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Shock, pain and raw emotions...the good the bad and the ugly

I have been losing the most hair ever lately. One shower episode lead to two full handfull of hair plus two brush fulls. It was strange I didn't cry. But...my husband took a look at the back of my hair the other day. He was pointing out where all the spots were. I asked him to take me up to the mirror to show me...I was shocked and devastated. The back of my head looked as though a lawn mower had attacked it...awful. I bawled...I mean just bawled. It was a down to the bottom of my toes bawl… Continue

Added by Jennifer Krahn on April 26, 2009 at 10:42pm — 13 Comments

back from Cancun



I just got back from my 7 day trip from Cancun. It was very nice, never seen water so blue, never seen they sky so clear, never seen so many stars on a dark spring night. One of the things I would like to share with you guys is I meet another alopecian on the trip. He was an alopecian universalis patient, very very sucessful man. He had 3 beautiful children, and a lovely wife. I was so excited to meet him, as I never meet any other alopecian in… Continue

Added by Carol Yuen on April 26, 2009 at 1:31pm — 10 Comments

Lydia Martin took my photos yesterday....

Lydia Martin is a well-known, local to San Diego, fine artist who specializes in painting of emotion..... most, in fact about 98% of her paintings, the subject is a woman.... women show emotion in their face, their movement, their eyes...... her new series is called the Painted Lady project, where she has chosen models with a tattoo that tells a story, she loves the tattoo i have on my head..... well, I am the subject for painting #3 in that series!!! sooooooo excited! :) Lydia came over to my… Continue

Added by Lindsay on April 26, 2009 at 11:08am — 1 Comment

Share your experiences with the National Alopecia Areata Registry...

http://www.AlopeciaAreataRegistry.org/

I'm curious if anyone has gone to one of the centers locations and what kinds of things do they do to further the research of our condition.

Added by Nicole Mosley on April 26, 2009 at 3:03am — No Comments

Coming Out Bald at the Synagogue - What the Bible Says About Baldness

Hi everyone,



I want to share with you something I did this morning in front of the congregation at our synagogue. Though I go everywhere bald, one place I hadn't done so was at services at the temple. Every Saturday morning when we go, I've worn one of my scarves. Until this morning!



Today's reading from the Torah (Old Testament - Leviticus ch. 13) is about skin diseases, baldness, and treatment by the ancient priests in Israel. I couldn't pass up this opportunity to… Continue

Added by Mary on April 25, 2009 at 3:30pm — 25 Comments

Guess I'm gonna have another round of hormone blood tests, because my doc insists on it. They're looking for hypothyroid and epinephros problems and stuff, but all I'm concerned about is my hair. I k…

Guess I'm gonna have another round of hormone blood tests, because my doc insists on it. They're looking for hypothyroid and epinephros problems and stuff, but all I'm concerned about is my hair. I know this is kind of shallow, but what? I'm a girl;) My hair means a lot to me. All my life it was curly and silky and thick and now it's suddenly getting thinner and thinner, and here I am - spending hours in front of the mirror every morning swearing like a sailor trying to hide a bald patch my… Continue

Added by Summer on April 25, 2009 at 11:30am — No Comments

Buying a Freedom Wig in the UK

Hi All!
I've recently decided to purchase a Freedom Wig and i'm trying to find out as much as possible before i go ahead with it all. Just wanted to know if anyone has purchased a Freedom Wig recently and what their experiences were, good and bad. I've found a couple of places in the UK that supply the freedom wig but if anyone has any advice or recommendations it would be really helpful.
Thanks, Melinda

Added by Melinda on April 25, 2009 at 6:25am — 4 Comments

Just married! Cheryl & rj :-)

I am delighted beyond words to announce that Cheryl Carvery and I are now husband and wife. :-)

We married last Saturday, April 18, 2009, and we are just getting the word out because we spent this entire week trying to doing nothing except rest!

We deeply appreciate your best wishes and ask that you continue supporting us with your prayers, positive thoughts and presence in our beloved community known around the world as Alopecia World.

We also invite you to…

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Added by rj, Co-founder on April 24, 2009 at 11:30pm — 26 Comments

DO YOUR HOMEWORK BEFORE DOING ANYTHING ,,,,,,TAKE IT FROM ME!

I WAS SO TIRED OF TRYING TO HIDE MY PATCHES WITH HATS AND THE HAIR I HAD LEFT. SO I CALLED A NUMBER OF A SUPPORT GROUP PERSON AND DROVE 2 HOURS TO MMET UP WITH HER AND WE WENT AND I GOT MY HEAD BUZZED. THEN WIG SHOPPING WHICH I LEFT EVERYTHING UP TO HER CAUSE I NEW NOTHING ABOUT THEM. I LOVED TWO DIFFERENT ONES AND COULDNT DECIDE. NOW THIS LADY WAS AN ANGEL . I BOUGHT ONE AND SHE BOUGHT THE OTHER FOR ME. HOWEVER I KEEP TELLING HER AND THE LADY THAT WORKED AT THESE PLACED THEY FELT TWO BIG. A… Continue

Added by peggy thompson on April 23, 2009 at 8:16pm — 3 Comments

Any upcoming events for us to meet and network in Arizona?

Hi Everyone, I'm curious if anyone knows of any upcoming events in Arizona for us? If not, would anyone be interested if I organized something somewhere central in to everyone living in or near Arizona?

Added by Nicole Mosley on April 23, 2009 at 7:43pm — 2 Comments

Need some good advise for my 4yr old son as more kids are inquiring making him sad....

I'm 35 years old and my son who is 4 years old and has alopecia since he was 1 years old. He received a new immunization shot at 1 and lost his hair, brows and lashes completely. I've been giving my son homeopath medicine during the last 2 years and he finally got his brows and lashes back. The top of his head is lightly patchy. He has been oblivious to his hair loss until recently when little kids in daycare inquire. This makes him sad and I am looking for support that I can offer in order to… Continue

Added by Emily Scovell on April 22, 2009 at 3:05pm — 6 Comments

Hair color and alopecia areata

I am curious if any one has colored their hair and found that to be a trigger for alopecia areata (Or made alopecia worse) Beautician colored my hair in Dec. and a few days later my hair started to fall out in 2 new spots. Just starting to get a few hairs back after 4 months. A few weeks ago found a new spot on the back of my head. Not sure if the hair color had anything to do with it. Would love to have my gray roots colored, but I am afraid of causing more spots to appear.One derm told me Not… Continue

Added by Katie on April 21, 2009 at 8:45pm — 7 Comments

oye que bola gente

i have created a character known as Marina, a lovely Latina who has Alopecia Universalis, the story of this character is a woman who decides no more and throws her wig in the trash and is ready to confront society not worring if they except her or not, its just a brief synopsis of here on my page in the about me section so check out the pics and the story, Gracias.

Added by ROCKSTAR: ROCKY MANUEL MARTINEZ on April 21, 2009 at 7:52pm — 2 Comments

Take Off That Hat

At the end of my meal, the waitress says with a big smile, "Take off that hat!" I'm not sure why I chose to wear a hat today, but her statement was a pleasant surprise.



I have chosen to "live bald". No wigs and occasional hats. When I first lost all my hair, I wondered what strangers thought of my choice to go bald--can she not afford a wig or she must be really sick. But now I am so comfortable being bald and sharing my life with alopecia.



My encounter with the…

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Added by Jill on April 21, 2009 at 7:30pm — 3 Comments

i am really frustrated

i am having a hard day. not because of alopecia, couldnt care less right now. its cos i keep thinking i am pregnant. i feel fat, bloated like my period is coming, it doesnt, my boobs start to hurt ALOT and then i take a test cos i think maybe just maybe i might be then no i am not.

and i am not again. i'm going to the doctor on friday, but i just need to get it out. i am sooooo sad at looking at the lil stick and nothing happening. and crying.. and that just makes me think really? and… Continue

Added by Alison on April 21, 2009 at 8:43am — 2 Comments

McHappy Day

I am a manager at McDonalds. Started there when my second daughter was born as the hours worked out quite well, figured if I was going to spend a bunch of time there I may as well make some money at it and work my way up as much as I can, if nothing else it will look better on a resume when I want to get back to working a "real" job... lol (I find that comment particularly funny because I think I have worked harder there than I ever have in my life) Anyways, I am pleased to announce that I am… Continue

Added by Tenille Gee on April 20, 2009 at 9:59pm — 3 Comments

Hi there.:)

Hi,

I'm Liz. I've had Alopecia Aerate for.... about 9-10 years now, (I've not really been counting!) And thats okay :) It's been good, and it's been bad, but thats life! School was hard, primary was fine, but moving to secondary school was tough, but you get passed the staring and the awkward questions, and eventually my hair grew enough so that it would hide the patches.



But yet again AA strikes, and yesterday I decided to just get rid of it! I feel in control now!! Yes, people… Continue

Added by Lizzie on April 20, 2009 at 3:25pm — 3 Comments

My new hair?

So I guess it's about time I posted a blog especially since I've gotten my first hairpiece for a month now!



I've had alopecia areata since i was 13, at first I noticed that the hairline on my temples were reciding but I did not take much notice of it until one day my cousin decided she wanted to style my hair and freaked out as she discovered some bald spots. At first I told my parents but they ignored me until months later when it started getting worse and thought it could be… Continue

Added by Liz on April 20, 2009 at 12:29am — 5 Comments

I don't know if this is irony or the world trying to help me feel better

my cat has alopecia too! haha

Added by Rayne on April 19, 2009 at 10:20pm — 1 Comment

"I'd still talk to you!" (reactions from friends)

I have typically been the person who doesn't talk about alopecia but lately I been getting better at this and have been talking more about it to close friends. I must say while I don't regret telling my friends, the reactions have been......disappointing.



Like one friend asked if it just affects the hair on my head. I told her that at this point its just my head but it could progress to my entire body. Her response? "I'd still talk to you!" I think she meant it to kind of lightened… Continue

Added by Nesha on April 19, 2009 at 8:45pm — 6 Comments

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