Featured Blog Posts (3,061)

I don't know why my mother thinks I am making her suffer

Everytime I talk to mom about my state, she goes like "why are doing this to me? Why are you making me suffer so bad?" But I am not making her suffer, I just don't know why is she thinking like this, ever since my father had died two years ago, she started acting so nervous and putting blame on me having this disease... She has this weird thought that I am making my hair fall on purpose to get her attention and to make her suffer. I just don't see the point in this, instead of feeling less…

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Added by Yuri Kim on May 8, 2013 at 5:00am — 19 Comments

I had these grand plans to get my hair to grow and I have failed at it

I had these grand plans to get my hair to grow and I have failed at it.I've watched as these spots have roamed around to different areas. Now \\I'm beginning to see patches on legs and on my arms. Iguess I just have to accept this. My depression in not complete and i have left work, not wanting to venture out of my home.people hear have been so cruel.What do we have left? what do i have left anymore? I am such pit of depression that i acnt get myself out of.

Added by michael on May 8, 2013 at 1:00am — 4 Comments

Going out bald

Today was the first day that I ventured out without a hat or wig. Enjoyed wandering through our local garden store and gift shop and then dining at a Mexican restaurant. I received the courage to do this after reading "Boldly Bald Women" by Pam Fitros. Although I have suffered with Alopecia Areata for many years, I only recently lost all my hair to AU. It has been a tough adjustment but have had wonderful encouragement from family and friends.

New to Alopecia World, but thankful for…

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Added by Janet on May 8, 2013 at 12:30am — 6 Comments

Dating and alopecia

I have had Alopecia for over 20 years, since I was a little girl. So I consider myself a "seasoned veteran" of this disease. For the most part I'm pretty use to it. The unpredictable nature, wearing wigs, the occasional explanation to someone, etc. However, one thing that had always given me anxiety was dating with my alopecia.

I thought that would never be an issue again once I got married, however I find myself back in the dating world and the anxiety is right there with it. Not…

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Added by Dame on May 6, 2013 at 11:30am — 42 Comments

Outrageous alopecia "joke" by Jay Leno on Tonight Show. Anybody else want to write to NBC?

Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. He showed a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents.

The doll only had long hair around the outline of its scalp, and was otherwise bald. He joked perhaps one could do a Donald Trump comb over...the usual yuks.

Then he stated "Maybe its an Alopecia doll I don't know".

I found this incredibly insensitive and insulting. I…

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Added by Mary on May 4, 2013 at 2:00pm — 7 Comments

Eyebrows and eyelashes

Hi!
I've had AA since I was six but recently I've started losing hair all over my body, including my eyelashes and eyebrows. You can't really notice that my eyelashes are falling yet, I think, and I use eyeshadow to fill in my eyebrows but I'm scared it's going to get worse and won't know what to do... What do those of you who have no eyebrows or eyelashes do to conceal this hair loss? I would love to get some advice :) Thank you!

Added by CMF on May 2, 2013 at 12:22pm — 14 Comments

My struggle with alopecia

I'm 17 years old and have had Crohn's Disease since I was 7. 3 years ago I began Remicade infusions and it really turned my life around. This past August, I went for a haircut and then a few weeks after noticed my one sideburn looked like it was cut in half. I thought maybe it was a bad haircut and figured it was nothing, until the rest of the sideburn went away and the hair loss started moving up the one side and then the other side. My doctor sent me for blood tests to check if there was a… Continue

Added by Adam L on April 27, 2013 at 10:00pm — 3 Comments

My story at 19

Well. I'm not sure where to start. Basically I had AA on and off since I was 4 years old. At 12 I finally decided that the PUVA treatments and the high dosage of steroids were breaking me down so I just lost all of my scalp hair and have been bald ever since! Middle and high school were definitely the worst, the kids were beyond horrible. Which had lead to my major self esteem issues, which I'm sure all of us have battled with.



During my junior year in HS I started having major…

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Added by Rita on April 26, 2013 at 3:00pm — 1 Comment

Scared...job interview

Hi all, Been awhile since I posted, but finally accepted having no hair only took a year....yeah go me, but now I am looking for a new Job as my Job is being made redundant and I have an interview on Monday but don't know how to address the Alopecia thing my current work place was accepting but the idea of having to make new employers understand is hard, Just wondering does anyone have a booklet or a letter they have attached to there resume's or given out that explains it, something that…

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Added by Cassandra on April 26, 2013 at 6:00am — 13 Comments

Tomorrow I am going to start a new routine

Tomorrow I am going to start a new routine of natural vitamin supplements A-E, a shampoo with zinc, daily scalp massages, rogaine twice a day and yoga and meditation classes because i believe that stress plays a major role in this disease. I so tired of my doctor dismissing every alternative as inconsequencial. It's my hair thats falling out not his. I'm not going to take this lying down anymore! I'm not going down without a fight. I'm naturally high strung and vociferous, so that will be a…

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Added by michael on April 25, 2013 at 11:00pm — 4 Comments

Hair colour, eyebrow pencils, or gel anyone?

Pleased to discover this fine forum. My male partner began having mild alopecia last fall at the age of 55, starting off with a bare patch on his chin. This spread to make a larger area, then we noticed a few bare patches on the back and sides of his head. He has quite dark, short hair and I have noticed that some small bald areas have been slowly growing back though now grey or very light hair. His regular visit to get his hair trimmed became uncomfortable as he was very conscious of others…

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Added by Sheila on April 21, 2013 at 7:56pm — No Comments

I can stop feeling sorry for myself! I feel guilty for feeling sorry for myself. People out there just lost there life's and limbs!! I go to a therapist ! It does not help! I love my boyfriend soo mu…

I can stop feeling sorry for myself! I feel guilty for feeling sorry for myself. People out there just lost there life's and limbs!! I go to a therapist ! It does not help! I love my boyfriend soo much but he defiantly treats me way different,since I lost my hair ,and my hair is brown with thick grey hairs. I get cortisone shots every six weeks! Wen I take a shower my hands are full of pieces of hair that are 1/2 inch long. All the new hair that is growing from the shots! Been diagnost with AA… Continue

Added by Trish on April 21, 2013 at 1:34am — 3 Comments

It's been awhile

It has been awhile since I went and posted a blog. I think maybe I have been trying to avoid talking about my alopecia. It's been a roller coaster. I've tried every possible treatment option. It's tough when they are all experimental. Anyway. I had 95% of my scalp hair back and 75% of my own eyelashes on my wedding day. By the end of my honeymoon it was falling out again. I go see my dermatologist every other month and get painful steroid injections in my scalp and take multivitamins and… Continue

Added by Erin on April 19, 2013 at 11:52pm — 1 Comment

Has anyone tried the RLT therapy/prommune diet?

I've been reading about it and I am curious, has anyone here tried this diet and if so, would you recommend it? I am considering ordering the guide and trying it out, but I would hate to waste my money on something that doesn't work.

Added by Braya on April 16, 2013 at 7:00pm — 2 Comments

I'm only 13 and it's really tough

So I have had alopecia areata since I was two. I have always had somewhat of long thin hair with little patches that nobody ever noticed. I decided to get hair extensions last year which pulled out about 40% percent of my hair but not all of it.Last month I had a fight with my best friend and all my hair fell out.I wear a wig now(im only 13)and its really tough. I have never talked to anyone with this disease who is my age and I hope I can meet someone who does:)thanks

Added by madison on April 15, 2013 at 7:00pm — 19 Comments

Fifteen years with alopecia, kinds words for those who struggle

To basically start, I was diagnosed with Alopecia when I was 10 years old. At the time I was just a kid and had no idea how rude and mean people could be at the time. Had no friends until High School because kids wanted to poke fun and be ignorant, this was when Alopecia was not as known back then. Long story short some hair came back but never all the way, in High school continuing on to now I have such amazing people in my life and never thought about my hair loss to much. It became who I…

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Added by Brian40below on April 15, 2013 at 4:30pm — 1 Comment

It's an ill wind that blows nobody any good

All my hair fell out whilst on vacation last September,from having a full head of dark brown hair (not great hair mediocre at best but all mine)to nothing and have subsequently found out it ain't coming back.

So after a good cry I decided only to look at the positives of this.

A three minute shower means 20 more minutes of sleep,No misbehaving to sit staring at oneself in salon mirrors whilst having hair styled

(HA) legs & other body parts no longer have to be…

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Added by Gemma on April 14, 2013 at 7:34pm — 8 Comments

Tattoos

hi all.
I have had alopechia for 2 years now and still can not come to terms with. I have been hiding inside my house,trying to hide from everybody.Does anybody here had eyebrowtattoo's put on as I am seriously considering getting them done,and also scalp tattoo's seen some places in USA that do it and looks really good,
Thanks

Added by SpartanKid on April 14, 2013 at 7:30pm — 8 Comments

Step by step

Several years ago I was diagnosed with Alopecia Areata.After that I lost all self-esteem that I had at the time. Throughout the past couple of years, I have begun to receive some of my self-esteem back. Other days being better than others. Around six years ago I picked up playing volleyball and fell in love. I have continued to play ever since. In my most recent season, a couple months ago, I decided I was fed up with hiding my alopecia from my team mates that I adored so much. I prayed and…

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Added by Rachel Taylor on April 14, 2013 at 4:00pm — 4 Comments

Pulse steroid therapy

I am recently diagnosed with alopecia universalis.

Can't stand the 2 month's stress....and my derma (one of the top docs in mumbai city) has put me directly into following regimen so that I get a good chance0 (possibly) of getting my lost pride.



1. Dexamethasone 100mg three days pulse therapy ( 3 hours slow i.v infusion for consecutive days in dextrose)

2. Oral pulse steroid every week ( 5 mg dexa) for 6 months.

3. Azithioprine 50mg everyday for 6 months.

All… Continue

Added by Mumbai on April 14, 2013 at 12:00pm — 5 Comments

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