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Saw a fellow alopecian today - How to say hi to a total stranger

Had a chance meeting with a fellow alopecian today--unfortunately we did not really get to talk. I was at the P.O. and when I got in line, I saw a woman a few places in front of me that was only wearing a fitted hat on her bald head--she didn't seem to have eyebrows or lashes either. I was so excited and proud of her for going out that way. I watched to see if the others in the P.O were staring or looking at her (it was crowded) and I didn't see anyone paying any attention to her--except me for… Continue

Added by Rodeli on September 16, 2011 at 11:00pm — 3 Comments

My new job!

Hello All, It's been a while since I have logged into Alopecia World. Alot of great things have been happening in my life but the one thing that I want to talk about is my new job!! Yea me!! I started a new job about two weeks ago and struggled with the thought of returning to "Corporate America" without hair. I prayed about it and thought to myself, if not me then who. Well I'm very pleased to say that it has been an unbelievable experience. For those of you who can't imagine going to work… Continue

Added by Joye Pressley on September 15, 2011 at 11:30pm — 4 Comments

Why is my hair white?

Hi everyone,
Just wondering if anyone else deals with all the new hair growth coming in white and why? No I'm not that old either. I have a lot that always grows back, but I always shave it right away so my wig will fit right, but if I didn't will it eventually turn to the brunette I was? I don't know if I would have the patience to find out, so basically I'm just curious if anyone else has had this and what happened.
Thank you already to any input you may have.

Added by Hope on September 15, 2011 at 8:30pm — 3 Comments

Things are going great. : )

Hey! How is everyone doing? Sorry I haven't been on here in a while. I'm going to try to get on here more! I had a great summer! I had a wonderful birthday and I made some new friends. : ) Life has been pretty great so far. My hair is still growing . I hardly have any bald spots and I am so thankful for the hair growth! I am very blessed. I wear my wig most of the time but it's getting hard to wear it now. I don't feel comfortable enough to go out in public without a bandana. I just wish my… Continue

Added by Mackenzie on September 14, 2011 at 11:00pm — 4 Comments

Link between alopecia and cancer?

i have had alopecia since i was 15 and i am now 23. i also got diagnosed with thyroid cancer 6 weeks ago. does anyone think there may be a connection between the both? has anyone else with alopecia been diagnosed with thyroid cancer?

Added by Nadia Lionetti on September 14, 2011 at 4:30pm — No Comments

International Alopecia Day 2011 video slide show

Here's the 2011 International Alopecia Day video slide show:

http://www.alopeciaworld.com/video/international-alopecia-day-2011



This is a revised version to add a couple of photos.



Thank you to all the participants who sent me photos and participated this year! Please join the International Alopecia Day… Continue

Added by Mary on September 14, 2011 at 1:30pm — No Comments

"Your new Miss America might be beautiful — and bald" Great news article

By Lisa Marsh

TODAY.com contributor

updated 1/11/2011 2:30:09 PM ET





Beauty pageants evoke images of flawless women in amazing shape, perfectly made-up and coifed, right?



Yet one beauty queen vying for the Miss America title in Las Vegas this Saturday night has barely any hair on her head.



Kayla Martell, Miss Delaware, has been bald for half of her 22 years — she has alopecia areata, a rare condition that results in unexplained hair loss. But… Continue

Added by Jennifer on September 14, 2011 at 11:42am — No Comments

The inquiring mind of a three year old

My three year old grandson really wants to understand why his grandma doesn't have any hair, or more specifically why my hair doesn't grow. Keep in mind that he's only had about a week to wrap his mind around his grandma being completely bald. So today while watching him at my house he started in with wanting to know all about lobsters so we googled lobsters and we looked at photos, videos and information about lobsters and then it occurred to me....I could answer all his questions about my… Continue

Added by Rose on September 12, 2011 at 11:00pm — No Comments

Hairspray (Love it! Hate it!)

Hope everyone is doing well! Another question to my alopecia friends: ...well some background, blah, blah, blah...and then my question...



I have come to learn that hairspray and wigs don't really mix. I have a gorgoes human hair wig that looks great after washed for only a few days because I feel the need to load it to the max with hairspray. I don't know if I find myself doing this out of habit from when I used to style my own hair or from fear that it will lose its' shape and… Continue

Added by Beverly on September 12, 2011 at 4:00pm — No Comments

Baaack

still hate alopecia and its life stealing ways.



this time I'm applying topical steroids for at least 3+ months. Why? Because now that I think about it I've only really continued on with a cream for about 1.5 max and I did respond to oral steroids giving almost 100% growth and steroid injections always sprout out hairs again after about a month or so after the injection has been administered.



I have also taken up lifting weights, I'm focusing on the things I can change… Continue

Added by Nick on September 11, 2011 at 5:00am — 6 Comments

WCAU NBC 10! Show - Speaking About Alopecia Awareness and Upcoming Event!

Here is the video to the interview I did on the NBC 10! Show with the head of Children's Alopecia Project, Jeff Woytovich and his daughter Madison. I commend NBC 10! for having us on and helping me spread awareness by highlighting the upcoming Musicians for Children's Alopecia Project Benefit Concert.

Click HERE to see the video!

Thank you!

Lili

Added by Lili Añel (aka Eulalia) on September 9, 2011 at 10:30pm — 4 Comments

I need to get something off my chest

Hey yall.. Well it has been a while since i have "blogged" but i feel like i need to get something of my chest.. First off! YOUR HAIR IS NOTT WHAT MAKES YOU BEAUTIFUL! people kill me when they wake up 2 hours early to fix their hair! lol when people ask me why i dont have hair i say of course lol i have alopecia. people like to reply aww im sorry then i laugh and im like sorry for what? they say for you not having hair . no me not having hair is not a sorrowful thing it is a BLESSING ! god made… Continue

Added by Bre Cobb on September 9, 2011 at 2:00pm — 4 Comments

My visit from my son!

I had a wonderful visit from my eldest son, Trent this past weekend! Labor Day weekend. Trent was diagnosed with alopecia areata when he was 3 years old. His hair fell out completely when he was 8. He is now going on 24 years old! I have watched him deal with alopecia over the years. Of course, the beginning was the hardest. I made sure to become involved with NAAF as soon as I was aware of the foundation. Through alot of help from NAAF and our community we dealt with Trent's diagnosis the best… Continue

Added by Anna Seagle Craft on September 7, 2011 at 4:17pm — No Comments

Any positive stories here?

Hi,

I discovered I have alopecia about a month back. I have 4-5 patches on my scalp. 2-3 of them pretty big (1-1.5 inches diameter). I've had one steroid shot 3 weeks back and due another one tomorrow.

I'm new to this, can anyone share their experiences who've been cured? How long does it generally take? Do I have any hope at all?

Added by Nachiketa Sanyal on September 7, 2011 at 10:37am — 5 Comments

The holiday

Last week I went on holiday. A week in the sun with old friends seemed perfect, and thousands of miles from home I felt truly relaxed for the first time in ages.

On the way to the airport I'd made a decision - that I wasn't going to look at my bald patch at all during the holiday. Since my alopecia started, a few months ago, I have been obsessively checking it in the mirror almost every evening, watching the borders of the patch spread across the back of my head, and photographing it to… Continue

Added by AJ on September 6, 2011 at 2:42pm — 2 Comments

Spreading Awareness One Step At A Time

I'm thrilled that the courier Post a New Jersey newspaper has run a feature in their health/wellness section in today's newspaper about Alopecia.



I contacted them in the hopes they'd do a piece talking about alopecia and the Musician's Alopecia Project Benefit I organized raising funds for the Children's Alopecia Project taking place September 16, 2011 at World Cafe Live! in Philadelphia.



I'm very excited they did such a great job on the piece. As well, the Honorable Mayor… Continue

Added by Lili Añel (aka Eulalia) on September 5, 2011 at 12:30pm — No Comments

Winter coming

Can't gloss it over, the dreaded cold weather is coming and it can't come slow enough. I have aches and pains and the cold makes my asthma worse and just grrrr...I am a wimp. lol. True Floridian - below fifty AIN'T so nifty. Ha I crack me up. I do wear hats, wigs, etc. merely for warmth during Dec-March. Thank goodness that's when it begins warming up again.

Maybe because it was winter when my hair fell out...Jan 10-March 30 approx. Maybe that's made winter worse. Add in Sciatica plus bad… Continue

Added by Laura Adams on September 5, 2011 at 5:17am — 2 Comments

Help?

I'm honestly tired of people around me saying "you're still pretty" The point is I don't feel that way. I don't even feel like me anymore. I feel so lonely. Just a few years ago i was 80lbs lighter, working out in the gym and had a full head of hair. Now i'm overweight, depressed and have to wear wigs to leave the house. I can't stand to look at myself in the mirror anymore. If i don't like myself how can anyone else? I had a boyfriend a few months ago but he didn't understand what i was going… Continue

Added by Jennybnkr on September 4, 2011 at 4:00pm — 2 Comments

The end or the beginning?

Dear all,



It appears that 24 will be the most memorable birthday of my life. I have been growing out my hair since February and finally decided to "take the plunge" with a pixie cut. Truthfully, had my long term best friend not been in town, I probably never would have gotten myself into the salon in the first place.



Something amazing happened. Even now, I look back astonished at my actions. As my stylist (who has been with me through two wigs) came out into the waiting… Continue

Added by Jennifer on September 3, 2011 at 8:30pm — 2 Comments

9/02/10 - 9/02/11

Today is exactley a year since I shaved my head. A year ago today I took control over something that I was letting control me and depress me. This year has been full of a LOT of downs...breaking my foot, vertigo, missing 3 months of work, and doctor bills coming out of everywhere, and losing my boyfriend of 3 years because he wasn't attracted to me without my hair. But out of all the bad I do have good...a loving family that is ALWAYS there for me and supports me, and a new amazing boyfriend… Continue

Added by Tamara on September 2, 2011 at 9:00am — 3 Comments

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