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Welcome to my life.

“No, you don't know what it's like
When nothing feels all right
You don't know what it's like
To be like me
To be hurt
To feel lost
To be left out in the dark
To be kicked when you're down
To feel like you've been pushed around
To be on the edge of breaking down
No, you don't know what it's like
Welcome to my life”

Added by x3Awesome'TTx3 on November 7, 2011 at 11:47pm — 5 Comments

Holding on

I'm falling apart, I'm barely breathing
With a fractured heart that's still beating
In the pain, there is healing
In your name I find meaning
So I'm holdin' on, I'm holdin' on, I'm holdin' on
I'm barely holdin' on to you.

Added by x3Awesome'TTx3 on November 7, 2011 at 10:30pm — 2 Comments

Steroid injection side-effects? And other questions!

Hi there!



I'm Karli and I have had AA for almost 2 years now. I have been going to the derm for injection treatment once every 5-8 months and my hair has made a comeback in the sites of injection... However, I am finding new spots all over my head. I was wondering what long-term side effects could be caused by the injections, and if I should even keep going to the derm. What are some common short-term side effects? My derm never really talked to me much about the product was or what… Continue

Added by Karli R. on November 7, 2011 at 7:00pm — 38 Comments

Anyone Know Of Human Hair Wigs Available In UK

Recently My Hair Has Gotten So Bad That I Am Now Looking Into Buying Myself A Wig .. I've Been Looking Online And Can Only Seem To Find American Sites With The Prices Of The Wigs In Dollars And Not Pounds.
Can Anyone Help Me Out And Has Anyone Been Able To Find Good Quality Wigs In The UK?

Added by Mia-Rowlands on November 7, 2011 at 12:06pm — No Comments

Losing my dependency on wigs

So today I went to church without my wig on and just wore a bandana and headband. I've been sick for weeks and just didn't feel like wearing a wig that would make me feel worse. Much to my surprise, no one even asked why or had much to say except one lady at my table (for luncheon afterwards) said how much she liked my scarf and mentioned she had lots of unused fabric at home and wanted to know if I would like to look at any of it to see if I would like to make scarves for myself. My pastor was… Continue

Added by Rodeli on November 6, 2011 at 9:27pm — 15 Comments

Cheers!

A moment of cheers,as I stood on the square of my hometown to attend the Tuskegee University Homecoming parade watching all the beautiful floats and bands passing through marching to the beat of the music,as I watched at that moment one of the most amazing thing or shall I say person caught my attention a woman,yes what seem to be a proud bald woman with a smile on her face not sure what her position was for the band as she march along side the band from Stone Mountain Ga. as I begin to shout… Continue

Added by lovelyjan on November 6, 2011 at 6:30pm — 2 Comments

Hair oil use?

Is it okay to use hair oil while having AA?
My doc says its fine but my dad's doc had told him during his bout of AA not to use hair oil coz it prevents new hair from sprouting.. any ideas?

Added by Nachiketa Sanyal on November 5, 2011 at 2:29pm — 4 Comments

Reaching out to anyone who will listen

For those that don't know me my name is Danielle. I'm a poet and very much into the arts. I've been struggling with hair loss the past 2 years and I'm desperately trying to find others who are dealing with the same thing. Things have been very lonely for me lately, for I avoid leaving out unless I truly have to. I live in Maryland and I haven't really been able to meet anyone with Alopecia. This message goes out to anyone near, or in my area who is looking for a friend who is caring and… Continue

Added by Danielle Pace on November 5, 2011 at 1:00pm — 6 Comments

Alopecia and gluten?

I've been doing a ton of reading on gluten and from what I hear, gluten can cause Celiac disease which can ultimately lead to alopecia. I'm trying to do as much research on this as possible and would like as much help in doing so. I'm also thinking about trying a gluten free diet for a few months just to see if I get any regrowth. Who knows, it' worth a shot right?

Added by Jarod on November 4, 2011 at 8:30pm — 12 Comments

The daily struggle

You know i have worked so hard to get to where i am now. I have a wonderful family who has unfortunately always it seems struggled financially until it seems now. With the high cost of living in Melbourne, interest rates through the roof my family (mum and dad) were not able to provide me with luxuries. So i worked- from 14 years and 9 months (the legal starting age) I worked. Now nine years later I am still working through things have changed.



Now my family is more relaxed, they are… Continue

Added by StillHere on November 4, 2011 at 8:30pm — 9 Comments

Running for a hero and a cause!

I was brought to tears this morning as I read my "Congratulations you have been selected to run in Rick Hansen's 25th Anniversary Relay across Canada" notice.



Rick Hansen is a man who has been my hero since his first relay across Canada, "Man in Motion", 25 years ago when I was 10 years old (So now you know I'm 35 years young) He is paraplegic and has been raising money to encourage research into spinal injuries and possible cures. He has made life better for thousands of Canadians… Continue

Added by Jennifer Krahn on November 3, 2011 at 10:00am — 4 Comments

Rain rain

Rain rain please fall down.
I wanna release these waters
from my eyes.
but noone can see.
Rain rain please fall down.
I want someone to cry with.
I wanna dance while the cold waters
are quickly falling on my skin.
I wanna dance , like no ones watching.
I wanna scream "AHHHHHHHHH!!!!!!"
so I can release some kind of anger.
Rain rain will you fall down?

Added by x3Awesome'TTx3 on November 2, 2011 at 9:28pm — 2 Comments

Anyone interested??

I purchased the Bailey wig in the maple sugar color and it s wa y too dark for me, I didnt try to return it. I pd 75 for it but I ll sell it for 60. I wore it once and couldnt stand it on me, so if anyones interested message me. If you google bailey wig, you can see what it looks like.

Added by Debbie on November 2, 2011 at 9:28pm — No Comments

Anyone been tested for Celiac diease??? Hair loss realted ????

Have been reading about Celiac disease related to hair loss. I have many of the symptoms of Celiac and def have the hair loss problem. The Dr's don't seem to know what cause's the hair loss. They said Celiac disease causes body hair loss also. Anyone found that they have had it and has gonegluten free ???

Added by Michelle on November 2, 2011 at 1:53pm — 4 Comments

Blow dryers and bald spots!

I don't no how it took me so long to notice this... but today after the usual shower instead of air drying my hair i decided to blow dry and straighten it... totally forgetting about the 3-4in bald patch at the back of my head i had the blow dryer on high (since the rest of my hair is thick )so the hot air attempting to dry my hair eventually got to my bald patch and burnt like you wouldn't believe, all in all my mom laughed at me, haha, anyone else ever have this happen ??

Added by laurel on November 2, 2011 at 1:00pm — 8 Comments

"Everybody thinks you should be happy just because your young but they dont see the wars we fight every single day"

"Is that your real hair?" one person asks, "is that a wig?" followed by another person, "why do you wear it?" followed by another person. Questions that haunt me every single day. Why are they so interested in me? I ask myself. Why cant they use their words for good? What did I ever do to them to make them make me feel so.... bad? But this isnt a fairytale where a world is filled with nice & sweet people. No no , no no. This is reality and some people in this world isnt so sweet and nice.… Continue

Added by x3Awesome'TTx3 on November 1, 2011 at 9:30pm — 8 Comments

Skin Cancer Free!

Well, I went on Friday for my surgery to have the skin cancer removed from my scalp. Everything went well, it only took one layer to be cut away and I have no stitches. Much better than the alternative!



So now, I am just going to have to be very careful in the sun, not that my scalp is going to be exposed because it will be covered by a hat, bandana or wig. But just have to be careful in general.



So remember to always use your sunscreen, cover up in the sun and take care… Continue

Added by Julie G on November 1, 2011 at 3:18pm — 1 Comment

My experiences with alopecia

Sometimes writing about it is the only way out.. here's my latest blog post.. would be great to hear from you guys.. :)

http://alopecia-anonymous.blogspot.com/2011/10/fourth-visit-to-dermatologist.html

Added by Nachiketa Sanyal on October 31, 2011 at 2:43pm — No Comments

Hello..I usually don't post at all but was wondering...if you knew about this treatment

http://www.shmuel-gonen.com/english/tv,pr-karaso



looks like it is well intentioned...but have come to be suspicious over the years ago about remedies...but always open minded...

His name is Shmuel Gonen...just wondered what you thought...put a request into his office to get back to me...questions on… Continue

Added by G on October 31, 2011 at 2:11pm — No Comments

Alopecia universalis diagnosed at age 2 yrs old

My daughter is 3yrs old now but lost all hair at age 2yrs old, no eyebrowns, eyelashes. Im just interested in others diagnosed so young. The doctors at St Louis Childrens Hospital said she will most likely never grow hair at all because she was so young and so severe. Im just curious what you all have seen, had happen. Thanks! Im new at this so not sure if Im doing this correct, Lori Ann

Added by Lori on October 31, 2011 at 12:00pm — 2 Comments

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