Frontal Fibrosing Alopecia Discussions (350)

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Recently diagnosed in Kansas

Recently diagnosed with FFA, first visit after diagnosis is Thursday, May 12.  My scalp is extremely itchy all over including the crown and…

Started by AReg

13 May 28, 2016
Reply by Sad in chicago

Recently diagnosed - Portugal

Hello, since my thirties my skin has been acting strangely, some little postules appeared and I was with acne scars (I never had acne). All…

Started by Tania

3 May 17, 2016
Reply by Isabel

Paquenil Treatments

I was newly diagnosed 6 months ago through a biopsy. Started Clobetosol and Doxycycline treatments. MD now wants me to consider the anti-ma…

Started by K9crazychick

19 May 7, 2016
Reply by Jacqui

Planquil

Hi I'm new to this site and have been told I have FFA. I have been put on planquil and it scares me a little as it can have lots of side ef…

Started by Kaz

3 Apr 29, 2016
Reply by Vicki

Low level laser light therapy

My Mom just gave me an ad by HairMax. They sell medical-grade lasers to restore hair growth. About a year ago I was at a CARF support group…

Started by Anne Louise

3 Mar 29, 2016
Reply by Wyobalance

My Dr sent me a list of meds (& their side effects) that are known thus far to work

What are you experiences with this these meds? Plaquenil (activated my dormant ulcer) Finasteride (which modulates hormones) I'm on 5mg (o…

Started by DragonandFox

13 Mar 23, 2016
Reply by DragonandFox

something interesting to see (I think)

http://www.rmsolutions.net/files/Sharm-Derma2014/020001.pdf

Started by DragonandFox

8 Mar 11, 2016
Reply by Chris

Eyebrow Help

Hello Everyone! I am new to the forum and relatively newly diagnosed with FFA. My first order of business is to fix these eyebrows! Has any…

Started by Montymom

31 Mar 9, 2016
Reply by Montymom

New member

I am new to this group and like everyone else having some trouble coming to terms with hair loss and changing image, so far I have have los…

Started by Gai

11 Feb 25, 2016
Reply by Lo

NC FFA Sufferers

I just got a call from Duke University where I had seen Dr. Olsen for my FFA. I was informed that she is no longer seeing patients with hai…

Started by ammie

6 Feb 15, 2016
Reply by ammie

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