May 2009 Blog Posts (109)

Wig help please

So im 16 years old and i finally decided that i want a wig. Im having trouble finding a place to get one. Can some one give me some advice were to getr one. I have a wig already but i didnt really get to pick it out. my mom and the wig lady basically picked it out and ignored what i said on it. I really dont like that wig either.

Added by lauren on May 31, 2009 at 9:30pm — 4 Comments


Hi :)

This past week I have come to realize;


b. Yes, my hair (Or lack of rather) looks odd


It has taken me a very long time to say that. when I was 6-10 all I wanted to do was keep my hair, then it fell out. 10-16 I just wanted to fit in with a natural looking wig and have no questions asked, it didn't work. 16 upto now I've kind of been a in a bit of a void, not really sure if I was comfortable… Continue

Added by Lizzie on May 31, 2009 at 6:41pm — 3 Comments


This is really hard for me to go thru without my husband to hold me hand. See he was turned into immigration and deported 5 months ago. I didnt start losing my hair until about 3 weeks ago. I still see him everyday on webcam and i can hear his voice thru conference call. But its not the same, I cant touch him, he cant hold me the way I need him to. He cant kiss me on my head and tell me that everything is going to be alright. All I want now is to sleep and only wake up when my passports get… Continue

Added by Kristen Viveros on May 31, 2009 at 10:08am — 2 Comments

do people just like to make you feel insecure or something?

some of my friends have asked me why dont u have eyebrows or eye lashes and my friend one time was like if you have eyebrows that you cant see put your hand in and she was like Rachel? people are just so rude sometimes! they just dont realize how hard it is to live like this! i dont have any friends with alopecia so no one understands sometime i just feel like im alone and have no one to go to!... i just want to fit in a be able to do whatever i want to my hair whenever i want to without having… Continue

Added by Rachel Taylor on May 30, 2009 at 9:12pm — 2 Comments

I am loosing my eyebrows!

I am totally freaking out now. I just noticed this morning that my eyebrows are falling out! i knew it would come to this but its happening so fast. I have been crying all day.

Added by Kristen Viveros on May 30, 2009 at 4:31pm — 15 Comments


Wow, I am feeling great! I just got back from participating in a Cops for Cancer event and yep... I have shaved my head. Well, it's a very close buzz, not razored. And I love it! It feels great to have shed that ugly, thin, flat, good-for-nothing bio hair. :)

Added by Tawny on May 30, 2009 at 4:28pm — 3 Comments

need answers!!

well ive now had hairloss for about 7wks now, and i would like to know if any1 has had problems with there scalp and head while losin there hair,
i have suffered pains in my head on both sides, and also had some headaches, my head is itchy and im still quite tired, has any1 else suffered these or different side affects of hairloss, will be grateful of any comments, thanks,

Added by lynne on May 30, 2009 at 4:11pm — 10 Comments

holy crap

wow it's been forever since i've been on here. sorry. well there's no way in hell i could describe what happened with tommy because it's kinda pathetic and im still hurting over it. to make a long story short, we started drifting and with each passing day of silence my depression deepened. we're not friends anymore, i haven't talked to him since his birthday when i said "happy birthday" and that was april 2nd. i really got depressed, not even kidding. i got into some stuff that i shouldn't have… Continue

Added by Courtney on May 29, 2009 at 1:48am — 1 Comment

The Greatest Love of All

I have been listening to alot of Whitney Houston lately, mainly because I feel like I wanted to sing on top of my lungs and Whitney Houston songs are quite fun to sing along to don't you think? haha

I came across the song "Greatest Love of All" and I am sure all of you must have heard of it. It is a classic. When I was young I used to sing it on Karaoke (yes, we asians love our karaoke!) Before you get any ideas, no I can't sing to save my life but it feels good to burst out in song… Continue

Added by Salmezan on May 28, 2009 at 6:42pm — 2 Comments

my life is good

i have been going through a lot these days and until today i thought this was the worst thing that could happen to me but i was wrong i could have cancer or have some1 close to me die and have my house burn down and stuff like that and now i feel pretty lucky just to have aa

not much happened 2day i have finals tomorrow and i am sooooooooooooo happy i only have 4 days until schools over

Added by Nikki Mans on May 28, 2009 at 6:03pm — 1 Comment

Adding graphics to your page.. anyone know the code or how?

Trying to figure out how to add images to my page/layout?

Added by Kami M. on May 28, 2009 at 8:00am — No Comments

New Pictures Added

Hi Everyone,

It's been a busy couple weeks and I haven't been on AW in a while. But I thought I'd share a few pictures of the "new me" wearing my wig. We visited some friends this weekend whom we haven't seen since before my daughter was born and they didn't even notice anything different. (of course he's a guy, with sons, LOL)

But I got through the weekend being outdoors quite a bit and even did some canoeing. I am SO happy with my wig, but now I am getting excited,… Continue

Added by Tawny on May 27, 2009 at 10:36pm — 2 Comments


i no i just wrote a blog but since then a lot happened!! so if u read my other blogs u would now i ordered 1 wig the lady you ordered me the wig was nice and gave it to us for$175 instead for the usually price of$300!!! and to help us out more she said our insurance should pay for most of cost but to make sure my mom called them tonight to make sure they would but they said they wouldntbecause it ISNT AN ILLNESS!!!!! ok so bye now i was really mad but then my mom asked about cancer patients and… Continue

Added by Nikki Mans on May 27, 2009 at 5:43pm — No Comments

i love this site!!!

i joined this site a few days ago and im already feeling more confident about myself!! i walk to school not caring about all the mean comments people will say to me. everyone here is so understanding and bff, nicole, tries to help me but she just doesnt understand what i am going through(not that she doesnt give good advice or anything) and special thanks to mary!! i will be on this site almost everyday but not this weekand cause i am going camping(: with nicole. THANK YOU

Added by Nikki Mans on May 27, 2009 at 5:19pm — No Comments

A moment to be proud of!

A few days ago I met up with Margaret, a fellow alopecian who lives in the same area as me. I am originally from Brunei, a small country on Borneo Island, South-East Asia. For those of you who don't know where that is, well it is near Singapore and Malaysia :) I have been diagnosed with Alopecia Universallis since I was 9 months old. My parents took me to see numerous specialists over the years but nothing could be done. However I did start to grow hair at the age of 4, patchy ones at first,… Continue

Added by Salmezan on May 27, 2009 at 1:18pm — 2 Comments

Scientists identify gene that may explain hair loss

I just came across this Reuters article and had to share it. I believe this could be the start of something truly wonderful.

Scientists identify gene that may explain hair loss

Tue May 26, 2009 2:39am IST

HONG KONG (Reuters) - Researchers in Japan have identified a gene that appears to determine cyclical hair loss in mice and believe it may also be responsible for hair loss, or alopecia, in people.

In a report published in the Proceedings of the… Continue

Added by Sue F on May 27, 2009 at 1:30am — No Comments

coincidence or not?????

I am a 57 year old bald hairdresser. I recently have come "out of the closet" with my disorder. I have been fortunate enought to find a collection of realistic wigs and to master the art of glueing and painting on my facial hair. I can't say that i am thrilled about having no hair, but i have always tried to find the bright side to a bad situation, so you could say that i am coping.

Today, I totally by chance came upon 2 new clients who both were suffering the affects directly and… Continue

Added by brenda kay on May 26, 2009 at 10:20pm — No Comments

My Story Part 4

I contemplated adding this 4 part to my story, but what the heck, I’m not usually one to hold back. I worked as a paraprofessional/secretary for 7 years for an Alternative Education, students 14-20 who had dropped out of school, and been kicked out of the traditional school. The school was like a close family, about 40 students and 4 co-workers. At the end of 2007, the director notified me my position was being eliminated. Having known a Secretary position was going to be put in place, I made… Continue

Added by Kami M. on May 26, 2009 at 8:51pm — 2 Comments


this is so hilarious!!!! so 4 u 2 get this story i need 2 tell u that ive been wearing a bandana 2 school (im in the seventh grade ) for a week now and everyone new something was up cuz usually were not aloud 2 wear 1 but my mom talked 2 the principal and he let me wear 1 and and thought everyone knew about my alopecia or at least that i was loosing hair but today i girl came up to me and asked if i was in a gang?!? i said of course not and asked her why she thought i was in one and she replied… Continue

Added by Nikki Mans on May 26, 2009 at 8:24pm — No Comments

newspaper interview

Ivonna, another alopecian, and myself were interviewed and photographed by our local newspaper and the article was in today's daily paper. I was very impressed by the size of the article which took up 1/3 of the two pages. We even looked good in the photos - we kept our wigs on but showed a before alopecia photo as well as our present ones. Hopefully it will get some awareness out there. Just this morning I showed the article to a woman at a local coffee shop and she told me her husband had aa… Continue

Added by Pat on May 26, 2009 at 12:36am — 3 Comments

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