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Just To Talk

Ok this is the first time I've ever done this. So sorry for any misspellings and bad grammar. Sssssssoooooooooo sorry if its bad or something like that. OK well I just wanted to talk....what about? I got no idea. But I guess just talking about something is the best thing. So here I go.



Since I was about 18 months old (I am now 20 years old) I have been slowly over the years losing my hair. I have what is known as alopecia. Its not life threatening or anything like that I just have an… Continue

Added by Samantha White on June 28, 2010 at 2:00am — 3 Comments

Photos you'll love - NAAF 2010



Find more photos like this on Alopecia… Continue

Added by rj, Co-founder on June 27, 2010 at 4:30am — 7 Comments

Share your NAAF conference experience on Alopecia World :-)

The 2010 NAAF conference in Indianapolis, IN, is amazing!

Several members of Alopecia World are present and some are even making a positive difference as group facilitators and in various other volunteer capacities.

Cameras are everywhere, too.

Therefore, we encourage each of you in attendance to upload your NAAF conference photos and videos to http://www.alopeciaworld.com

We also encourage you to blog about your NAAF…

Continue

Added by Alopecia World on June 26, 2010 at 5:00pm — 3 Comments

Kayla Martell to be featured on The Early Show and Fox & Friends next Monday and Tuesday

TUNE IN ALERT



Newly Crowned Miss Delaware 2010 Kayla Martell



To Be Featured on The Early Show and Fox & Friends



Mon. & Tues., June 28 & 29



Tune in to CBS' The Early Show on Monday, June 28 @ 8 a.m. ET* for the newly crowned Miss Delaware 2010 Kayla Martell as she talks about living her life with alopecia and promotes the opportunities the Miss America Scholarship Program has provided her.



On Tuesday, June 29 @ 8:20 a.m. ET* Fox… Continue

Added by Rhonda on June 26, 2010 at 11:36am — 5 Comments

Comming to terms with hair loss

When my first patch of hair fell out, I was horrified. I had never heard of Alopecia until that time. I later found out that my father lost his hair due to alopecia by the time he was about 35 years old. I didn't begin loosing mine until I was about 45. I am now 55 and going thorough the worst hair loss I have ever experienced. I go back and forth between worry, anger and acceptance. Sometimes I wish it would hurry up and all fall out so I won't have to worry any more. I think about shaving,… Continue

Added by Anne Williams on June 25, 2010 at 11:04pm — 1 Comment

I have made up my mind

Look out world here I come...



As many of you may know, I have been an emotional wreck since I first found a bald spot in the back of my head months and months ago. It has been quite a ride, and this site has been such a blessing to me. To recap my experience...



My hair all fell out when I was five, and it all grew back. We had no idea why it happened but we figured that it was a freak thing and would not happen again. So then my freshman year of college I scratch the back… Continue

Added by Allison Miller on June 24, 2010 at 5:57am — 14 Comments

Ellen would be a great show too

Thanks Michelle for sharing. I don't know how to try to get her on there as I didn't see a category that really fit. Maybe you can help. She just really wants to promote alopecia awareness and realizes the crown helps her do so. She was interviewed on a local tv show and she did part without her wig since she doesn't always wear it.

Added by Rhonda on June 24, 2010 at 4:38am — No Comments

Kayla Martell was in USA TODAY - some have suggested getting her on OPRAH to share about Alopecia - Need your help

https://www.oprah.com/ownshow/plug_form.html?plug_id=3337311



It was brought to my attention that Oprah is looking for the public to suggest a person that they want to see interviewed before her show ends in 2011. Some have said how great it would be to have Kayla on to represent Alopecians worldwide - especially since she will be competing for Miss America on Jan 15, 2010 in Las Vegas Nevada.



If… Continue

Added by Rhonda on June 23, 2010 at 10:12pm — 2 Comments

Newbie

Ive been a member of this site for a few months probably but this is my first time on the site. I am 22 years old and starting developing alopecia about a year ago now, it started with a small spot . It progressed and got to the poinjt i shaved my head and purchased a wig. I am a recovering Anorexic, and have suffered for 6 years, doctors think this may play a part in my hairloss. I also am having hormonal issues too, which may be affecting my hair too. Its a big puzzle really.

Anyway… Continue

Added by Mjay on June 23, 2010 at 7:58pm — 4 Comments

Alopecia

ok well like wat is the difference between the diferent types of alopecia cuz no one ever told me the differences between them plzzz help me understand

Added by lex on June 23, 2010 at 5:49pm — 1 Comment

NAAF 2010 Indianapolis

Hi Everyone,

I hope your Summer is off to a great start!
We're off to the 25th Annual NAAF Conference in less than 48 hours!
I cant wait to see all my friends and make some new ones!

Yay!!!
Jeffrey

Added by JeffreySF on June 23, 2010 at 12:57am — 4 Comments

My life

well my names alexandra but everyone calls me lexi so i just go by that but i lost my hair when i was 2 years old and well it grew back then i would just lose it in patches but in 5th grade i finally got a big patch. then when i was heading in to 7th grade i had to shave my head cuz i knew people would be cruel bout how i lookd and at the time i did have a boyfriend who i didnt want him to be made fun of for dating a girl like me so i bought my first wig and it was for me and him but then… Continue

Added by lex on June 22, 2010 at 9:30pm — 4 Comments

One year on...

Wow, has it really been so long since I posted on here??? I used to trawl this wonderful site numerous times daily searching for hope and kindred spirits. What a help it has been, and I'm a little ashamed to neglect it in recent weeks.



Alopecia has actually been in my life for over 20 months, but it went into overdrive a year ago, and turned me into a stressed out/anxious/depressed wreck.



One year on, and I'm doing really well (the turning point actually happened after… Continue

Added by Robert on June 22, 2010 at 5:27pm — 2 Comments

Still Losing

My 3 yrs old is not getting any better she is continuing to lose all of her hair i asked her today if she wanted to get it all cut off because all she has is a little in the back she said no mommy i told her ok u will always be mommy beautiful baby

Added by Cindy Dyson on June 22, 2010 at 12:00pm — 2 Comments

Progress

Hi,
Haven't been updated for a long time, I think it's still the same as those pictures I posted 2 months ago. Slow progress, hairs are growing longer, but those bald patches are still there. Last two months, I have blisters almost everytime after the treatment. So the doctor decided to decrease the DCP concentration to 0.5%, instead of 2%. This week is better, at least, no more blister but the itchiness is still there, kind of desire effect. will see how its going.

Added by dawn on June 21, 2010 at 9:45pm — No Comments

Gifts?

Okay, okay!! I know I haven't been here much at all over the past few months but I'm slowly getting back into the swing of things. You know how it is, life just keeps handing you more and more until your hands are so full then suddenly you're 3 years old again having to keep picking up the same darn ball you keep dropping (which is incredibly funny to watch however very frustrating to experience - especially when you realize what's going on).



I moved at the end of March so it's… Continue

Added by Carol on June 21, 2010 at 8:08pm — 1 Comment

My Story, hopefully it's inspiring

When I was in 8th grade (either 14 or 15) I started loosing my hair. Doctor first gave me some cream to rub on it, didn't help. Went to the dermotologist, he gave me some stronger cream, still didnt help so they did a biopsy and found out that I have Alopecia Areata... I took it rather well for a teenager, my mom took it worse than I did. She cried over it countless times cause I had long, thick, brown hair. But me, I never once cried over it. I never did anything with my hair anyways, it was… Continue

Added by Donna Shaw on June 21, 2010 at 4:10pm — 2 Comments

Pregnancy

I am 5 months pregnant and want to know was anyone bald before they got pregnant and then there hair grew back? I notice a little fur all over my head which causes my scalp to itch...I was pregnant 6 years ago and right after I had the baby that is my first diagnosis with alopecia...Should I just shave off the fur and keep it moving? Talk to me!!!!

Added by Nicole O'Brien-Dupye on June 21, 2010 at 2:30pm — No Comments

Shaved my hair yesterday!

I apologize I haven't blogged in a while, with finals and my road trip back to South Dakota, it's been quite hectic. I will update soon though, just thought I'd say hello & I hope everyone is doing well!



We shaved my head yesterday. Considered shaving it bare but decided to keep some for now and see how that goes. I'm feeling good about my choice thus far, haven't had any melt downs as of yet. It was crazy to see how much hair I had, as well as how much was actually missing from… Continue

Added by Ellen Burns on June 21, 2010 at 2:12pm — 1 Comment

The perfect gift for an alopecian

Recently, I took up running. I'm just starting out, but it's one of the only things that helps releive my stress and make this whole alopecia thing seem more manageable. While running, I wear bandanas, but am totally bummed by the lack of selection at stores near me. They are all cheaply-made, obviously designed for men, or too dark (which when you add sun translates to too hot). Today my friend came over to give me a birthday gift- a totebag filled with dozens of cute, light-colored, girly… Continue

Added by Andrea on June 20, 2010 at 9:27pm — 6 Comments

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