All Blog Posts Tagged 'alopecia' (247)

Did you know there is an International Alopecia Day?!

If so, did you celebrate it?  How?

International Alopecia Day was originally started with Mary Marshall on Alopecia World and has grown to a worldwide event!

If you participated feel free to share your photo here, and on Instagram tag @alopeciaworld so that we can connect, view and share it on Instagram.…

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Added by Cheryl, Co-founder on August 10, 2022 at 2:30pm — No Comments

NAAF Webinar: Identifying Bullying and Standing Up to It Safely

"IDENTIFYING BULLYING AND STANDING UP TO IT SAFELY"

Thursday, August 25, 2022 - 4:00 PM PDT / 6:00 PM CT / 7:00 PM EDT…
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Added by Cheryl, Co-founder on August 6, 2022 at 9:45am — No Comments

I May Not Love How I Look... But

What if you do not consider yourself as one of the young, seemingly beautiful with or without hair type.

Where do you go from there?

How do still develop a sense of self even if you do not believe that you are beautiful?

A video that really bought that home for me is the one below from one of our members, Rachel Goode entitled:  “I may not love how I…

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Added by Cheryl, Co-founder on June 29, 2022 at 11:00am — 2 Comments

FDA Approves New Drug, Olumiant, for Alopecia Areata

I recently came across an article that mentioned a new pill for alopecia. 

"FDA greenlights 1st treatment for sudden hair loss caused by autoimmune disease"

"The drug — part of a class of medicines known as JAK inhibitors — is the first approved treatment for alopecia areata.…
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Added by Cheryl, Co-founder on June 16, 2022 at 6:30pm — 17 Comments

I will be on live stream tonight the CBS - Kcbs Kcal Los Angeles

Hi Everyone, 

This is my 2nd interview today talking about the Jada Pinkett/Will Smith/Chris Rock incident.

I will be on CBS News in Los Angeles live at 5:30 PM (PACIFIC TIME) 8:30 PM EASTERN

(Monday, March 28th, 2022)

If you get a chance to tune in that would be…

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Added by Cheryl, Co-founder on March 28, 2022 at 7:30pm — 1 Comment

12-Year Old Rio Allred Dies by Suicide after being bullied about her Alopecia

This is tragic, but I think it is important that we all share this story.  What can we do individually or as a community to help our brothers and sisters?

"Candlelight vigil for 12-year-old North Side Middle School student"

"Nicole Ball claims her daughter was bullied…

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Added by Cheryl, Co-founder on March 22, 2022 at 5:00pm — 7 Comments

12 Celebrities Who Have Spoken Openly About Hair Loss

"Losing your hair can be pretty devastating, and if it's an experience that you know all too well, you’re not alone. Hairloss is more common than you think, and it doesn’t discriminate or target specific people"

"Even some of the celebrities you know and love have experienced it, and thankfully for…

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Added by Cheryl, Co-founder on March 17, 2022 at 9:42pm — 1 Comment

STUDY: Identification of stigmatization and psychosocial stress in people with Alopecia areata or androgenetic Alopecia

                                                               ------------------------------------

Participate in a study to understand well-being and experiences of stigma among adults dealing with hair loss.  This is an anonymous,…

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Added by Cheryl, Co-founder on May 24, 2021 at 10:41pm — No Comments

"Change is hard at first, messy in the middle, and gorgeous at the end"

Did you know that we are not only the owner of AlopeciaWorld.com, but we are also photographers?

I met Michelle online and immediately connected with her.  This session started as a boudoir shoot and ended as a self-journey.  It was very touching and real as the photographs reveal a story of entering into self-acceptance.

Michelle wrote:

"Change is hard at first, messy in the middle, and gorgeous at the end.   Four years…

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Added by Cheryl, Co-founder on May 24, 2021 at 9:31pm — No Comments

Happy International Alopecia Day!

BE PROUD AND BE VISIBLE by flooding social media

with your International Alopecia Day photos and greetings!

 

IAD is a way to raise public awareness, AND to…

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Added by Cheryl, Co-founder on July 29, 2020 at 1:30pm — No Comments

International Alopecia Day 2020!

SATURDAY, AUGUST 1 will be the 11th annual International Alopecia Day (IAD) - the day to celebrate worldwide who we are.

This year, due to the pandemic, International Alopecia Day organizers request that we all will need to follow CDC and your local health department guidelines about social distancing and safety.

But, even if you can't have the…

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Added by Cheryl, Co-founder on July 13, 2020 at 10:00pm — No Comments

12 Honest Questions About Alopecia Featuring My Mom!

Parenting has difficult moments. When a child is diagnosed with alopecia, the whole family is swept up into a whirlwind of change. There are doctor appointments, questions, treatments, and you are just looking to assure your child will live a happy life in a world that can be very cruel. Through honest conversations, we are…

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Added by Gabe on May 14, 2020 at 9:36pm — No Comments

Alopecia and Covid-19 (Coronavirus)

A few people have asked about the new Coronavirus (Covid-19) and if we are at more risk because we have alopecia.  I did a search and found this:



Alopecia UK asked two alopecia experts, Dr Matthew Harries and Professor Andrew Messenger for their thoughts:



“Alopecia Areata itself does not compromise the…

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Added by Cheryl, Co-founder on April 7, 2020 at 4:30pm — No Comments

Looking for photos to promote alopecia awareness on our Instagram page!

Every day we look at the photos on Alopecia World and they are truly beautiful and, honestly, deserve to be shared.

Therefore, we are looking for photos that we can share on Alopecia World's Instagram Page.

If you have a cool photo that we can use, please post it here with your IG handle so that we can link it back to your account.…

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Added by Cheryl, Co-founder on February 21, 2020 at 2:30pm — 12 Comments

Sports Illustrated model with alopecia pulls off her wig on the runway

We weren't born believing hair makes you pretty, but society has lead us to believe that.

In an empowering move, she took off her wig on the runway.

"Taking my wig off in front of hundreds of people will be a moment I tell my kids about someday!”  Christie Valdiserri told Sports Illustrated. “I was so nervous backstage leading up to the moment but knew in my heart I had to do it. I had to do it for myself, for all the tears I've cried about this…

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Added by Alopecia World on February 8, 2020 at 11:00pm — 2 Comments

Women with alopecia pose in stunning photo series to show that bald is beautiful

"Models removed their wigs to embrace their hairlessness to pose in a photoshoot which raises awareness of the condition."

Excerpts from an article on Metro.co.uk:

"Photographer Chrissy Sparks, 35, from Birmingham, has photographed thousands of women, of all shapes and sizes, since opening…

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Added by Cheryl, Co-founder on December 30, 2019 at 9:30pm — 4 Comments

"I didn’t know it was OK not to completely fit in."

I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.

"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…

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Added by Cheryl, Co-founder on September 19, 2019 at 11:00pm — No Comments

A Wisdom Story - The Three Hairs

I love this story so I thought I would share it!!

A Wisdom Story - The Three Hairs

There once was a woman who woke up one morning, looked in the mirror, and noticed she had only three hairs on her head. "Well," she said, "I think I'll braid my hair today." So she did and she had a wonderful day.

The next day she woke up, looked in…

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Added by PrincessElla on April 2, 2019 at 3:18pm — 1 Comment

Ella The Enchanted Princess Who Are You? book helps Maci Huffstetler Through Losing Her Hair

Alopecia is an autoimmune disease that affects hair growth on the scalp and entire body which results in minor or complete hair loss with slim chances of regrowth, for which there is no cure. For children especially, it is easy to imagine the detrimental psychological effects losing hair can have on self-esteem and…

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Added by PrincessElla on April 2, 2019 at 3:11pm — No Comments

Scholarship Opportunity!

The 'This Is Me Foundation' is offering up to four $500 scholarships to graduating high school seniors in the United States who have/had alopecia and are pursuing advance level education.  Apply directly or download an application by clicking here -> http://www.thisismefoundation.com/national-scholarship/ ;

Email us at info@thisismefoundation.com with any questions!

Added by This Is Me Foundation on January 29, 2019 at 2:03pm — 2 Comments

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