So I was spacing the other day, and I was really depressed. I was just thinking about my past, when I was younger, when I lost my hair, all the drama I've been through, etc. Then I came to think, "Why am I constantly always thinking about the past?" Well, the past never goes away, it's always in the back of our minds somewhere. Lurking, waiting, haunting, for a right moment to come forward and remind us the things we want to forget. It sucks sometimes. Then I thought, "There is no way to…Continue
I just think it's funny that Alopecia comes up as misspelled every time I type it on the Alopecia World website...I'm constantly rechecking to make sure I've spelled it correctly....and alas....correct indeed.
Spent a good part of yesterday telling a few trusted friends and family members what’s going on with my hair and what I’m planning to do. I already knew I’d be able to rally up a nice circle of support. The challenge now is just doing the deed. This is when the fear and apprehension comes in. One of my friends offered to do it for me. Not sure if I want her to do so, just be there for support, or just do it alone.
I also spent a good part of the evening reading about others’ journeys.…Continue
Following the success of the recent BBC Documentary My Life Without hair the BBC have contacted BeBold with an interest in producing a full length documentary about adults living with alopecia, a target audience 18-30.
In order to get this commissioned we are currently looking for about three individuals in the above age range who would like to take part.
For this to work we are looking for individuals with a really interesting story to tell. This will be a fantastic chance for…Continue
Mattel to Introduce Bald Friend of Barbie
It's official! Mattel announced March 28 it will make a
doll for children experiencing hair loss, a quantity which will be
donated to the National Alopecia Areata Foundation, as well as to
children's hospitals through the California Hospitals
Association and CureSearch across the country. The Southern
California toy giant describes the upcoming doll as a "friend of
Barbie," and is expected to come with wigs, hats,…
So, I log into Facebook and see that a high school acquaintance has updated her profile picture. She’s bald and beautiful! She goes on to explain that she has Alopecia and has finally decided to cut her hair and embrace her condition. I found this so courageous and inspirational!
I have Alopecia and Hashimoto’s Disease which causes me to lose my hair. It eventually grows back but over the past three years the growth has been thinner and thinner. I thought about shaving my head back in…Continue
Added by sks on March 29, 2012 at 3:20pm — No Comments
"Hurry she is coming i dare you to!"
"Bodly boldy boldy blody"
I walk past and pretend i cant hear them but inside i want to fall onto the ground and just cry my eyes out.
Why, why dare someone to do that, im just like you i have feelings emotions and a heart that beats everyday to keep me alive, but everytime i hear that my beating heart stops and my confidence goes down and my feeling and emotions go up. It not fair to treat people…Continue
My short film Beauty Queen premieres tonight at the DIA. I would love to see you there!
Added by Kelci on March 29, 2012 at 8:36am — No Comments
this is the story I sent to Women Behaving Baldly. While writing it and be transported back to that day was difficult but I decided to share it here that maybe by chance you might find it inspiring or relate able.
The day that I shaved my head is still a fresh memory, even though its been 19 months (September 3, 2010). It wasn’t a day I planned to shave my head, in fact I woke that morning with the resound thought that I most definitely was not going to shave my head.
It's been awhile since I've been on here...I have been growing my hair back since Feb 2011 and finally am just below chin length. It's kind of crazy that I'm not surprised when I look in the mirror anymore (it was quite the transition when I first put away my wig and attempted a pixie cut).
I guess I'm just scared-
I'm afraid to change anything- my diet, my shampoo, medications...anything that could cause a relapse.
I'm so spoiled with my hair now, but…Continue
I just want to share the story of my son, who was 5 years old when he was diagnosed with alopecia. I first noticed a spot on the top of his head about the size of a nickel. I made an appointment with his developmental pediatrician in Vancouver, Washington, to find out what the issue was. At the appointment, I was referred to a pediatric dermatologist who specializes in alopecia patients that are young children. When I went to her, she said that the dianosis was alopecia, and by this time, my…Continue
Has anyone heard anything about this project?
There are several YouTubes about the making of it at Michigan State University. Here's one that shows one of the screenwriters who is apparently a woman with AA:
I was diagnosed with Alopecia about a month ago. I noticed a small spot when on the left side of my head when my hair was up. With further investigation many more spots were found.
When the spots were discovered, I was concerned and went immediately to a clinic where I was told it was not a serious medical issue, simply (yup simply) a cosmetic one. Of course upon hearing that there was no serious medical issue I, along with my family, were relieved but the more I thought about it the…Continue
Getting ready to move to Dallas Texas and out of the 2 emotions there truly are love and fear. And I am scared out of my wits about entering back into my old stomping ground where I grew up and lost my hair and is a big city. I feel all of my defenses coming up, protection mode ie: fight mode. Anxiety. Rapid heart. Also just about three weeks ago quit my antidepressents too which was a good thing for me. I will be moving in one week. Feeling like I need to bend over and breathe into a brown…Continue
For those in UK, I am just watching ‘The Voice’ a tv program about talent singing, judged only on their voice (judges have their backs to the stage and only if they choose them to go through do they turn around)… a lady has alopecia has just bravely walked on stage proud as anything and overcome so much, it made me cry…
First time I have ever cried watching one of these shows, I felt her so much. Bless her and good luck to her and it shows that how people judge so much on looks and that…
It's a warm day today and my wig covered head is feeling warm and somewhat sweaty. ;) sorry for bluntness. Anyhow I was sat in the pub thinking boy I feel warm and nearly wipped off my wig to cool down as I'd normal at home before I realised where I was and it made me smile thinking I wonder how people will react if I did. The guys on a near by table verious people around... I was almost tempted to see lol but I'm not that brave yet.
So it's been a while since I've been here. My old spots were growing back and hair loss seemed to slow down. Life was nice.
Yesterday my husband (he's a Marine) deployed overseas for 7+ months. I thought I was taking it nicely, I got my crying out and done yesterday, and today I woke up with a positive attitude, but sure enough life just waits till I'm down to kick me a bit lower. I put my hair up to get some cleaning done around the house and bammm! there it is a biggo bald spot in…
It's not too late... the angel said.
Even though the world's a mess...
Even though you're not as young...
Even though you've made mistakes and have been afraid
It's not too late...
And then I saw the world through the angels' eyes...
I saw the colors I could paint
The bridges I could build
The lives that I could touch
The dreams that could still come true
And it became very clear to me...
That it's not too late.
It has been almost 2 months now and I have had so much hair loss that I shaved it all off last night.I thougt I was fine with it but once I started that first pass through my hair with the clippers ,I did get a little emotional.I quickly recovered and knew I was doing the right thing!
For the most part I have been handeling my hair loss pretty well, although I do still have my good and bad days. I still do the why me.I even get up in the morning and look at my wig and think "I hate…Continue
"BE GOOD TO YOURSELF. There are some things everyone deserves- love, respect, time to recharge. Never settle for less. SEEK OUT YOUR DREAMS. Start small. Take it as it comes. Even a butterfly has to inch along before getting its wings. LISTEN TO YOUR HEART. Trust your gut. If the way seems unclear, look within you. LET YOUR VOICE BE HEARD. You have a story to tell and opinions that count, and a difference to make. STAY CURIOUS. Wonder. Take every opportunity to learn. Knowledge is a gift, it…Continue
Added by Rodolfo (Simone's Dad) on March 20, 2012 at 12:30pm — No Comments