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Will I get kicked off AW!

Hello Everyone,

I know its been awhile since I last blogged. It has been a hectic year. I just wanted to share something Amanda asked me awhile ago. She has had a full head of hair for about a full year now. It grew back on its own with no treatment. I havent had a chance to put some new pics up but will soon. Amanda was browsing Alopecia World and she heard me ask my husband to put up some new pics of her and she got scared and asked me if she will be kicked off AW since she has hair now.… Continue

Added by Tracy and Amanda on February 20, 2011 at 11:57pm — 13 Comments

Not again...please, not again

Things have been going so well. All the hair has grown back in my bald spots over the past few months with the help of cortisone injections and a tapered oral prednisone treatment. I'm all the way down to 5mg prednisone every other day. I have a derm appointment on Friday and I really thought it would be my last for a long time.



But yesterday, I looked at one of my former bald spots, just to check out the regrowth. . . and I'm pretty sure I've discovered a new spot :.(. I can't… Continue

Added by Julie R on February 20, 2011 at 9:30pm — 3 Comments

The cracked mirror!

I have lived with Alopicia all my life I did not loose all my hair till I was 15 and always looked on the positive of the condition;

1. never had to shave/wax my legs

2. naturally smooth arms

3. will never go grey unless I choose to

3. change my hair style when ever I choose

4. not have to worry about loosing my hair anymore

5. don't have to worry about plucking/waxing eyebrows I choose there shape every morning I do my make up

However as positive as I am… Continue

Added by Lesley Hughes on February 20, 2011 at 7:08pm — 3 Comments

Alopecia...its effects on my kids

I have had AA for 25 years, and in the last 9 years it has progressed to varying forms of AT and AU. I have always had a life with Alopecia, it has NEVER ruled my life, until now. I am in a rutt, I worry nonstop about the effect that it has on my husband, my kids and my life. My husband came back from his second deployment in Dec 10' I had enough hair to cover, a little hair glue here....a little hair spray there.... you know I was making it work. After Christmas I gave up on… Continue

Added by Tamera on February 20, 2011 at 3:00pm — 4 Comments

To wig or not to wig?

Lately I've been finding myself less and less wanting to wear my wig, hat's, and bandannas but I am having trouble going out in public without them. I can't help but feeling like people are going to be mean to me. I have gone out in public a few times with nothing on my head however I still have this uncontrollable anxiety about doing this regularly as I want to do. I'm wondering if anyone else had anxiety or reservations about going out in public being bald and if so what you did to overcome… Continue

Added by Sarah McIntosh on February 20, 2011 at 2:30pm — 2 Comments

A new me

I just started rocking my bald head this past summer and 'm still not as comfatable with it. This seems to be the biggest thing to get used too. I still pass mirrors and double back saying is this really me? I get so many stares that it has made me feel like something is wrong wiht me. I try to tell myself I'm not defined by my hair or should I say the lack of my hair but it has really taken a toll on my self esteem. Will I ever get over this??

Added by Annette Burrus on February 19, 2011 at 10:25pm — 5 Comments

Inspirational life story! :)

"The only thing holding myself back from my dreams was myself."





I came into this world expecting to be just like anyone else, and I never thought something so small, such as having alopecia areata could even for a moment make me think all of my dreams weren’t possible. At the beginning of my journey this seemed mountainous, and something I never thought I would ever be able to overcome. I let it hold me back in life, by making me believe that I would never be married, have a… Continue

Added by Lindsay Walter on February 19, 2011 at 8:30pm — 7 Comments

Wig Watch 2011

So after a lengthy delay, I got my hair buzzed last night. The non-bald portions had gotten way too long, so my fro was full of "dents". {Yes, it was kind of hilarious to see.} I asked her to take it as low as possible fully aware that I had the bald spots. I assured her it was okay. She really didn't want to do it until I told her I had a wig on standby. I also told her that I'm eventually going to shave it all anyway because the bald part isn't growing back. She asked why ... I told her… Continue

Added by Angie P on February 19, 2011 at 2:25pm — 9 Comments

Acceptance

Acceptance is the biggest step. It would be easier if we did not need the acceptance of those we love. My husband is one of the people I fear will not accept my baldness. Next week what's left of my hair will be taken own - I can't wait. I ordered a wig in advance to see if even like wearing wigs. Mostly I believe I'll be rocking my bald head with some funky scarves or hats when I feel like it.



My husband replies: "as long as you're ok with it, its ok" but never answers me… Continue

Added by Lili Añel (aka Eulalia) on February 18, 2011 at 1:22pm — 7 Comments

So this really is painful

I am new to this website and have been browsing through the blogs and am amazed at how many beautiful strong people there are dealing with this monster called alopecia--I am 27 yrs old and just started really dealing with alopecia this past year. I always had a widened parting on my head but after a family loss early last year the parting became huge--so much that no matter the hair style, spray color or headband would hide it. I went to a local spot to see what to do and they provided me with… Continue

Added by Mi on February 18, 2011 at 12:00pm — 8 Comments

First wig week down...many to go

Well, I have made it thru my work week with my first wig. It is better today than it has been the past couple days. It was more itchy for a little while there, but today has started off good. I have gotten alot of compliments this week, alot of surprise reactions when I tell them I have a wig, and alot of looks like they want to ask or they are trying to figure it out.



If someone asks me about it, then I am telling them. If it is someone that I am friends with, I tell them. Other… Continue

Added by Julie G on February 18, 2011 at 9:35am — 8 Comments

I think I just found my meaning

My mum hates the fact I'm bald. She's embarassed by it.



I was in Sydney for a few days with my drama class and had the best time in my scarves, not my wig. My friends dont mind talking about my alopecia and I felt - and, dare i say it, looked :P - great. Whenever we were just around in the hotel, I didn't wear anything, aound the girls at least, and everyone was fine with it.



It made me realise how much pressure I feel from my mum to wear my hair.

It's currently… Continue

Added by Georgia Gardner on February 18, 2011 at 5:45am — 7 Comments

Engagement

Hehe, I'm so excited - I'm getting married! The date is set for 6th August 2011 and I can't wait.

I already have my dress, however I'm struggleing for ideas on what to do with my head! I don't wear a wig and have nothing to attach a veil to but I feel like I need something purely for decoration, any ideas?

Does anyone have any pictures of their special days?

Thanks for any help x

Added by Emily Horsley on February 18, 2011 at 5:28am — 2 Comments

Hope my baby has hair

I can't help but worry! I have been pretty strong through out this whole alopecia deal, but if my baby boy has to go through it, thats gonna kill me!! I secretly wanted a girl for this reason only...because Im afraid that if they dont have hair, a girl can wear wigs, ect. I know a boy can too, but it seems harder to hide with a boy. It's not something that I think about everyday, not stressing too much, but it lingers in my mind. If it happens, Ill be as strong as possible, but Ill feel so bad… Continue

Added by Lee on February 18, 2011 at 12:36am — 6 Comments

Thanks

First of all, I want to thank you all for your comments on my post "Tired". I am calling to schedule my first wig appointment to try some on to see how they feel. I am seriously thinking about cutting off what remains of my hair too. I also have an appointment with my doctor to check my hormone levels. I have had a mild thyroid problem for years and when my current doctor took me off my meds, my hair started falling out more rapidly. I will see how things go after next week.



Thanks… Continue

Added by Anne Williams on February 17, 2011 at 12:53pm — 2 Comments

My first bald driver's license!

My driver's license is up for renewal, and I've been waiting until I could get a new photo that looks the way I've looked for 3 years - bald! Every time I had to show the old photo ID to someone, it depressed me to see myself with all the hair and my original eyebrows. And, people would look at the photo and just assume all the more that I have cancer.



So, this week I made an appointment and went in to have a new photo taken. They unexpectedly made me take the written test again, but… Continue

Added by Mary on February 16, 2011 at 5:22pm — 24 Comments

Wigs

I have begun my investigation into the world of wigs. I will probably go to the local beauty shop that specializes in wigs and try some on with their wig expert. I sort of know what I want in a synthetic wig. I don't want to spend the money and time with a human hair wig (I want to invest my $$ in SCUBA gear).



I don't mind wearing a scarf or hat when I am working out. I usually wear either when I run on the treadmill and I wear a scarf under my bike helmet as a rule to soak up the… Continue

Added by Anne Williams on February 16, 2011 at 1:13pm — No Comments

Tired

This is the most blogging I have done since joining Alopecia World. I am getting very, very tired of carefully styling my hair to hide my "spots". I am a very active person. I run, bike, and I swim almost daily. That means that I have to "do" my hair every day. I am sick of it. I am thinking of getting a wig. Any words of wisdom?

Added by Anne Williams on February 15, 2011 at 9:00pm — 20 Comments

Viviscal

Has anybody heard about this product Viviscal? It is a supplement along with shampoo, conditioner, and a lotion. It is supposed to promote hair growth even for people with aa.

Added by Anne Williams on February 15, 2011 at 8:39pm — No Comments

The time has come

I have had alopecia areata since after the birth of my son some 20 years ago. I had the usual treatments, Rogaine before it was over-the-counter; the shots to my scalp. All worked for a short amount of time. I am a dark-brunette, bordering on "black" haired woman. I have taken to having my hair dyed blonde (single process, no bleaching) as you notice the spots less with lighter hair, it all blends. But its not working that well anymore.



I am a musician and in the public eye. I saw… Continue

Added by Lili Añel (aka Eulalia) on February 15, 2011 at 3:50pm — 4 Comments

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