All Blog Posts (5,825)

Aerialist with alopecia wows the judges and the crowd on America's Got Talent

Hi Everyone,

I'm still giddy from my appearance on America's Got Talent on Tuesday night!!! The outpouring of love, support and encouragement I have received through websites, messages and social media has been overwhelming....I am moved to tears! You can see my audition in the full episode below. I'm the last act. I can't tell you how empowering it was to share my story and be seen by MILLIONS of people. I hope you are all inspired to live bravely and pursue your dreams. We…

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Added by Laura Dasi on June 20, 2014 at 12:30pm — 8 Comments

This might be it...

In hairless man, arthritis drug spurs hair growth — lots of it

Read up this is brand new information. I think it's pretty legit as they mention Dr Christiano and her research.

Added by athenasdad on June 19, 2014 at 11:00pm — No Comments

Regrowth

Hi Everyone! I got diagnosed a couple of months ago with alopecia areata. It started off with 2 small spots then quickly went from 2 to 5 spots and they got large, FAST! I went to a dermatologist and he prescribed clobetasol 5% liquid. I tried it for about 2 weeks but couldn't get past the strong alcohol smell and the burning on my scalp, I couldn't receive the injections because the spots were too large. I decided I was just going to shave my head because I couldn't handle watching the hair… Continue

Added by Marla on June 19, 2014 at 9:39pm — 2 Comments

White hair regrowth

Hello everyone.  I have had mild to severe cases of AA on and off since 1984, I was 13.  For the last four years I have been AU.   I know the longer you are AU the less chances there are for regrowth.

You can see my fantastic tattooed eyebrows I posted to AW.  I am very content with my AU.  I don't want to get too excited...........but......

...the reason I am writing today is I am starting to experience some rather strong regrowth on my head, eyebrows, and beard.  At this time…

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Added by Craig A. on June 17, 2014 at 4:30pm — 6 Comments

Endocrinologist

So I have severe alopecia Areata and I have had blood work done at the dermatologist, and the regular clinice to check my thyroid levels and whatever else it is they check. The results came back fine everything was normal. Then I decided to go to an endocrinologist, once again they took some blood but this time my hormone levels were all out of wack. I had extremely high levels of male hormones, and the Doctor said that could definitely be the cause for my Alopecia. So I am hoping for the best

Added by wiz on June 16, 2014 at 11:06am — 4 Comments

Aerialist with alopecia to appear on America's Got Talent Tues. June 17

Hey Folks,

I auditioned for America's Got Talent this season with my aerial silks act. My audition was filmed and will air on NBC at 8pm on Tues. June 17. During my backstage interview I discuss my experience with Alopecia and the challenges I had to overcome in continuing my career as a performing artist. I even took my wig off while I was on camera!! I hope to be an inspiration to others in helping them overcome their fears, to look beyond their physical appearance and to live…

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Added by Laura Dasi on June 16, 2014 at 12:30am — 26 Comments

The trigger must be environmental

I've been coping with AA for 3 years now. I was the first in my family to present, but my mom has celiac disease, so I assumed the cause to be completely genetic since the two conditions have now been shown to be genetically related. But just last night, my husband discovered a large bald patch on the side of his head! This has my mind racing to the notion that, if nothing else, the trigger must be environmental. I am now trying to figure out if there is something in our 1950's house that could… Continue

Added by Tracey on June 14, 2014 at 11:15am — 4 Comments

Confused head

I wasn't going to post this because it is just me getting my thoughts down to help me make sense of it all, and really, there can't be anything new to it in this group. But now that it is all typed, I find I want to let it out. It is just my personal story, not meant to instruct, inspire, or shatter the earth.

Confused.

How was it that I found myself walking around the children's museum, uncomfortably hot in a knit cap? 

It probably started this morning when my husband…

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Added by GardenJess on June 14, 2014 at 1:00am — 1 Comment

My story

March 2013:

I literally woke up one morning and got ready for work and while brushing my hair I noticed that my brush felt strange on the right side of my head right behind my ear. I started feeling the area and felt that there was NO hair in that entire section. I frantically moved my hair aside and looked at it closely in the mirror. There was about a 3 inch rounded section of baldness. I immediately began to cry and wondered what was happening to me.

I didn't know what this…

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Added by Stacey on June 10, 2014 at 11:00pm — 3 Comments

Strange regrowth

I call it strange as it's strange to see. I first noticed that was some regrowth towards back and side of my normally 99.9% bald head (some reason I have always kept a very small patch of hair right at back of my head I never shaved off).

I ran my hand over my head and felt hairs never felt before. I couldn't see them in the mirror so took a photo and yep there was fine hairs appearing towards back and sides. I wasn't going to get too excited as I've seen this happen a number of…

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Added by KFlame on June 8, 2014 at 5:30am — 1 Comment

Waiving the white flag - my surrender to AU

I've been through so many stages of this disease in the past 12 months.  And each has been harder to accept and deal with than the one before.

First, last summer, I watched my little soul patch be whittled away to nothing.  But it still seemed to be locally confined to my face.  I hated the random patches where whiskers still persisted, and explored permanent removal of lingering hairs and endured hundreds of shots, but the fight was a losing one.

Then, this January, I was…

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Added by Schocker on June 6, 2014 at 3:30pm — 2 Comments

Regrowth

I have been experiencing a great amount of regrowth lately and have come to realize that after all my praying and wishing to have hair I don't really want it. I have lived my whole life without hair and it just seems alien for me to have long hair. I realized that I actually prefer being bald to having hair. I am actually scared to have hair. The idea of no longer being bald scares me. I do not want my hair to grow back in I want to stay the same.  I mean it is exactly what a lot of us have…

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Added by Jessica Hoschouer on June 6, 2014 at 2:00pm — 2 Comments

Trying to find a swim wig

Lost my hair in 3 weeks

Never saw it coming

Now it's gone

I was in disbelief and shock

I could not believe I was actually in a wig store

Those where places I used to to just drive by

I was looking for remedies

What will I do when I have to take off my neff Bennie?

How can I swim and expose my scalp?

I ordered a swim wig from hip hats with hair

The owner Christine was compassionate when I discovered that the piece just wasn't a good fit for… Continue

Added by Eneri on June 5, 2014 at 10:54am — 1 Comment

Caring for non-synthetic wig

Hi there: We have a question about the best way to care for a natural (non-synthetic wig).  My sister has conflicting opinions from the two different places where she has purchased wigs and has them cared for.  One place says the wig should not be blown dry, but should dry naturally - the other place says they have a special wig dryer which they use and does not damage the wig.  THe problem is that the wig must also have alopecia because the hair is beginning to fall out. . . The place where…

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Added by Concerned Sister on June 5, 2014 at 12:05am — 2 Comments

Bald head

Hi
Anyone know what to do for bald head color not matching face color? Makes my baldness stand out so much more.

Added by Kat on June 3, 2014 at 6:07pm — 19 Comments

Anniversary of shaved dome

Three years ago today, I finally got my head AND sideburns shaved off, just to see what it was like. Very free-ing, kind of exotic, funny. What the heck, eh? I spent parts of that summer with nothing on my head for road trips or at home, and am grateful for the understanding friend who helped me go through that first process. Even though I still wear wigs to work and a funky cloth hat at other places, I intend to go wigless at my alopecia support group meeting today…

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Added by Tallgirl on June 1, 2014 at 12:30pm — 3 Comments

Eyebrows and lashes are going

Please how do I except this I'm like a freak , I used to be beautiful now I'm a different person. How do I get past this ???

Added by Gemma O'Connor on May 30, 2014 at 6:30pm — 5 Comments

Be strong

I know this is hard for a mother..  my Mom always wanted to "give me her hair"  hold your daughter in your arms and let her feel your love and encouragement. It will be O.K...  don't be sad Mom she feels it..  it is beyond anyone's control...  yours or hers..  be happy you have a sweet daughter.

I have AU..  no hair anywhere..  my friends and family still love me.. maybe even more.  It is a bonus she has an outgoing personality.  It is a rough road no doubt..   but with love and…

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Added by laura on May 29, 2014 at 8:57pm — 1 Comment

I can safely say, I am happy to live with alopecia!

My name is George, and I am 21 years old. Of course I have my bad moments, but who doesn’t? I have been living with alopecia for nearly 8 years now and I have to admit, it’s been quite a journey.

I was first diagnosed with alopecia at the age of 13, I vividly remember the first time I noticed those little round bald bastards. I was at home with my brother and he noticed this spot on me, naturally I ran like crazy and invented the mirror to mirror system-that was later going to come…

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Added by George on May 29, 2014 at 8:30pm — 2 Comments

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