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To Good to Be True

It's been a while since i posted my last blog regarding my regrowth. I've waited patiently and was excited about every little progress made. My eyelashed grew back- YAY! My eyebrows are back-Yes! My head of hair-Ugh! It was up to about 70% regrowth and now I'm sorry to say it's all starting to fall out again. I knew in my mind this probably was not going to be long term, but somehow I was hoping it would be. Although I am a dissapointed I understand this is what to expect with this condition.… Continue

Added by Marisol on November 13, 2009 at 3:11pm — 2 Comments

NEVER THiNK THE "D" WORD...AS DEATH iS A ONE WAY ROAD TO NOWHERE=NOWHERE!

Nooooooo............you don't wish you were THE "D" WORD!

I am not even going to say it.

The "D" Word is for Defeat, Denial, Defiance.

To think this way or wishing this way is not the way out.

In fact...it's the "END"

Giving up is no Accomplishment!

I will not Drag Negative Energy Out and Feed off it!

We shall strive to use the "D" Word as Discovery, Determination, Deliverance.

Life has… Continue

Added by MiNAH on November 13, 2009 at 9:18am — 6 Comments

New shedding

Definitely losing quite a bit of hair again. I knew it was coming out as I've been picking it off my clothes etc and feeling that I might be exposing naked scalp during the day but looking at the pictures I posted a few months back, I can see how much I have been losing. Eek - I hope it slows down soon because I haven't got myself sorted for a new prescription yet and I don't want to hit the Christmas party season with a whole load of hair missing and wigs that are a bit passed their… Continue

Added by Erica on November 13, 2009 at 5:24am — 3 Comments

Haven't posted in a bit

Well I'm happy to say that Jordyn has a Alopecia World page now..so add her as your friend. She is on here also looking for girls her age that she can relate too. We are happy to say she is soo excited and cannot wait for the arrival of her LOL wig. We are also looking for girls or boys in our area that have alopecia. This seems to be a difficult feat. I have yet to find anyone close to our area. I work at the hospital here and I met a mom not too long ago, she brought her son in for labwork… Continue

Added by Jess (Jordyn's Mom) on November 12, 2009 at 10:07am — 1 Comment

Life sure has gotten busy!

Hello all!

So sorry it has been such a long time since I've written, and wanted to say hello!

Life has gotten really busy as of late, but that is no excuse....Will try harder to drop a few lines from time to time!

In August, wow what a busy time......We moved into our new home, I started back to school, and went back to work...was a bit overwhelmed for a bit.

I have decided to go back to school full time, better late then never I suppose. I am currently getting my Assoc. in… Continue

Added by Theresa on November 12, 2009 at 9:32am — No Comments

I've been neglecting you all

I know it's been months, literally, since I've even logged on to Alopecia World, and I'm so ashamed of myself.



I switched to the night shift at work, which has been crazy.



As soon as I got adjusted to that, I found out I am pregnant. I'm due in January, and spend most of my free computer time researching baby-related stuff.



My hair grew back this summer, likely from the hormones and prenatal vitamins. I really thought I'd be wearing a wig for the rest of my… Continue

Added by Stephanie on November 11, 2009 at 11:39pm — 5 Comments

My Daughter...

My daughter, Mikayla, has what started out as Alopecia Areata, but looks as if it is progressing towards Totallis. She is dealing with it very well...much stronger than I probably would. She is in the 7th grade this year, and this is her first year of public school, and a fairly large one at that. She's always been at a smaller private school. She is involved in the band, and LOVES school. She is currently wearing a synthetic wig, because she is not comfortable enough to go "natural", and we… Continue

Added by Matt (Mikayla's Dad) on November 11, 2009 at 3:46pm — 2 Comments

I'm still around

I've not posted on here for a while as just been busy working and keeping my head down. I have been for numerous tests lately as it was thought I might have had Lupus (runs in family and also causes hairloss) but no they think I have fibromyalgia/ME but there is damage to my muscles so dunno what's going on. As for the hair well I have one or two strands on one eyebrow, a few lashes on the other and not much else. I just dont care anymore...ok that's a lie but I just have to get on with… Continue

Added by elaine on November 11, 2009 at 2:42pm — No Comments

Greetings!

I am new here on this website but I am NOT new to Alopecia. I have been diagnosed with autoimmune Alopecia. I have pretty much had it all my life but it got really bad my Junior and Senior years in high school....which you could imagine was rough.



I have been completely bald now for 12 years with some hair on my body and limbs....which is funny because I have more on my body and none on my head. I have 1.5 eyebrows right now but one eyebrow is growing back thanks to the good ole… Continue

Added by Eric Dane Mattson on November 11, 2009 at 12:12pm — No Comments

Bye Bye Brows

Since I began regrowing eyebrows and lashes at the beginning of 2009 (after being AU for about a year), I've been telling myself not to get too emotionally attached to them. Though they never grew in completely, it's been really nice to have my bio-looking brows again, and all my friends have noticed and commented. The brows are visible in the Bald Lady Drumming photos I put up in August.



But now, the signs are clear: I haven't had to pluck areas underneath the brows for a few weeks,… Continue

Added by Mary on November 11, 2009 at 11:18am — 15 Comments

Aprendiendo

¡¡Voy a escribir mi primer post!!
Tengo FAGA o AGA o alopécia androgenética, cada vez tengo menos y más fino, a veces uso productos como nanogen para disimularlos, pero ya estoy harta, pica y voy manchando la almohada...
Estoy harta de probar productos y ni el minoxidil me funciona...
¡¡Pero soy muy feliz eh!!
Estoy esperando una bonita peluca de pelo natural, será la primera que use, tengo un poco de miedo y no sé cómo voy a explicar mi cambio pero ¡lo haré!

Added by Kat on November 11, 2009 at 3:37am — 1 Comment

Biopsy

I just read Sue Helaine's blog post, "To Biopsy or not" and was so inspired. Thought I would share my own story because through sharing and story we heal.



I didn't even know there was a biopsy. So, that's how my tale begins!



Confusion:

I started noticing serious changes in my hair 3 years ago. I remember getting out of my friend's hot tub, the hair on the nape of my neck was wet from the bubbles. I went in the bathroom, looked in the mirror and had my first serious… Continue

Added by Alicia Duncan on November 10, 2009 at 11:09pm — 1 Comment

Please, your prayers...please

i have been out of site for a few months, I guess when my son's girlfriend developed some horrific neurological problems due to a malfunctioning shunt, I totally forgot about my own issues (AU). Right now, sweet Jenae is spending her fourth week in the hospital; she is having complication after complication due to a replacement of a shunt she has had since childhood. Just when things start looking up, the shunt clogs and she is rushed into surgery. The last surgery has really knocked her bad. I… Continue

Added by brenda kay on November 10, 2009 at 10:00pm — 4 Comments

Consultation Nightmare

First, I am so thankful that I have been connected with Alopecia World. I have so much background information and insights that today, which could have been a little disheartening, turned out to be Just Another Day.



So, I went to a local Hair Spa (I know, I know) that specializes in Reprieve Hair. (smaller filler-type hair systems). I had never seen one. I didn't think I would be a candidate but I wanted to start small and work up. I won't go into long details but the person there… Continue

Added by Alicia Duncan on November 10, 2009 at 9:40pm — 1 Comment

Has anyone tried using Aminexil?

Hi ya'll, I
m surfing the net and came across a product called, Aminexil. It is a leave in treatment that claims to keep what hair you have dense and help growth. Has anyone tried this?? Thanks for the feedback..
Melissa

Added by Melissa Harris on November 10, 2009 at 8:09pm — 3 Comments

Anyone going to the 2009 Let Your Hair Down Charity Event where Kayla Martell will be speaking this Friday, Nov 13?

I am so sorry I have not been on here in a while and than you for reminding me that it is important to check in and let everyone know we are ok. Kayla is doing great and going to college in Arlington, VA at Marymount University. We are so excited to see all our friends and Alopecia supporters this Friday at the "Let Your Hair Down Charity Event" in New Jersey. Matt and Donna Hakim and their two beautiful daughters really put on a SUPER FUN EVENING! The food is also out of this world. I was so… Continue

Added by Rhonda on November 10, 2009 at 6:00pm — No Comments

Been a while

I havent been on here in probably the last year..Alot has happened. After all the stuff i dealt with with my molar pregnancy and chemo, a month later, i found out I was PREGNANT!! :) I had my beautiful baby girl August 20th. She is my world. She changed the way I look at myself and the world. My alopecia is not what defines me. I am an amazing mother, girlfriend, daughter, granddaughter regardless of my alopecia! I have beyond happy with my life!! My little girl Peyton Faith has made my life so… Continue

Added by Chelsea McGee on November 10, 2009 at 4:38pm — No Comments

Are there any good wigs out there that are not Vacuum?

Hi there ya'll! Question, is there anyone on here that has had a good experience with any wig that is not a vacuum wig? I am still receiving treatments and still have 2/3 of my hair, so I'm not ready yet to shave my head. On the other hand, am willing to buy a wig that is not a vacuum wig, but still looks really close to one for now. Has anyone had a good experience with any other kinds of wigs other than the vacuum?? Thanks for any feedback!! Melissa

Added by Melissa Harris on November 10, 2009 at 4:23pm — 6 Comments

Dyeing Hair After Alopecia

My mom has had alopecia for the past year and her hair is now starting to grow in. Her only problem is that it's growing in grey, she by no means wants to be picky as any hair is hair to her now, however, she is not ready to face the signs of aging. We are trying to explore our options, and were wondering if dying the hair would make it fall out again or what? We really have no idea and neither does her doctor so any help is greatly appreciated!

Added by Stacey Ringham on November 10, 2009 at 1:27am — 2 Comments

Alopecia totalis :(

Im 26 yr old guy....I have alopecia for 6+years.....Nw doctors saying it is alopecia totallis.........I lost my eyebrows and hairs throughout the body...But i am not totally bald now....partially hair is exist in head (around 60% in head) .....Is there any possible to regain my natural hair in full head and eyebrows as well ? .....Or not possible ??.....Can someone suggest me....I was totally depressed bcoz of this problem.....

Added by jebaraj on November 9, 2009 at 11:23pm — 1 Comment

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