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Totally Me

I am bald, I am bold and I am not ashamed. I go out in only my bandannas. I never wear wigs nor do I ever plan to wear one. I am a very open minded person. I love to show off the new me. I love to make people wonder whats wrong with me. Let them stare because they dont know what they are staring at. I get a lot of sympathetic looks, as though people think I am a cancer patient. But, no one has the guts to ask me whats wrong. People will always talk about someone or something so I say, why not… Continue

Added by Kristen Viveros on May 23, 2009 at 9:27am — 10 Comments

Treatment

Hi.

Anyone heard about this?

http://www.shmuel-gonen.com/en/

Roger.

Added by Roger on May 23, 2009 at 9:17am — 8 Comments

AU and the Sun

Just wondering if anyone else with AU experiences being allergic to the sun? I never had any signs of Alopecia until I turned 37. I use to tan well when in the sun. Every since I was diagnosed as having AU, I can't go into the sun without turning into hives and itching everywhere. This even includes drving/riding in a car. The strangest thing to me, wherever the sun has made contact with my skin, face, hands, etc. later in the evening turns into hives and requires me to take benadryl to control… Continue

Added by Kami M. on May 23, 2009 at 6:45am — 4 Comments

A wonderful book!

I worked in my local school district for seven years. A 5th grade Teacher having read this book for many years along with her students, discovered I had Alopecia. She asked me if I would be interested in having a discussion with her class, and without hesitation I blurted out , "Yes, sure I will." This was my prior to Alopecia outgoing personality coming out. Later, I thought I can't even come to terms with having Alopecia myself, lil alone discussing… Continue

Added by Kami M. on May 23, 2009 at 6:35am — 1 Comment

Making Progress

The support on this site has been amazing. I've starting taking baby steps. A couple days ago I told my best friend about my alopecia and how it has made me feel. I even took my wig off so he could what my hair actually looks like. As of right now I'm not completely bald I had to stop shaving because my scalp was so irritated. He was so supportive and understanding. We talked until 2a.m., he suggested since it was so late and no one would see me that I drive home without my wig on. I did and it… Continue

Added by Anastasia on May 22, 2009 at 4:55pm — 2 Comments

TV interveiw

My son Kyler and i did a TV interveiw at our house today(winnipeg,Manitoba,Canada) It was for children who suffer with Alopecia but they will touch on adults suffering as well. I just want to try to get some awarness in winnipeg for people with AA.. It will be on monday25 on big breakfast channel 8.It will be on 7:20 and agian 7:45 am. and on tuesday they will have a dermatologist on talking more about AA..Just wanted to tell you guys and I hope that some of you can tune in

Added by Christine Messner on May 22, 2009 at 2:17pm — 3 Comments

Can anyone help?

I have noticed an incress of my hair loss and the growing size of my patches. But i used to regulary dye my hair, but ever since i have had AA i have been more aware of the risks it may cause. I supose that nothing may happen or something extreme could.I would just like some help on how to go about this, i would really be thankful to anyone how can offer me support or share there stories with me. Thankyou.

Added by Rebecca Rae on May 21, 2009 at 1:53pm — 2 Comments

plants and pets

might sound silly, but the only time i don't feel affected by this horrible thing, is when i have my hands in the dirt planting something......or when i am talking to my sons' fish in the pond while i am feeding them(a chore which i usually dread because when he goes out of town, i take over animal chores) .......or scooping crap from the 4 litter boxes from the 7 cats his deceased father left him........or walking my grand dog, who cares little whether i have on eyebrows or a wig. even tending… Continue

Added by brenda kay on May 21, 2009 at 10:42am — 3 Comments

Shaved it off! - Missing...between 100-200 thousand hairs. If found please return to this rightful owner

Well I did it. The hair is gone. My spots were getting to the "I look sick "stage and the hubby helped me make the call. He shaved my head with my little girl present. Her response "You look like Uncle Paul" my handsome brother in law who sports his head -shaved look. My husband's response "You have a good head" How do I feel...Relieved a bit, stunned alot, sad a bit, but not as painful as I thought. In a very abstract weird way, I think I look cute...at least not sickly which is what I saw in… Continue

Added by Jennifer Krahn on May 20, 2009 at 10:29pm — 9 Comments

Wigs wigs wigs...

Gosh, sometimes I get so sick of wigs, I live in a really small town, it's pretty obvious I wear a wig.

It's even worse when the "children" here think its funny to pull it off in public *twitch*.



I'm sixteen, I know it sounds immature but I really dislike people who make fun.

Tease, pull and jerk off my wig, call me baldy etc.

And decent wigs are so expensive...



I looked into a vacuum wig that wouldn't come off when someone pulled it.

4100$,

good… Continue

Added by Kayla on May 20, 2009 at 6:42pm — 4 Comments

Update

Hey There Everyone :)
Hope everybody's okay !
Well, I'm very glad to say that.... I have one A level exam left!!
Just one English Literature exam on the 18th June, then I'm done, finish, over!!! Such a relief let me tell you!!!!

Well, all the best everyone!

GOOD LUCK TO ANY OTHER STUDENTS!!! FINGERS CROSSED!!

Liz x

Added by Lizzie on May 20, 2009 at 5:41pm — 2 Comments

day three....sister stand-off

since my unpleasant incedent on sunday with my little sister seeing my new short wig...and totally freaking out....we still haven't made communication. we usually talk every morning or at least once a day. we are both stubborn scorpios and i have cooled down conciderably after being told i look like Farrah Fawcett on chemo. now gosh darn...what if i took off the wig and showed her the barren plains of my cranium????? I'd have to have 911 on speed dial cause for surely she would have a stroke… Continue

Added by brenda kay on May 20, 2009 at 8:59am — 5 Comments

Not Alone

I'm kinda glad that I'm not alone in this and at the same time sad that we're in this too. I used to feel all alone, but since I've found this site I'm swimming in a veritable sea of bald heads. ;)
Hey, we're not bald, we're follically challenged. :D

Added by Brandy Snap on May 20, 2009 at 1:06am — 3 Comments

Wig Wearing Women - Stand Tall!!

I feel so compelled to write this message to all of you bald women who choose to wear wigs. I don't mean to be controversial or engage in debate because aren't we all one family, one community of support? We are ALL in the same boat. First, to you ladies who go bald in public, I appreciate and thank you for being true to what you think is right for you. Because isn't that REALLY what it's about - To Thine Own Self Be True.



But that said, shouldn't we all be accepting each other for… Continue

Added by Kelly on May 19, 2009 at 11:28pm — 20 Comments

New Woman

Well... I have posted a side view of my very first wig. As you can see, the wig is VERY similar to my bio hair style. After much consideration and convincing, I realized this was a good stepping stone. As much as I really wanted longer hair, this is a good intro for people, clients and family to the new me. I have had it for 4 days now, wearing it everyday and LOVE IT!!! I have gotten so many compliments. Some people at work "know" it's a wig and still love it, some people just think I've… Continue

Added by Tawny on May 19, 2009 at 10:00pm — 4 Comments

Extreme Negativity

Maybe it's just me, but as of late, there is a lot of negativity amongst board members. A lot of it seems geared towards treatments/ and or lack there of. The longer I am on the board, I can pretty much tell who is going to respond to what, and in what type of manner. For example there's a few members, who whenever a new treatment someone has tried comes out, are quick to ask a million questions about the treatment, and then chop them down and refute their reasoning for starting the treatment.… Continue

Added by Kayreyn on May 19, 2009 at 8:49pm — 7 Comments

oh it's so wrong..

I know the sweetest nine year old girl on this planet (in my opinion)

One of the most unspoiled children I've ever seen in my life.



she's absolutely beautiful, but she has to wear wigs because of Alopecia Areata, Her mom was telling me about how she came home crying from school one day because the children took off her wig on the bus and were running around hiding it from her.

She actually had to go back up to he school, to get the wig back from lost and… Continue

Added by Kayla on May 19, 2009 at 8:37pm — 5 Comments

Alotab is a simple but powerful pill treatment for Alopecia

Hi all.

Is it someone who heard about this?

http://alotab.com/2/?gclid=CJyxyqeiupoCFYoVzAodxUAFBQ

Roger.

Added by Roger on May 19, 2009 at 4:03pm — 3 Comments

Did things change or am I just noticing them more?

I don't usually blog, but I need to vent...so here I go:



I've had Alopecia for as long as I can remember. My entire life I've dealt with the stares and double takes, just like everyone else. For the most part, it didn't bother me...at all. I would brush it off and not take any notice to it anymore. Walking through the mall or anywhere else, I expected people to look, so I almost stopped realizing when this happened. Why then, is it starting to bother me all of a sudden? It doesn't… Continue

Added by Alex on May 19, 2009 at 3:04am — 7 Comments

Wig costs.

There is so much advertising for wigs on this site that I inquired at Peggy Knight Solutions about wig costs. They emailed me back saying, "Pricing for our prostheses starts out at $2,500.00." Is it just me, or does that seem a bit high? The last wig I bought was from Paula Young. It's a human hair wig with a mono front; and I only paid about $60 for it (on sale from $189). It actually looks quite good, especially since I tweaked the colour by dyeing it to something more suitable for me. The… Continue

Added by Brandy Snap on May 19, 2009 at 12:25am — No Comments

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