Comment

Comment by For VG on July 10, 2008 at 10:38pm

Roger, Any chances of getting hair back for people with AT going towards AU?

Comment by For VG on July 10, 2008 at 10:37pm

I've been diagnosed with AT and it is fast moving towards AU. I've tried shots, oral steroids, homeopathy and nothing seems to have worked as a permanent solution. Eyebrows, eyelashes, scalp hair are gone and now I'm losing hair all over the body.

Is here anyone from DC/VA/MD/PA in similar situation.

Comment by Brandy on July 9, 2008 at 11:15am

My alopecia can not be seen by others if my hair is down. My spots (except the thinning area in the front) are covered by my hair.

Can someone who went through this exact hair situation please let me know what happens next.... bald patches, one with regrowth while others are still forming and expanding; very slow thinning in several other places; from ear to ear and down my head there's no hair except on the very edges...

I really would like to know what happens next.

Comment by Roger on July 7, 2008 at 7:35pm

Hi.

If anyone has questions about alopecia or wanna ask a man with alopecia. Please feel free to ask me. Ive been dealing with alopecia for 20 years.

Roger.

Comment by as on July 7, 2008 at 12:15pm

Hi Steve,
Thank you for your fable.Shall I alopecia only several months.On November 2007 be beyond retrieve more how 50% sheen.I as I older man was me very uneasy and came to be carry baseball cap.Work as arbitrator on shows animals,olopecia affected and mine work,because am feel funny well.Found am but alopecia world and this splendid instead of me much assisting.According to design here guests present am shaved the rest sheen.Sometimes and take off baseball cap and largely slowly I gather, that the be bald doesn't need to be up to such problem.Therefore to all on alopecia world very thank you.
Excuse please mine bad knowledge English.as

Comment by Steve on July 7, 2008 at 11:11am

Hi, All! Me again. I've lived with AU all of my life. I can't remember EVER having a normal head of hair. But this group isn't about me, it's about living with a new diagnosis of alopecia and how it can drastically affect your self-image and your whole life.

I mentioned a boy in my bio entry on the "Living With" group. I had been in the Coast Guard for about ten years, I was stationed on the Cutter Dallas that was homeported on Governors Island in New York Harbor. A former shipmate of mine approached me one day and asked if I had alopecia. He was a Chief Petty Officer (CPO) like I was and we had been good aquaintances at our last assignment. He told me about his ten year old son. He said that his normally out-going, very bright boy had suddenly lost all of his hair and his grades were dropping in school and he had taken to wearing a baseball cap 24/7, even when he was at table for dinner he refused to take off his hat. This was new to me. It never occured to me that just because I had this condition that someone would ask me something as serious as this! I told my friend that I would talk with his son. About a week later I was introduced to the boy. It was a heart-breaking sight. I saw this poor kid and all sorts of memories came flooding back to me. He wouldn't meet my eye. His body language said it all: He didn't like who he was. I still had my uniform cap on. I sat down across the table from him, introduced myself, and took off my hat. Aside from a pair of glasses there was no other ornamentation on my head. He sat there and stared at me. I told him my story. I told him that his hair may return someday, but that it usually didn't in most people. I told him that if kids made fun of him they weren't really his friends. I asked him if he had friends who didn't care about his hair. He said he did. I told him that they were good friends because they didn't care what he looked like and that they liked him: hair or no hair. We talked for about an hour and when I left I had no idea if I had made a positive impact on the boy.

About a month later I happened to run into the father and as soon as he saw me he came over and gave me a big hug! He said his boy was smiling again. His grades were back where they belonged and he was no longer wearing a ball cap every where! He thanked me.

I've been wordy here, but I want to make this point: First, you newly-diagnosed Alopecians are not alone!! There aren't a lot of us in this world, but we've been where you are now and we can help, if you let us. Second, alopecia isn't our choice, it's something that happened to us. How we deal with alopecia, in all its forms, can define who we will be as we move into the future. With the proper outlook it can get better!

I live in the New York City Metropolitan Area.

Comment by Andrew on July 6, 2008 at 4:37am

I have had alopecia since 1998,Its is difficult to sometimes come to terms with it,and i sometimes feel people looking at me.I think most of the time its just me.I have total hair loss,which does its advantages.
Everday gets better coming to terms with it,none of my friends care about it ,as I have not changed inside.
I am in sales,I think alopecia has made me stronger,none of my customers even blink an eyelind or even ask why I am bald.
I guess the moral is to get on with life and enjoy every moment.
Alopecia web site is your best daily boost,and to see are not alone.
Bald is beautiful

Comment by claire on July 5, 2008 at 8:47am

hi ive had AU for four months and im comfortable now with how i look.
be proud of your dome .......................

Comment by Melissa Romanowski on July 4, 2008 at 11:59am

I have had alopecia for 20 years from years from the age of 12 to now almost 32. I started with AA then AU then to AT and now I'm back at AA. At 12 I started with my hair falling out in patches just on my head. I never really had any significant body hair meaning my arms, back etc. For the first 10 years I just had patches spots that would fall out and grow in. Around age 22 all the patches were falling out and nothing was growing back in. Soon after the leg hair stopped growing. Then shortly following were my eyebrows and eyeylashes. I was very devastated at that point. It just threw off my whole face. I have lived AU from 22 til now where I am dealing with things in reverse. In April all of my hair came back..yes, leg, arm, head, eyelashes, eyebrows even on my back. But now it's july and I've already lost probably 1/3 of the hair on my head. As of right now none of the other hair has fallen out. I wanted to share my story for anyone who is new to this disease and might be in a stage where they need to relate to someone who's been there. As you can see I've been through it all. Keep smiling! Don't let it run your life.

Comment by Di on July 4, 2008 at 7:36am

Thanks for the invitation to join Cheryl, its my 13 year old daughter who has Alpecia , and I thought your tips were great we actually sat down one day and I suggested Cassie (my daughter) write down all the positives in having the condition, and it was surprising what a boost she got out of it! Hair doesn't make the person, it's what 's inside your heart and soul that make you the person you are, going by the input on these sites there are many beautiful people out there! keep up the good work!!

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