Featured Blog Posts – October 2009 Archive (41)

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Kenalog shots and blindness?!

Hey all! I was wondering if anyone has experienced any negative eye issues/blindness with receiving the Kenalog shots in the scalp? I have heard that some people have become blind for these shots in the scalp!! I got some more shots this Monday and my eyes feel like they are burning a little bit but otherwise they are ok. Please give me any feedback if you know someone that has experienced eye issues or not! If you have not had any eye issues with the shots, let me know as well!… Continue

Added by Melissa Harris on October 14, 2009 at 2:09pm — 2 Comments

Any suggestions about starting a support group?

I am thinking of starting an Alopecia support group in my area. Does anyone have any suggestions as to how to go about starting one? What materials do I need for the first meeting? How long should the meetings be? Any suggestions would be helpful. Thanks.

Added by Sharon Loden on October 14, 2009 at 9:59am — 3 Comments

Anyone else experiencing technical problems on this website?

Is anyone else experiencing this problem: I go to read a blog or someone's comment on my profile and it kicks me back to the AW home page. Is it me or is this happening to anyone else?

Added by Kelly on October 13, 2009 at 8:06pm — 9 Comments

Pharmacy Drive-Thru

I pulled up to the pharmacy drive-thru and the clerk asked for my name. She came back and forth to the window getting various information. After all the formalities she said, "you know, there's not a lot of women who can pull that off."

People look at you once, then twice, and most likely a third time before going about their business. But I'm very thankful for the few that stop and take a moment to make me smile.

Added by Jill on October 13, 2009 at 6:40pm — 4 Comments

Hair after pregnancy! Was that my cure?

Hey everybody,



My daughter is now 3 months old. My hair started to regrow when I was about 24 weeks pregnant and now I have enough hair on my head to almost go without a wig. It'S still quiiet short, like a guys haircut but it'S growing really fast!



My body hair is growing, too and I had to shave my legs for the first time (in ages) a week ago. My eyebrows and eyelashes are there, too!!



I'm hoping so much that my hair is not going to fall out again after… Continue

Added by Zoe on October 13, 2009 at 3:37pm — 4 Comments

Alopeciapalooza 2010

Hey everyone!



Alopeciapalooza 2009 was held in Philadelphia and was attended by 52 families with 65 alopecians making our first convention a huge success! A little over 200 people building self-esteem, providing support and raising awareness in the City of Brotherly Love!



We have done a lot of work in finding the next host city of Alopeciapalooza and have norrowed it down to Baltimore and Chicago. Both are great cities with much to offer but only one can be the host city.… Continue

Added by Children's Alopecia Project on October 11, 2009 at 9:51pm — No Comments

Bald! A Hairless Musical! <3

Hello all.... i must tell you all first that I am feeling much better, that bit of depression has past, and I am so thankful :)

Yesterday was a very special day for me and for all my friends with Alopecia!!! I went up to LA to meet Carl Carlyle, playwright, writer of "Bald: The Hairless Musical" He needed actors for his promotional video to show the investors, you know, the people who pay to put the play on, and I was lucky enough to be able to partake.... The score was so catchy!!! The… Continue

Added by Lindsay on October 11, 2009 at 2:23pm — 8 Comments

What I think about you!

I can't help it. I just love this amazing support community and the invaluable contributions that so many of you make to it. Not only do I appreciate each and every one of you, but I truly admire you as well. Your compassion, your courage, your resiliency, and your determination inspire me in more ways than I can count or chronicle. I will always be profoundly grateful, not only for what you've made Alopecia World, but even more so for what you're making of yourself. :-)

Added by rj, Co-founder on October 10, 2009 at 8:30pm — 24 Comments

Lovely Lovely Fuzz!

I will definitely have to upload some new photos, if only to show off my new head fuzz! I can't believe I'm this excited about a bit of stubble but what the hey! It's coming back thick and black! Even though I was a natural blonde! Weird! shame that its not everywhere, darn AA!!! But never mind, still bald (ish) and proud :)

Take Care, Liz x

Added by Lizzie on October 10, 2009 at 6:01pm — 3 Comments

Hair regrowth! What should I do?

OKAY SO THIS IS KIND OF WEIRD FOR ME...VERY WEIRD FOR ME. ABOUT 2 TO 3 MONTHS AGO I NOTICED THAT I HAD SCATTERED PATCHES OF HAIR ON MY SCALP GROWING, AS WELL AS MY EYEBROWS AND EYELASHES WERE GROWING BACK. NOW I HAVEN'T HAD A STRAND OF HAIR ON MY HEAD FOR ABOUT 2 1/2 -3 YEARS. SO WHEN I FELT THE FINE PIECES OF HAIR ON MY HEAD I FELT WEIRD. I DONT WANT TO GET EXCITED BECAUSE THE DOCTORS HAVE ALL FORWARNED ME THAT IF I EXPERIENCED REGROWTH AND MY HAIR GREW COMPLETELY BACK ITS A VERY HIGH CHANCE… Continue

Added by Montoya Grant on October 9, 2009 at 12:49pm — 6 Comments

Anyone tried Latisse yet?

I have a friend that thinks it works and today at the massage therapist she noticed I had 4 lashes and suggested that I try it. She said a client of hers has been using it on her "normal" lashes and now doesn't even use mascara! She sounded so postivie I'm thinking of trying it, but want to hear if anyone has any thoughts, comments, etc.

Thanks

Added by Leah Larson on October 8, 2009 at 10:25pm — 8 Comments

Hopeless

So this is my first blog on here. I A friend suggested I blog to get out these feelings of helplessness. So here goes.



At the end of June this year, I discovered a small quarter sized bald spot on the back right side of my head. ( A coworker pointed it out.) I ran to my computer and took a picture of it since it's in the back and I can't see it. Naturally, I freaked out. I called a hair replacement specialist, who was kind enough to see me on a free consultation. He took one look and… Continue

Added by Ernesto on October 8, 2009 at 3:52pm — 17 Comments

Alopecia Areata magazine "Hoofdzaak" from the Netherlands

AW member Inez edits a beautiful magazine about alopecia areata, and she asked to use my blog post "Coming Out Bald at the Synagogue - What the Bible Says About Baldness", and some photos. I just received a copy of the magazine, and it's beautiful - full of articles and photos about alopecia and alopecians. I sure wish I read Dutch, though. We need a magazine like this in the US! There is also a photo of AW member Karina Louise in this issue. See photos on my page. Thanks, Inez - great work!

Added by Mary on October 7, 2009 at 6:55pm — 8 Comments

More about my life outside Alopecia World. :)

Alopecia doesnt really bother me now that i have my new Freedom wig but aswell as that i have had family and friends help me to be stronger and to get through and solve my problems when they occur.



So as normal i carry on with my day to day life and go swimming if i want, play sports with friends and alot more aswell.



My intrests are:

Netball, swimming, beach, shopping, dancing, music, movies, friends, playing boardgames, playing with pets and much, much… Continue

Added by olivia on October 7, 2009 at 12:23am — 2 Comments

My Decision

Growning up with Alopecia was not easy for me or my family. I used to sit on the end of my grandmother's bed and cry to her because I was afraid that my baldspots would progress from the size of quarters to cover my whole head. I was given the response many times over that my hair would grow back and that I shouldn't be crying. At fouteen my older brother cried as he cut what little hair was left off of my head as I clutched my stuffed cat Mystery with silent tears sliding down my face. Some… Continue

Added by Natasha Gehrke on October 4, 2009 at 9:49pm — No Comments

Finally, I'm free

I finally went and bought a wig and shaved what was left.I can't believe how free I feel.I was dreading it and then when it came off I couldn't believe how good I feel. I feel like this is a new chapter in my life and I don't care who looks and what they think. You have all helped me make this choice ,when I look at the pics I can only see the beauty in your faces .Thank you for posting and I will definatly be involved next july . We should try and do something in the melbourne /orlando… Continue

Added by linda carraway on October 3, 2009 at 3:40pm — 6 Comments

A couple of funny/creative halloween costume ideas for us baldies!

Now I know most of these are more guy-friendly, but if you're a girl it's even funnier to dress up as a guy! With Halloween, anything goes!





Mr. Clean

Jim Carrey's character 'Fire Marshall Bill' from In Living Color

A member of the Blue Man Group

Stewie Griffin

Dr. Evil

Uncle Fester

An Egyptian queen... (they were usually bald)

A Conehead

Elmer Fudd

The Monopoly Guy

An egg

Homer Simpson

A T-ball on the stand

Any… Continue

Added by Jessica Ashley Richardson on October 1, 2009 at 5:03pm — 10 Comments

Hey that girl is...

BALD! I get so tickled when a little kid points out to their mom or dad that I am bald. The look of terror on the parent's face, the intense stare of the child, and a little smile from me make a great moment. I could probably count at least 15 times in the past month that a child has pointed out my baldness. These kids have truly lightened my soul and slowed me down in such a fast paced world. We often ignore things that need to be seen around us, but a lot can be learned from a child's… Continue

Added by Jill on October 1, 2009 at 12:00pm — 5 Comments

A realisation

Hi all,

I just came to the realisation that being bald means nothing in the light of finding love or someone to share a tender, meaningful moment with.

I am beautiful no matter what. I have wonderful eyes, an amazing personality, a gorgeous, womanly, curvaceous body which I appreciate.

There are men out there that (and women too!) that only want you for a fuck whether you are blind, deaf, bald, have acne, etc etc, or because you are hot, have beautiful hair, none of this matters… Continue

Added by kimberly dean on October 1, 2009 at 11:19am — 10 Comments

That Time of the Year Again!

It is nearly that time of the year when I have to start looking for some new hats to wear. The summer is gone and autumn is getting chilli. Winter will soon be here and my head is starting to feel the cold already.



I cannot decide exactly what style of hats to wear this year. In the past I have simply worn beanie type hats but perhaps this year I will try something a bit different. A friend of mine has suggested a Theodora. What on earth is that I hear someone say? Well it’s a bit… Continue

Added by Ray on October 1, 2009 at 11:14am — 2 Comments

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