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We talk about the emotional aspects of alopecia, but what about the financial strains?
"Ebony Dicks reflects on how living with alopecia areata has affected her personal relationships and how she learned to navigate them:
Some challenges that I deal with include friendships and…
Added by Cheryl, Co-founder on August 27, 2022 at 12:00pm — No Comments
If so, did you celebrate it? How?
International Alopecia Day was originally started with Mary Marshall on Alopecia World and has grown to a worldwide event!
If you participated feel free to share your photo here, and on Instagram tag @alopeciaworld so that we can connect, view and share it on Instagram.…
ContinueAdded by Cheryl, Co-founder on August 10, 2022 at 2:30pm — No Comments
Added by Cheryl, Co-founder on August 6, 2022 at 9:45am — No Comments
What if you do not consider yourself as one of the young, seemingly beautiful with or without hair type.
Where do you go from there?
How do still develop a sense of self even if you do not believe that you are beautiful?
A video that really bought that home for me is the one below from one of our members, Rachel Goode entitled: “I may not love how I…
ContinueAdded by Cheryl, Co-founder on June 29, 2022 at 11:00am — 2 Comments
My mind has been on alopecia and what is the best way for us to live life to the fullest while living with the condition?
I am convinced that this is more an emotional battle than a physical one.
Our struggles seem to have more to do with acceptance, will I find a mate? Will kids at school laugh at me? How do I tell my new date? Will my spouse still be attracted to me?
My thought is, if it was just physical then “slapping on” a new wig would…
ContinueAdded by Cheryl, Co-founder on June 26, 2022 at 5:23pm — 10 Comments
I recently came across an article that mentioned a new pill for alopecia.
Added by Cheryl, Co-founder on June 16, 2022 at 6:30pm — 17 Comments
*Please note that these points apply to adults, not children.
As I imagined it would be, the Oscar slap heard around the world was news for a few days and then it was on to the next things. But I have been mulling it over for the past few weeks and came up with five life lessons that this situation can teach all of us. …
ContinueAdded by Cheryl, Co-founder on May 1, 2022 at 10:00pm — 4 Comments
Hi Everyone,
This is my 2nd interview today talking about the Jada Pinkett/Will Smith/Chris Rock incident.
I will be on CBS News in Los Angeles live at 5:30 PM (PACIFIC TIME) 8:30 PM EASTERN
(Monday, March 28th, 2022)
If you get a chance to tune in that would be…
ContinueAdded by Cheryl, Co-founder on March 28, 2022 at 7:30pm — 1 Comment
This is tragic, but I think it is important that we all share this story. What can we do individually or as a community to help our brothers and sisters?
"Candlelight vigil for 12-year-old North Side Middle School student"
"Nicole Ball claims her daughter was bullied…
ContinueAdded by Cheryl, Co-founder on March 22, 2022 at 5:00pm — 7 Comments
"Losing your hair can be pretty devastating, and if it's an experience that you know all too well, you’re not alone. Hairloss is more common than you think, and it doesn’t discriminate or target specific people"
"Even some of the celebrities you know and love have experienced it, and thankfully for…
ContinueAdded by Cheryl, Co-founder on March 17, 2022 at 9:42pm — 1 Comment
Victoria (Vicki) Kalabokes, former President & CEO of the National Alopecia Areata Foundation (NAAF), died on Saturday, January 22, 2022, in San Rafael, California.
If you have been to a National Alopecia Areata Conference you know who Vicki is and all that she has done for the Alopecian…
ContinueAdded by Cheryl, Co-founder on January 25, 2022 at 4:30pm — 1 Comment
Things have changed so much for me that most of the time I forget I even have alopecia. But I can assure you it has not always been that way.
I lost my hair 30 years ago. I have now lived my life more without my hair than with it. But at the same time, I clearly remember leaving the dermatologist's office and him telling me that I have alopecia and I…
ContinueAdded by Cheryl, Co-founder on September 3, 2021 at 12:30pm — 1 Comment
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Participate in a study to understand well-being and experiences of stigma among adults dealing with hair loss. This is an anonymous,…
ContinueAdded by Cheryl, Co-founder on May 24, 2021 at 10:41pm — No Comments
Did you know that we are not only the owner of AlopeciaWorld.com, but we are also photographers?
I met Michelle online and immediately connected with her. This session started as a boudoir shoot and ended as a self-journey. It was very touching and real as the photographs reveal a story of entering into self-acceptance.
Michelle wrote:
"Change is hard at first, messy in the middle, and gorgeous at the end. Four years…
ContinueAdded by Cheryl, Co-founder on May 24, 2021 at 9:31pm — No Comments
Join me and a group of incredible women with alopecia in a Let's Talk webinar!
Adulting can be described as learning to navigate grown-up things and have responsibilities, such as finding full-time employment, paying bills, dating, and relationships, and more. Adulting can be filled with many ups and downs, let alone navigating it with alopecia.
Added by Cheryl, Co-founder on January 15, 2021 at 1:30am — 2 Comments
Added by Cheryl, Co-founder on November 10, 2020 at 4:11pm — No Comments
BE PROUD AND BE VISIBLE by flooding social media
with your International Alopecia Day photos and greetings!
IAD is a way to raise public awareness, AND to…
ContinueAdded by Cheryl, Co-founder on July 29, 2020 at 1:30pm — No Comments
SATURDAY, AUGUST 1 will be the 11th annual International Alopecia Day (IAD) - the day to celebrate worldwide who we are.
This year, due to the pandemic, International Alopecia Day organizers request that we all will need to follow CDC and your local health department guidelines about social distancing and safety.
But, even if you can't have the…
ContinueAdded by Cheryl, Co-founder on July 13, 2020 at 10:00pm — No Comments
A few people have asked about the new Coronavirus (Covid-19) and if we are at more risk because we have alopecia. I did a search and found this:
Alopecia UK asked two alopecia experts, Dr Matthew Harries and Professor Andrew Messenger for their thoughts:
“Alopecia Areata itself does not compromise the…
Added by Cheryl, Co-founder on April 7, 2020 at 4:30pm — No Comments
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