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a little about my life!!

Firstly I just want to say, this is an awesome site! Wish I would have found it much sooner!



anyhow........

I don't know what its like to have ever had hair. My parents have told me, that I did have some hair when I was born. Apparently, I was nearly 7 weeks early when I made my splash into the world. Shortly afterwards the doctor came to my parents room and said we need to talk.

Ofcourse with that statement, my parents were terrified. The doctor explained that I have some… Continue

Added by Theresa on January 29, 2009 at 10:05am — 4 Comments

Super Bowl!!

Going to be an awesome weekend in Pittsburgh! When the Steelers go to the Super Bowl
it brings the city to life. Its a holiday atomsphere with family members returning
to watch the game here. Good food, good drink and parties. Now if the Steeler
secondary can stop the Kurt Warner and his wide
receivers there could/should be a victory sunday!

Added by Galvin on January 29, 2009 at 10:00am — 4 Comments

A new start

Wow. I googled my disease and found this community, full of people going trough things I've experienced too. I've never met someone who been diagnosed with alopecia, I've never met a person who actually heard of it before! Exept for the doctor I went to when I was thritheen and wondering what the h*ll was going on with my hair.



In the spring 2003 my friend was going to braid my hair during an artclass and found a naked spot above my left ear. The feeling under my… Continue

Added by Johanna on January 29, 2009 at 8:00am — 2 Comments

Good News Maybe

I had mentioned before that I had Alopecia as a child and had complete regrowth until I was 30 years old. Well as a child my mom had taken me to a tricologist and she was able to help me. Since then she (the tricologist ) has passed away. Since this has all happened to me again, I have found that her son has continued her business, not exactly in the same fashion, but for the most part. Anyway, I looked him up and talked to him for a while, I sent them some bloodwork and talked to him today, he… Continue

Added by Jamie on January 29, 2009 at 1:49am — 6 Comments

Normal Teen

I am a teen suffering alopecia areata. I almost try to live a normal life.even though i suffer AA my friends except me so does my boyfriend.he just cares that i don't have an asthma attack because i also suffer from chronic asthma .but for teens who does have alopecia its okay people will like you for who you are.
Kids who have AA or different alopecia should be proud of who they are.

Added by Aja Eliazar on January 28, 2009 at 5:30pm — No Comments

a friendly alopecia scenario

Hey all,

In my posts I wrote about how my hair is coming back. However, right now I'm as bald as can be! All of the hair growing progress is gone.

Its a relief to not have patches to shave off anymore. Its official... I enjoy being bald more so than having hair.





The Story:

Yesterday, my professor, fellow students, and I were waiting in the hallway for a classroom to open up. My professor made a comment about nicely groomed eyebrows. I explained that I drew them… Continue

Added by Stacie Duda on January 28, 2009 at 4:48pm — 2 Comments

End of an era...

Yesterday, Loretto High School announced it will be closing its doors in June.



Since I heard the news, I feel like I've been walking around in a daze for the whole day. I'm trying to make sense of how to exist in a world where Loretto doesn't. It's hard to explain to people who don't or have not experienced it themselves, but the impact of Loretto closing is larger than I think anyone could imagine. It sounds cheesy and sounds cliché, but those four years I was there were truly the… Continue

Added by traci on January 28, 2009 at 3:49pm — 3 Comments

The new treatment. (DCP)

On the 21st January 2009,

I started DCP well getting sensitized to it, today 28th a week on had no reaction,

go back to hospital on the 4th february.



well its now 01 April 09,

still having treatment its going well. I will say the first few weeks were hell...Blisters and a head that if i had stuck it under the cold tap you could have got a red hot bath. Got really god growth at the back and were i was sensitized,

The right hand side is a stubbon bugger, but we will… Continue

Added by mandy on January 28, 2009 at 10:00am — No Comments

Bald is BEAUTIFUL!!

I'm so proud of my Jessica and how well she is handling loosing her hair. I'm thankful that the process has been slow (allowing her time to slowly adjust), that she has this place to come to see photos of beautiful people so she isn't feeling so alone, and that she's completely healthy! As problems go in this world I'll take ALOPECIA any day of the year.

Added by KIM - Jessica's Mom on January 27, 2009 at 3:33pm — 5 Comments

Poem.

Yesterday i found what looks to me like a new spot ..after months of not having any!:(

This is a poem i wrote about Alopecia i apologize if it is a bit depressing.

here it goes...

Back to Before



Just as my life began to feel whole again there you came trampling back in.



How am i suppose to have faith or even believe? When it is you that can make every bit of happiness leave.



The fear you evoke my mind you provoke. How my heart fell to the floor.… Continue

Added by Lacey on January 27, 2009 at 9:58am — 8 Comments

Bald at last!

Here's something interesting... before I shaved my head, I had thought that the moment that I finally did it, I would come scurrying over to Alopecia World and post pictures and try to get support from everyone. But something strange happened... I found I didn't need the support.



With the advice of my mom, I did the head shave in steps. First, I got my mom to cut off my pony tail (I saved it so I could match my wig to it) and lived with that short hair for a week or so. I went to… Continue

Added by Christine on January 27, 2009 at 12:30am — 13 Comments

People are so ignorant

So I went out on Saturday night with some girlfriends. We had dinner and then went to go see a band we like. I'm having a good time minding my own business following my friend through the crowd to the dance floor when someone pulled my hair. (By the way I wear a wig) This was no accident, it was obvious someone grabbed a handful and jerked my head backwards. I immediately turn around to two guys standing behind me and asked, "Who did that and what is your @#*%ing problem?" They are both… Continue

Added by Jill on January 26, 2009 at 11:54pm — 10 Comments

Still Bald and All is Well

I am a member of many organizations and sit on the board of several non-profits in my community. I am taking the time at each meeting to discuss my...well...baldness. Everyone loves my wig, and so comments are always made about my "great new hair." That's the perfect time to mention that while it IS my hair (bought and paid for, thank you very much) it isn't exactly MY hair in the true sense of the phrase.



I explain what alopecia is, what little is known about its origins, treatments… Continue

Added by Nants the Rebellion Dog on January 26, 2009 at 3:12pm — 1 Comment

Groan

So I went out to the bar with my husband to listen to his friends band. The band was ok, the venue was crappy so I couldn't really understand the lyrics, but hey. I only drank two beers the whole time we were there and we went to bed shortly after getting home. It was a pretty relaxing night.

Then I woke up about 5:45 in the morning with a feeling like a flaming knife was lodged in my throat. This used to happen when I went to a bar, because smoking was permitted in Oregon until January… Continue

Added by Carmella on January 26, 2009 at 12:30pm — 2 Comments

Afraid to face reality

A while back I was wondering about getting a wig instead of getting a weave again. Well, I got the weave again still cant wrap my mind around the wig. I am thinking that this will be my last time getting the weave and I will start to wear scarves because I really really really dont want to wear a wig.



The last time I looked in the mirror I saw that my hair line in the front looks splotchy like really small dots of scalp instead of hair so I guess I am losing more.

I was sure… Continue

Added by Tamara Dixon on January 25, 2009 at 4:15pm — 5 Comments

23 january 2009

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Two children and one adult were killed Friday after a man with a painted face launched a knife attack at a children's daycare center in Belgium.



Police look at a hearse parked in front of the childcare centre in Dendermonde where the attack took place.



Officials said two adults and 10 children, some of whom were in a critical condition, were being treated in hospital following the attack in… Continue

Added by Evelien on January 25, 2009 at 11:00am — No Comments

Tibetan folk tale: The Story of the Bald-Headed Man

One time, when the world was young and men and women were ill because an evil spirit possessed them, there lived a man and his wife who were very poor. A devil came and took possession of each of them and made them both sick. As they were not rich, they could not invite a holy lama to read prayers for them, so invited a lay-brother in his stead. After a while, the man who was reading began to get very hungry. It was the custom to give the priests the best of food, but this man and his wife had… Continue

Added by rj, Co-founder on January 25, 2009 at 7:00am — No Comments

Bad day - over for the moment.

I work tonight so I don't know why I'm up, just to see how everyone is doing I suppose. I'll catch a nap here in a minute. Thanks to everyone for their ever - sweet comments and support. Love you guys.
Have a beautiful weekend.
XOXO
CAR

Added by Carmella on January 23, 2009 at 5:51pm — 2 Comments

A New Day has Dawned in America!

I watched the Presidential Inauguration today, and how do I best describe the myriad of emotions that I've felt on this most historic of days?



It is a bittersweet day for me, because the father, grandmother, and great-aunt that I adored so much were not here to witness history being made. How I wish I could have sat with them, especially my grandmother and her sister, who lived through Jim Crow, segregation, and the Civil Rights Movement, and been able to talk to them, and see their… Continue

Added by kastababy on January 23, 2009 at 2:02pm — 4 Comments

Please share with me your experiences with the steroid pills....can't think of what they are called.

Maygen started taking steroid pills that are suppose to surpress the immune system so that her hair will stop falling out and regrowth can occure. So far she has been on them for a week. She is still loosing hair. Hmmm....I do see regrowth, but it was there before she started the pills. She was using the steroid topical cream. I would just like to here the good, the bad, and ugly about these pills.

Added by Maygensmom on January 23, 2009 at 11:45am — 6 Comments

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