Newly Diagnosed with Alopecia

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Newly Diagnosed with Alopecia

This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.

Members: 545
Latest Activity: Feb 9, 2020

Tips for Coping with Alopecia from Day One

1. Love yourself unconditionally, with or without hair.

2. Consult a physician when you think your hair loss has become excessive or abnormal.

3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.

4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).

5. Remember that bald is beautiful, too.

6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.

7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.

8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.

9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.

10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.

Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.

Discussion Forum

Scaring Alopecia

Started by Peace Apr 20, 2017. 0 Replies

Newly balding

Started by Momuv2. Last reply by Momuv2 Aug 23, 2015. 2 Replies

just diagnosed and scared...

Started by Catia. Last reply by Aly Dec 18, 2014. 5 Replies

How do I do this?

Started by MelodyAutumn. Last reply by PamFitros@boldlybaldwomen.com Nov 18, 2014. 6 Replies

Development of AA

Started by Cam. Last reply by PamFitros@boldlybaldwomen.com Nov 10, 2014. 1 Reply

New to this...

Started by ladyeury. Last reply by wtfsamikinz Nov 8, 2014. 2 Replies

Just diagnosed

Started by Kteacher. Last reply by alopeciamommy Nov 1, 2014. 9 Replies

Children with alopecia in New Zealand

Started by MummyWendy. Last reply by alopeciamommy Nov 1, 2014. 1 Reply

Getting Past the Pain - Three Things You Need to Know

Started by PamFitros@boldlybaldwomen.com Oct 13, 2014. 0 Replies

Sad

Started by bobbi. Last reply by BarbaraK Oct 5, 2014. 8 Replies

B-12 shots

Started by Michelle Jun 27, 2014. 0 Replies

Just realized it's probably not coming back...

Started by SBXBlackJade. Last reply by Angie Jun 16, 2014. 1 Reply

Question About AA and Eyelashes

Started by Michelle. Last reply by Kathryn Jun 11, 2013. 6 Replies

It's been a (long) Year

Started by Marissa. Last reply by Fay May 28, 2013. 5 Replies

New to this World

Started by Jackie E.. Last reply by Catia May 28, 2013. 9 Replies

Trying to learn how to move forward

Started by Lindsay Rossi. Last reply by Lindsay Rossi Apr 12, 2013. 3 Replies

Unpigmented regrowth?

Started by Jaclyn. Last reply by Annette Mar 30, 2013. 9 Replies

Comment Wall

Comment

You need to be a member of Newly Diagnosed with Alopecia to add comments!

Comment by Rayna Linder on January 12, 2014 at 1:13am
AA.
Comment by Rayna Linder on January 11, 2014 at 10:24pm
We'll I was diagnosed with Alopecia on Dec 23 2013. Jan 1 2014. I decided with my daughter (22) and son (17) to just shave my hair off. It was stressing me out to wake up every day with less hair. I posted a couple of pictures of me bald. I'm ok with it sometimes. I don't think I will get use to strangers looks. My parents cried when the day came to shave my hair. I work three jobs and my husband of 25 years was murdered on April 18 2011. My life is very stressful I never have time to eat or drink. But I'm learning how to live day by day.
Comment by babyblueeyes123 on December 10, 2013 at 2:06pm

anyone in the sacramento area?

Comment by Rita on September 4, 2013 at 5:59pm
Hi all! I was diagnosed with AA about one month ago. I've lost, I would say, half of my hair. I realized back in June that my hair was falling out like crazy and it scared me really bad. I don't have anyone in my family that has had this. My Derm told me that it is most likely from extreme stress. I lost both of my parents within a year of each other and I was VERY close to the both of them. At the same time of my fathers death I lost all of my belongings. I really do believe all of that together caused my hair to fall out.
I have a lot of itching with mine but no pain. I have started the injections, boy do they hurt! I have huge knots on my head the day after the injections. They're no fun but hopefully it will help regrowth.
Comment by Snowflake on May 28, 2013 at 12:50am

Bruce, i know when my hair started coming out I was soooo itchy.. even once i lost all my hair there were times when it was itchy. now with my regrowth happening, the scalp is itchy often again!!! ;-)

Comment by Madeline on May 28, 2013 at 12:47am

Bruce, my head definitely itches right before a patch shows up. I've only had the condition for a month, but 2 new patches showed up this week and they itched. It also hurts a bit around them, too, as if the hair has been pulled.

Comment by Angie on February 7, 2013 at 3:04pm

If anyone knows of someone who lives in the DC or NoVA area and would like to join our alopecia group, please visit our Facebook page and request to join the group.

http://www.facebook.com/groups/canaaf/

Comment by JeffreySF on January 28, 2013 at 12:48am

Cheryl...I just have one thing to say....You're Fab-u-lous!!!

Jeff

Comment by Cheryl, Co-founder on January 27, 2013 at 7:45pm

Jaclyn, I would have to agree with you, that I find it easier to be the "bald girl" than the "balding girl", although I have had alopecia for over 20 years that sometimes I get lazy and do not want to shave my spots. I am also ok with going out with the spots. I find I really want my clean shaved head for weekends and when I am dressing more business or formal.

Comment by Fay on January 20, 2013 at 10:46am
My eye doctor suggested latisse to help with eyelashes and said try it for eyebrows. He said researchers are trying to make it for the head. It was original for glacoma but the sit affect was growth and thickness of eyelashes.
 

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