September 2011 Blog Posts (77)

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My new job!

Hello All, It's been a while since I have logged into Alopecia World. Alot of great things have been happening in my life but the one thing that I want to talk about is my new job!! Yea me!! I started a new job about two weeks ago and struggled with the thought of returning to "Corporate America" without hair. I prayed about it and thought to myself, if not me then who. Well I'm very pleased to say that it has been an unbelievable experience. For those of you who can't imagine going to work… Continue

Added by Joye Pressley on September 15, 2011 at 11:30pm — 4 Comments

Found confidence again with great topper from Revlon

http://www.acewigs.com/shop/wigs/Revlon_Wigs/31540.php





I have lost 50 percent of my hair and have spent over 2,000 dollars on wigs and hats. I found an inexpensive topper(150) from Revlon that looks great and is so natural. It is human hair and snaps on. I do not have a lot of hair so only 2 of the snaps work. I secure it with small bobby pins underneath. I have even styled it on. You… Continue

Added by Wendy on September 15, 2011 at 11:03pm — No Comments

Why is my hair white?

Hi everyone,
Just wondering if anyone else deals with all the new hair growth coming in white and why? No I'm not that old either. I have a lot that always grows back, but I always shave it right away so my wig will fit right, but if I didn't will it eventually turn to the brunette I was? I don't know if I would have the patience to find out, so basically I'm just curious if anyone else has had this and what happened.
Thank you already to any input you may have.

Added by Hope on September 15, 2011 at 8:30pm — 3 Comments

Luck with Biotin?

So I don't know if this is just a coincidence or not, but I read on here about someone taking biotin, so I did some research on it and I've been taking it for a little over a month now. I dont want to get my hopes up, but I currently have ZERO bald spots and my thick hair is growing in! Also my nails stopped peeling and breaking once they got some length to them. Has anyone else had luck with Biotin? I'm definitely making sure I take it every morning and just hoping for the best! I posted a… Continue

Added by Tamara on September 15, 2011 at 2:00pm — 4 Comments

Things are going great. : )

Hey! How is everyone doing? Sorry I haven't been on here in a while. I'm going to try to get on here more! I had a great summer! I had a wonderful birthday and I made some new friends. : ) Life has been pretty great so far. My hair is still growing . I hardly have any bald spots and I am so thankful for the hair growth! I am very blessed. I wear my wig most of the time but it's getting hard to wear it now. I don't feel comfortable enough to go out in public without a bandana. I just wish my… Continue

Added by Mackenzie on September 14, 2011 at 11:00pm — 4 Comments

The life of a closeted alopecian

Dear all,



As dumb as this may sound, I wonder if I will ever get up the nerve to change my facebook picture. To backtrack, I am now on day twelve my new "pixie cut" post wig hairstyle with two 1.5 bald spots, one above my left ear and one on the ride side of my lower neck area. Thankfully I have a great hairstylist who styled it so that you can't tell, I am extremely thankful for her :)



To use my facebook picture simply as a symbol of my current mental state (and to… Continue

Added by Jennifer on September 14, 2011 at 9:00pm — 5 Comments

Link between alopecia and cancer?

i have had alopecia since i was 15 and i am now 23. i also got diagnosed with thyroid cancer 6 weeks ago. does anyone think there may be a connection between the both? has anyone else with alopecia been diagnosed with thyroid cancer?

Added by Nadia Lionetti on September 14, 2011 at 4:30pm — No Comments

International Alopecia Day 2011 video slide show

Here's the 2011 International Alopecia Day video slide show:

http://www.alopeciaworld.com/video/international-alopecia-day-2011



This is a revised version to add a couple of photos.



Thank you to all the participants who sent me photos and participated this year! Please join the International Alopecia Day… Continue

Added by Mary on September 14, 2011 at 1:30pm — No Comments

"Your new Miss America might be beautiful — and bald" Great news article

By Lisa Marsh

TODAY.com contributor

updated 1/11/2011 2:30:09 PM ET





Beauty pageants evoke images of flawless women in amazing shape, perfectly made-up and coifed, right?



Yet one beauty queen vying for the Miss America title in Las Vegas this Saturday night has barely any hair on her head.



Kayla Martell, Miss Delaware, has been bald for half of her 22 years — she has alopecia areata, a rare condition that results in unexplained hair loss. But… Continue

Added by Jennifer on September 14, 2011 at 11:42am — No Comments

Anyone from Hungary?

Anyone from Hungary?

Added by Andrea Pári on September 13, 2011 at 6:00am — No Comments

The inquiring mind of a three year old

My three year old grandson really wants to understand why his grandma doesn't have any hair, or more specifically why my hair doesn't grow. Keep in mind that he's only had about a week to wrap his mind around his grandma being completely bald. So today while watching him at my house he started in with wanting to know all about lobsters so we googled lobsters and we looked at photos, videos and information about lobsters and then it occurred to me....I could answer all his questions about my… Continue

Added by Rose on September 12, 2011 at 11:00pm — No Comments

Update on me...

Wore a Chantel wig from PY for my niece Michele's wedding. pic just got put on FB. I just don't wanna have to be explained in pics years down the road...it was a little hot but...i did not want to stand out. I hope I am being true to myself and not hiding behind a wig like it is a mask.

Added by Laura Adams on September 12, 2011 at 10:03pm — No Comments

Hairspray (Love it! Hate it!)

Hope everyone is doing well! Another question to my alopecia friends: ...well some background, blah, blah, blah...and then my question...



I have come to learn that hairspray and wigs don't really mix. I have a gorgoes human hair wig that looks great after washed for only a few days because I feel the need to load it to the max with hairspray. I don't know if I find myself doing this out of habit from when I used to style my own hair or from fear that it will lose its' shape and… Continue

Added by Beverly on September 12, 2011 at 4:00pm — No Comments

What to do with your hair dryer (besides throw it away)!

I just saw this news item about unusual uses for blow dryers. Mine has been in a bag in the closet (along with my curling iron) since I lost my hair almost 4 years ago.

http://shine.yahoo.com/event/green/15-unusual-uses-for-your-hair-dryer-2539148/

Who knew?

Added by Mary on September 12, 2011 at 2:24pm — 8 Comments

Going to university

I am starting university this year and living away from home and my parents for the first time in my life. Although excited by this prospect I am also incredibly nervous. I have had AA for over 8 years but this past year it has got a lot worse and I have lost 75% of my hair which has forced me to start wearing a wig. I am naturally quite a shy person, but this year my confidence has been hit hard. I'm worried about making new friends at uni and scared about what will happen when I tell them… Continue

Added by Amy on September 12, 2011 at 9:19am — 6 Comments

Why?

I have had au for abt 7 years know....I would like to say I'm ok with it but I am not...its allot to deal...on the positive side. I have a great family that supports me...well today my world came crashing down on me ....I noticed a spot on my daughters head...is it possible to feel like a ton of bricks came down on me and to also feel numb .....I don't know excatly what it is...a small spot where there is tiny hair growing but enough hair is missing I am taking her to the doctor ....I feel like… Continue

Added by maryc on September 11, 2011 at 8:00pm — 7 Comments

Baaack

still hate alopecia and its life stealing ways.



this time I'm applying topical steroids for at least 3+ months. Why? Because now that I think about it I've only really continued on with a cream for about 1.5 max and I did respond to oral steroids giving almost 100% growth and steroid injections always sprout out hairs again after about a month or so after the injection has been administered.



I have also taken up lifting weights, I'm focusing on the things I can change… Continue

Added by Nick on September 11, 2011 at 5:00am — 6 Comments

Envious

Before I finally gave up the fight and shaved my head (sweet surrender by the way) I would find myself envious of girls/women who could put their hair in a ponytail or simply just "throw it up outta the way", however now with my newly shaved head I've found a whole new fixation with girls/women that love their wigs or hairpieces. Why can't i be like them i ask myself. To appease my daughter and to feed my curiosity I went wig shopping and found myself shaking my bald head no to every wig they… Continue

Added by Rose on September 10, 2011 at 1:00am — 3 Comments

WCAU NBC 10! Show - Speaking About Alopecia Awareness and Upcoming Event!

Here is the video to the interview I did on the NBC 10! Show with the head of Children's Alopecia Project, Jeff Woytovich and his daughter Madison. I commend NBC 10! for having us on and helping me spread awareness by highlighting the upcoming Musicians for Children's Alopecia Project Benefit Concert.

Click HERE to see the video!

Thank you!

Lili

Added by Lili Añel (aka Eulalia) on September 9, 2011 at 10:30pm — 4 Comments

I need to get something off my chest

Hey yall.. Well it has been a while since i have "blogged" but i feel like i need to get something of my chest.. First off! YOUR HAIR IS NOTT WHAT MAKES YOU BEAUTIFUL! people kill me when they wake up 2 hours early to fix their hair! lol when people ask me why i dont have hair i say of course lol i have alopecia. people like to reply aww im sorry then i laugh and im like sorry for what? they say for you not having hair . no me not having hair is not a sorrowful thing it is a BLESSING ! god made… Continue

Added by Bre Cobb on September 9, 2011 at 2:00pm — 4 Comments

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