January 2017 Blog Posts (20)

New jersey

Hi i am new to this...is anyone from new jersey?

Added by Poolmason1213 on January 30, 2017 at 12:23pm — 2 Comments

Men losing eyebrows now

Dear all,

I just discovered this webpage.

I am AU for about 2 years. And just recently I started losing my eyebrows... one of them is half gone...

I feel as if it is easier for ladies to draw eyebrows... But it sounds really different to me, perhaps, harder to digest as a man...

Can you please advise me what to do or link with other men with similar problem?


Added by Mehmet on January 26, 2017 at 5:08am — 10 Comments

Alopecia areata regrowth

I have had Alopecia Areata ever since i can remember. I think my mom first noticed bald patched when i was 2 years old. Well they never became big enough for me to really notice until 2011. In 2011, i lost about 50% of my hair and have been getting steriod shots in my head every 4 weeks. Its been a roller coaster really...It would regrow and everything would be good then it would get way worse again. Oct, 2016 i lost about 60% to 70% of my head, i shaved it. By the way,....BEST decision ever…


Added by Lauren on January 26, 2017 at 1:30am — 2 Comments

Is scalp micropigmentation worth it?

I have Universal Alopecia and like everyone who has this problem I suffer from prejudice and low self-esteem, I am thinking of doing the micropigmentation of the scalp. I wonder if anyone here did? Worth it? How did people start look?

Added by Tomy Pereira on January 25, 2017 at 6:35pm — 2 Comments

For alopecia universalis, try permanent make up and pigmentations tatoo

A friend of mine who offer the permanent make up and is a tatoo artist offer me to try to ' draw' pigmentations on my head and it's look fabulous. This kind of service are mostly offer for bald guy but if you are patient and if you handle well pain it's totally worth it. I think it's look fabulous and people stop asking me if i have cancer ( what i personnaly hate very much).

( English is my second language sorry for the orthograph ! )

Added by Little-Link on January 25, 2017 at 12:00am — 4 Comments

Hair losss while on Xeljanz therapy

I was diagnosed with AU approximately 3 years ago.  I started Xeljanz therapy 6 months agao and my hair, brows and lashes have all been growing at a nice rate (I have all of my hair back.

About two weeks ago it started thinning dramatically (on the sides... looks like I am developing a few bald patches in those thinning areas...

Anyone have any data/ material on hair loss while on xeljanz therapy?



Added by AlyNYC on January 24, 2017 at 11:00pm — 1 Comment

Give me a rash to cure me? Anyone know anything about this procedure?

Hi guys , I recently went to the dermatologist for my monthly scalp shots. The hair that grew back is gone. For a minute there I really thought that everything was going in the right direction. I have recently been diagnosed with celiac disease, so for the last three months I have been gluten and dairy free. I also did a allergy test and it showed that I was allergic to dairy right die yellow diamond blue dye. I have been so good and my hair grew back a little bit . But it's gone again The…


Added by Suzi on January 24, 2017 at 8:00pm — 3 Comments

Why The World Needs A Bald Princess

Once upon a time, fairytale princesses all looked the same. They were thin despite eating all of those rich castle feasts. They had long flowing hair, big almond-shaped eyes and fair skin. They had full, pouty lips and they never had smudged makeup or bad hair days. The only difference between any of the princesses out there was their hair color.…


Added by PrincessElla on January 19, 2017 at 7:06pm — 1 Comment

Have a listen to this song - very uplifting !!

check out song buy Brett Kissel - " I Didn't fall in love with you hair " - wonderful song - very uplifting !!

Added by GEMINIJEANNE on January 18, 2017 at 1:30pm — No Comments

Bald Is Beautiful

I know you miss your hair. It was once shiny and long, and now it’s gone. I get it. I know you look at yourself with great disappointment now when you gaze into the mirror. But I wish you could see that bald is beautiful.…


Added by PrincessElla on January 17, 2017 at 11:19am — 1 Comment

Iowa Meeting for Alopecia

We are going to have a meeting with a group of Alopecian's in the Des Moines, Iowa area on Feb. 4th, the leader Liz Albrecht  at Studio 409, address  1721  25th St., West Des Moines, Ia 50266. It will be an open house.  If you are interested please call Liz at this number 515-360-3816. If you know anyone in Iowa please let them know as we want to get this up and going.

Added by Jackm on January 16, 2017 at 4:06pm — No Comments

Meet Ella The Enchanted Princess

She is a very special little girl. She is a beautiful princess with big purple-blue eyes and pink heart-shaped lips! She wasn’t any ordinary princess; she was very special and an amazingly brave little girl! Ella was born with no hair, and this made her unique. She doesn't like the way she looks and hates looking into mirrors.

I wrote a book and illustrated it, to…


Added by PrincessElla on January 15, 2017 at 9:00am — No Comments

Xeljanz XR

Today is my first day to try Xeljanz XR. I will try and blog about my experiences to hopefully help others. About me, I'm mid 30's married with a young child. Lost my hair all over (Universalis) twice in my lifetime, this being the second. The first was when I was 11 years old. Miraculously it all grew back after 3 years of no hair except my arms and most of my legs which I did not complain about one bit. I was pretty much alopecia free for over 20 years and NEVER thought it would happen…


Added by TexasGirl on January 13, 2017 at 10:47pm — 22 Comments

My introduction to Alopecia Universalis


I have had Alopecia for about half a year now, and am still not sure how to feel about it. I am also not used to blogging. I have however been wondering how others experience the disease, and due to this decided to put my short experience with it up here for others to compare with.

I am 46 years old and have always had lots of thick hair. During the summer 2016, my wife commented that i was loosing more hair than usual, and I too noticed the thinning of my hair. At…


Added by Michael on January 11, 2017 at 3:28pm — 2 Comments

Topical Ruxolitinib clinical trail

who attend the clinical trail for Topical Ruxolitinib for AA? what is the result? when the report will be available? and who attend the clinical trail for Toptical Ruxolitinb for vitiligo? what is the result? when the report will be available?  thanks

Added by LIU CHUNXIU on January 8, 2017 at 11:47pm — No Comments

Figuring out what being twenty-four is all about

Hi, all!

I am new to this.. blog posting that is and I thought this would help not only myself after 10 years of knowing I have Alopecia, understand it, but others as well. I was told about having Alopecia in Middle School, for me it started out as small quarter size spots on the top of my head. I began to clip my hair back to hide them and soon after started seeing my dermatologist to seek treatment. Treating small three spots is easy... applying my topical treatment daily…


Added by MegElisabeth on January 6, 2017 at 3:00pm — 2 Comments


First time someone asked me "is that a wig" while chilling in a pub
A stanger non the less
And it made me upset more then it should and instead of standing up saying I have alopecia and explaining, I was just sat there embarrassed thinking OMG it looks like a wig
First time ever been asked and feel a bit rubbish and upset. Near left the bar but thought why should I.
The wig does not define me

Added by KFlame on January 6, 2017 at 1:56pm — 3 Comments

Lichen Planopilaris

Hi there. I am new to the Alopecia world and i am finding it extremely difficult to come to terms with the condition i have been told i have :((

My name is Karalina and i am a young healthy 53 yr old woman who eats well and is a fitness enthusiast, outgoing and loves life and lives in London.

I have just recently been diagnosed with Lichen planopilaris and frontal fibrosing Alopecia in October 2016, after having a biopsy taken. My symptoms started earlier in the…


Added by Karalina on January 2, 2017 at 12:03pm — 5 Comments

My TEDx talk!

If you are interested, I recently gave a TED talk in Richland, WA. It's about creating a document of self-definition.

Hope you enjoy it.

Added by Marie on January 1, 2017 at 11:30am — No Comments

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