January 2009 Blog Posts (116)

Wig Arrived!



My first wig came today. It is Sassy by Revlon and the color is Autumn Glow. I followed the recommendations from my friends here at Alopecia World and they did my right! It is a mono cap, synthetic, and it was well under $200 from Wilshire Wigs. I must admit it's redder than it looked on my monitor, but I absolutely ADORE it. It fits perfectly and needs no thinning or trim. In fact, it is almost identical to the cut I have right now, only the… Continue

Added by Nants the Rebellion Dog on January 12, 2009 at 8:11pm — 5 Comments

Joseph Paris Salon in NYC????

Has anyone every heard of Joseph Paris or Hair rx? I am not sure how I found this website, but I sent away for literature and the owner Mr. Joseph Paris called me himself. He has two websites. www.josephparis.com and www.yourhairx.com. The pictures of the pieces that he creates are amazing. I have never seen such natural looking hair lines ever. I would love any feedback that you can provide if anyone knows about him and his pieces.



Thanks in advance for your… Continue

Added by RENEE on January 12, 2009 at 7:33pm — 2 Comments

Here goes...

So...December 10th is when it started...

It's now January 12th, and I have finally been given the diagnoses of having AA. The patch started out about the size of a dime...

Now it's about 2.5 inches around, at the top of my head. I haven't noticed any other spots.

I am now using the steriod topical cream. Has anyone had success with this?

I have considered shaving my head - because I'm really tired of obessing over how many hairs will fall out at one time.

I'm feeling… Continue

Added by Christie on January 12, 2009 at 2:21pm — 7 Comments

...

So I am always so busy with work and etc that I never have time to come on here. I'm so glad I did, since I came on here my stress levels about my alopecia have gone down. Right now I have a cream that I rubbing on the spot each day and it seems to be making the hair grow back but I am still being prepared for another one coming or it coming back. It's a scary feeling when it is so unpredictable. I hope everyone is having a great week! Thanks for all the… Continue

Added by Karissa on January 12, 2009 at 11:44am — No Comments

Policy update: Advertising on Alopecia World

Effective immediately, all businesses must receive written authorization from Alopecia World before posting or uploading any advertisement or promotional material, including marketing videos and products photos, to Alopecia World.

In addition, businesses may not use any feature of Alopecia World to spam its members.

This policy does not prohibit members of Alopecia World from continuing to mention, discuss, recommend, or debate commercial products and services in the larger…

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Added by Alopecia World on January 12, 2009 at 11:30am — No Comments

Alopecia Universalis - Do you have any other disease or condition?

Hi I am new to this - I recently in Oct was diagnosed with AU (self-diagnosed as all my docs were useless) I had AA when I was about 10 and had cortisone shots back then and had full hair growth and never any issues until now at 39!!! I never thought it would come back and did not know any better and certainly did not know it could be AU - but I am dealing with it pretty good, the hardest part is the eyebrows and eyelashes.... but what I am trying to find out from anybody with the same thing if… Continue

Added by Diana on January 11, 2009 at 7:38pm — 28 Comments

Things Alopecians Like #10

Frizz-be-gone:
"Freedom from "frizz" drama! No matter rain, wind, humidity, etc..."

Thanks Sandy!

Added by Jill on January 11, 2009 at 3:00pm — No Comments

Feeling scared

I think i have Alopecia like a 95% but i still haven't talked to a gp or a doctor about this and i'm trying to for these past weeks, growing up i've been very scared of what people think of me but now i've been having nervous breakdowns plus my family isn't sympathizing my brother laughs, my mum says nothing and my dad says previous things in his life which are sorta like this but is about easy things which dont change his physical apearence. I have gone through another patch before and my… Continue

Added by Nathan on January 11, 2009 at 9:03am — 4 Comments

1/10/09 where i'm at...itchy

I feel so messed up today. Thursday afternoon I went to see my dermatologist and she found 2 more small bald patches. We agreed to treat them with squaric acid and injections since so far, I've had regrowth every time. But, it's the side affects that are bothering me at the moment. The spots on my head were really itchy yesterday and as long as I don't touch them and get the cooling gel on quick, then everything there is ok. But it's my neck that has a rash on the side now. I haven't… Continue

Added by Georgie on January 11, 2009 at 12:00am — 1 Comment

Can things get any better than this?

Hello my little pretties,

Just when I am on top of the world someone always seems to be able to make it even better.
Gawd you guys are good.
I Love You Alopecia World!!!

Jeff

Added by JeffreySF on January 10, 2009 at 9:37pm — 2 Comments

Discussing Alopecia

Hmmmm..... LOL.



I have had au since I was 5 years old. At least I think I was 5 years old. Could have been a bit later. I guess 5 years old is the last time I remember having hair. Well, a full head of nice hair anyway. I guess even at that age I was looking for the day when my hair would regrow and wasn't trying to remember the day it started to fall out.



Now I am 42. I grew up with an incredibly supportive and loving family. Working middle class. My parents loved me and… Continue

Added by Frank on January 10, 2009 at 5:30pm — 6 Comments

wigs in australia

at the moment i buy my wigs online. my fave right now is victoria by amore.

colour dark rust. the site i use is wigs.com i've found them to be mostly reliable with only one mistake which they fixed pretty fast. i just feel a bit bad buying from directly outside of aus. but to tell u the truth wigs in aust are darn expensive. i went to sydney for our honeymoon and bought a wig and they wanted $500 for a wig that would have cost me $300 online. i fibbed and said i had flown all the way from… Continue

Added by Alison on January 10, 2009 at 6:55am — No Comments

On The Clearance Isle

To all ... stocking stuffers bring the most unusual gifts. The gifts are small in nature - don't cost much - and sometimes can be quite amusing! In mine this year I had several CDs that, as it turned out, came from the clearance isle at Wal Mart. Good enough! I love it actually. The music is from rock groups of long ago.



On my way home from work today, I opened one up and popped it in. Ahhh yes! The sound of music! Song 1, then 2, and on and on, and I remain amused at each one that… Continue

Added by David on January 10, 2009 at 12:25am — 3 Comments

Are them fightin’ words?

Catfight Cheryl and I were visiting friends several days ago when the husband sat down at his family’s computer and started watching this video of Cheryl trying on wigs.

When his wife saw Cheryl in the video, she immediately blurted out, “Wow, Cheryl! Is that you? Girl, have you ever thought about wearing wigs all the time!

The husband and I were taken aback and immediately called his wife’s attention…

Continue

Added by rj, Co-founder on January 10, 2009 at 12:00am — 14 Comments

Avatar!

Yes, I did it! I drew my own avatar, and I am very proud of it. I've been watching an AMV on youtube about using Turkish scarves (by Mary) and I found the solution to my next problem... the summer! Anyway, I got inspired and I drew my avatar. I like drawing anime fanarts and this avatar is in anime style as well. It is just an hobby, that relaxes me a lot. I just need my pc and my graphic tablet. Unfortunately here it appears very small, resized by the site...

it better looks like this:… Continue

Added by Teresa on January 9, 2009 at 7:45pm — 4 Comments

Need a stylist in Memphis/Nashville, TN area

Does anyone know of a good stylist in the Memphis or Nashville, TN area that can "cut in" a topper piece for me? I have a topper piece that I ordered, but I'm not having much luck finding a really good stylist that will "cut it in" (blend it with my hair) for me. Most are afraid to cut them:( Any help is greatly appreciated! Thanks so much!

Added by Karen on January 9, 2009 at 6:36pm — No Comments

Things Alopecians Like #9

No more coat zipper drama. No hair, no worries.

Added by Jill on January 9, 2009 at 9:30am — 1 Comment

Grown back and I feel the best I have felt in Many years

[ Draft ]I Have a happy story. After months of antidepressants and scalp pain dandruff major hairloss. I have conquered. I had some metabolic test done through my chiropractor.He discover I was full of candida albicans a fungal over growth. Makes sense I craved sugary foods all the time and was tired and lacked energy. I now are on about 7 different minerals Zinc,Tin,Chromium,Iron,selenium,Lauric Acid........this is the biggy that made the difference to my hair, and magnesium. I am just about… Continue

Added by Kathy Maidens on January 8, 2009 at 10:07pm — 1 Comment

Feels like my head is spinning

School, Work, Jury duty, Family, Friends and Intraweb? My word I've been busy and had a serious lack of sleep too! Everything is going OK so far though. Hope everyone else is enjoying their new year. I better go work out before the shower as I've missed two days in a row due to lack of time/sleep.
Love
CaR

Added by Carmella on January 8, 2009 at 9:26pm — 2 Comments

I'm new to this!

My hair started to fall out in the summer. I remember being in the shower, washing my hair and all of a sudden I was holding a hair ball the size of a tennis ball. I freaked out. Later looking through my hair I didn't have any bald patches but I had lost about a third of my hair. Now I have lost all my hair lines (about 2inches all the way round). I have been to the doctors but they don't help. I sometimes wish It would all fall out, as I feel I am floating inbetween some one with hair and… Continue

Added by Tracey on January 8, 2009 at 5:50pm — 1 Comment

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