Diagnosed with Alopecia to add comments!

Comment by Children's Alopecia Project on April 20, 2011 at 6:04pm
The Children's Alopecia Project is having ALOPECIAPALOOZA 2011 outside of Cincinnati, Ohio this year from August 18 to August 21, 2011.

A camp devoted specifically to children with alopecia and their family. We want to help build self-esteem, provide support and raise awareness. It's what we do evey single day, not one a year. It's the reason we are here!

I am Jeff Woytovich and my wife has had Alopecia Areata since 1976 and my 13 year old daughter has had Alopecia Universalis since she was 5 years old. This is why I founded CAP and why I care. I have experience the ups and downs, the snake oil, and everything else you have experienced. I wanted more for my child so she had the tools to be the best. I could not find it, so CAP was born!!

ALOPECIAPALOOZA is FREE to all CAP Kids. (children with alopecia) Heck, everything CAP does is free for the CAP Kids, we never charge them. If you would like information how family members can attend for free please email Betsy at betsywoytovich@yahoo.com, make sure you tell her you want to regisiter on the website too (again, free.)

Check out these sites:

www.ChildrensAlopeciaProject.org
www.facebook.com/ChildrensAlopeciaProject
http://www.youtube.com/watch?v=lhKiNMK-wc8
www.alopeciapalooza2011.charityhappenings.org
Comment by Elizabeth Glaspie on April 13, 2011 at 9:51pm
just shaved my head for the first time!! my hair was pretty much gone, but my hair folicules are intact and i have no scarring!!! so that is a positive side!!! but now its the waiting period! how long has it taken some of you to have hair grow back significantly?? just curious!!
Comment by terry koepsel on April 4, 2011 at 12:23pm
I've been using lotion feel strange but i remind my self Im not putting it in my hair just on my skin. Im also thinking I should use a sun protector as well, not big into hats, and summer is on its way.
Comment by Ryan Gage on April 4, 2011 at 11:35am
someone suggested that I just use conditioner to help keep my newly bald head nice and moist, it seems to be helping, itching has cut down! Has anyone herd or had any success with changing your diet to mostly natural foods? A family friend suggested I see a expensive specialist that will give me vitamins and change my diet to try and switch back the immune system.
Comment by Angie on March 28, 2011 at 8:30pm
I know what you mean, but I believe in positive thinking! Do your best to eat healthy and keep the stress level managed. This will give your hair the best chance possible to grow and stay with you. I wish you the best.

Ang.
Comment by Vicki H on March 28, 2011 at 5:47pm
Hi Angie,
thanks so much for your comment, you've made my day (in a calm, controlled way as I try not to get too hopeful). Vic x
Comment by Angie on March 28, 2011 at 12:58pm
Hi Vicki,

White hairs could mean new growth. Hair looks thin and white when it's making a comeback. Then, it eventually gets darker and stronger like your real hair.

Angie
Comment by Vicki H on March 27, 2011 at 2:37am
Hi all, I am a new member of AW and would like to know th AA cycle, some members talk of burning and scalp irritation........ I currently have a 5cm bald patch which started in December and my husband tells me today there appears to be some white hairs now. Does anyone know what this means?
Comment by Adriel Vary on December 18, 2010 at 6:02pm

Hello everyone! I'm so glad to be apart of the group! I know many of us have embraced the hair loss and love rockin smooth heads while others may want want to switch it up a little bit some times. I am currently starting my own lace wig line. Lace wigs are the most natural looking wigs one can purchase.  The line is coming soon but in the meantime any one who is new to shopping for wigs, weaves and hair pieces I would love to help you shop for the perfect hair piece. Please email if you would like assistance for a small fee, usually only 5-10% of percent of your purchase.

Comment by Chentil Changing on November 20, 2010 at 11:26am
Hello everyone I was diagnosed about 6mos ago and have been getting treatments however I am starting to feel like they might not help. I am struggling with the loss of my hair and how to feel beautiful again any tips?
 

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