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Comment by Liliana on July 3, 2008 at 11:11pm

Hi everyone! Like some of you here, I have been living with this condition for the past year, I am 34 years old, and I have never even heard about this condition until it happened to me, and it has been a real ride, still adjusting to my now 'new' life, having one constant worry, having a strong impact on my selfsteem, wondering whether I will ever get my hair back, having days when I am hopeful and others when I am not.. I have some regrowth in some of the patches, but I notice my hair thining out through out, so I wonder where I would be 5 months from now, I just feel like it's taking all of my energy.. :(

I can relate with Sandra, having difficulty sharing this even with family members, I too have told my Mom a friend and my husband naturally since day one, but I have a hard time opening up and having to deal with people feeling sympathy or feeling sorry for me.
Anyway, I am new to this site, and it will take me a few days to get familiar and get to know some of you, but I thank you gratelly for your welcoming support!

Comment by Michelle on July 3, 2008 at 10:00am

Hi everyone! I've had AA since '97, turned into AT, and now back to AA.....I HATE this condition...but I'm here and open to talk to anyone that may need a little "pep" from day to day! shellbell6208@yahoo.com

Comment by betsy slagle on July 3, 2008 at 9:44am

Hi All - I've been AU since 2000 and prior to that in'97 I did every tx. known to medicine and actually had a regrowth for 2 yrs.; but then my hair completely fell out and that was it for me - I embraced these "tips" and decided to wear a wig or not - wear a hat or not - and now I carry pamplets in my car and whenever someone thinks I have cancer I give them a pamplet on Alopecia Areata !! Acceptance is the key, but it sure takes awhile and knowing we're not alone really helps. hugs to all and by the way I'm a pretty single woman age 62 in good health with two grown daughters. I live in Baltimore, Maryland. Betsy

Comment by RENEE on July 3, 2008 at 9:32am

I have been living with alopecia for roughly 30 years. I am available to anyone who might just need someone to vent to during this hard time of adjustment.

Comment by Steve on July 3, 2008 at 8:07am

I've been AU since age 3. Growing up with AU was hard, sometimes, but there were times when peoples' attitudes kind of hit me right between the eyes. One time, at around the age of 15, I was in a department store pet shop looking at turtles (this was when you could actually purchase red-eared sliders) and two elderly gentlmen approached me and said, "How do you get your scalp to be so shiny?" At first, I was offended until I realized they were dead serious. They really wanted to know! So I said, "Hot water, soap and a wash cloth." They thought I was being flip with them! "No," one of them said, "What kind of wax do you use? It looks great on you and we want to know what kind of wax you use." I looked him right in the eye. "I didn't even know there was a wax I could use. Really, I just scrub it every day in a shower, towel it off and that's it." They were insulted! And they sulked away muttering about "disrespectful punk kids!" I watched them go and wondered what I did wrong.

Point: You can let other peoples' opinions get you down, but you need to know that is your choice. You have to choose to let ignorant, inconsiderate boneheads define who you are. Don't fall into this all-to-easy trap. You didn't choose to be an alopecian, none of us have, but you CAN choose to not let what other people think define who you can be.

Comment by LeslieAnn Butler on July 2, 2008 at 10:26pm

Hi Everyone,
I have had alopecia for over 30 years and I am here for support. Let me know if you need to talk! I also have written a book for women with alopecia called "If Your Hair Falls Out, Keep Dancing!" Find out more on my page.
LeslieAnn

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