All Blog Posts (5,826)

Lupus?

Hello everyone i was wondering if anyone on here has lupus as well. I've been gettinf lots of tests done and doctors have mentioned lupus but since there's not specific test for it there's no way of being sure. The symptom questions have been asked many times and i don't seem to br experiencing many. But now when i feel some of the things i'm not sure if it's all just in my heas now. What were your early symptoms?

Added by Vane on June 24, 2013 at 1:32pm — 9 Comments

Newbie

Hello. I am new to the community. I sought out the support group because I am letting this alopecia consume me! I'm thinking of going bald : / but I'm battling with this tremendously! I feel like a freak. I'm a woman in my early 30s. Just looking for someone one like me...I suffer from traction alopecia. I have a 10 month old son and this seemed to get worse after giving birth to him HOWEVER I admit I've had some degree of thinning and balding for 10 or more years I know I should be used to… Continue

Added by Simone on June 24, 2013 at 12:32pm — No Comments

Loss and growth (how I grew it back)

I have had alopecia areata since this February and in this time I have lost all of the hair on my head. I remember at the beginning the smallest dime sized patched being the biggest deal and freaking out. Looking back I realize how lucky I was to have 95% of my hair at the time. I am 18 and this is my first wave of it. I have had an extremely stressful year and attest my initial hair loss to excessive stress. I now have over an inch of hair all over my head and have little to no shedding…

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Added by tree on June 23, 2013 at 9:30pm — 11 Comments

First regrowth sprouting!

After about a year of having lost my hair (all of my head, my eyebrows, eyelashes, legs) I have lots of little hairs popping up. I am trying hard not to get too excited because I don't want to be disappointed. For anyone who has had regrowth, is there something I can do to encourage and hang onto the growth? Keeping my fingers crossed.....

Added by k9helper on June 23, 2013 at 6:30pm — 2 Comments

Topical Immunitherapy treatment

Has anyone had Topical Immunotheraphy treatment using the chemicals DPCP or DNCB or SADBE?
If they have I wonder if they have been left with a very sensitive scalp and painful eyebrows when they have been getting them tattooed?

Added by Roslyn Brown on June 23, 2013 at 5:28am — No Comments

Redness and irritation on scalp

Does anyone have suggestions to help the redness and irritation on my head? I am just about totally bald now and I typically cover my head with a wig during the day and then a bandanna or buff around the house. My head gets very irritated and has red patches. I recently got those headliners and put two of them in the wig, which makes them much more comfortable, but I could use ideas for topical creams or other protection that might help. Do any others find that their head is very sensitive? If… Continue

Added by Barbara on June 22, 2013 at 9:58am — 1 Comment

Most dermatologists...suck

I have honestly come to the conclusion that most dermatologists.... suck. No, seriously they are horrible and don't know what to prescribe they just give any type of drugs and hope it will work. Not cool! Today, I actually had to tell me new dermatologist that no, you cannot give me cortisone shampoo while on squaric acid because it defeats to whole purpose of the acid. So, I have come to the conclusion that in college I will study pharmaceutical science and either become a dermatologist…

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Added by Sara on June 20, 2013 at 10:30am — 8 Comments

Which shampoo or conditioner should I use on hair from Hair Club?

Does anyone have hair from the Hair Club? i'm just curious if you ever use reg shampoo/ conditoner or only there stuff....

Added by jewels on June 20, 2013 at 12:00am — No Comments

Jags

Had steroid jags for the first time in a long time yesterday. Don't know if it's because it's been so long since my patches were as bad or what but slept for almost 24 hours and today still feel woozy and sleepy and very emotional :-(

Added by Jo-Anne on June 19, 2013 at 3:18pm — No Comments

Here we go again

I feel really bad that I didn't keep up with stuff after my regrowth. In fairness I have been in and out of hospital for 18 months with bi-polar and that time was awful, strangely I had a full head of hair throughout all that. But about a week after finishing my uni exams for my second year, which had been deferred whilst I had been ill, my hair has started falling out again. It's been happening for about a week but it's pretty fast like usual.

Luckily I'm pretty ok with it. This is the…

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Added by Lyndsey Pitchford on June 19, 2013 at 2:35pm — 2 Comments

Keeping hope without getting too hopeful

I've had alopecia for about 5 months now, not even sure exactly what kind yet ( i'm seeing a rheumatologist soon).

I lost about 40% of my hair, but the last month or so most of it started growing back, i couldn't help but get excited. I had little fuzz covering nearly all my head again. Well the past few days i started noticing smooth spots on my regrowth.

How can i keep from getting too excited when i see regrowth? I don't want to get my hopes crushed, but i also don't want to…

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Added by Vane on June 18, 2013 at 1:00am — 2 Comments

You

I've been on this site for a few weeks and reading things here and there... Stuff gets real for a lot of you folks out there, kind do puts my life in perspective. I'm going through something but it could be so much worse. Thanks for staying strong.

Added by JessKa on June 17, 2013 at 9:00pm — No Comments

I'm really OK! Step by step but OK!

Hi everyone! After acept the ALOPECIA reality i decided shaved my head about 2 weeks ago! It was painfull and hard to identify myself with the image in the mirror, but now i'm getting stronger and being more ok with my "new look".

Yesterday i went to do a street performance on a place where anyone knew me... anyone knew that i used to have hair, anyone knew that i have alopecia or cancer ( like many people must thing that i have)... and yesterday for the first time i felt free to go…

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Added by Catia on June 17, 2013 at 7:00am — 3 Comments

Finally shared my story

check it out if you have time. :) I know you all can probably relate more than others.

http://huff.to/13LqMMy

Added by Brandy P. on June 14, 2013 at 3:00pm — No Comments

Bald Bride: My Alopecia Story, Part 4

While I continued to go about my stressful life as usual including breaking up with Jonathan (more on that in the book), I met Aaron* shortly after the New Year.  During our lunch hour, I happened to sit across from him in the courtyard at WMA.  We ended up chatting about surfing, yoga, and self-reflection of all things.  He told me that he believed in working on oneself and growing as a person.  I remember noting that I liked the way Aaron thought.  It also didn’t hurt that he was lean from…

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Added by Rosanna on June 13, 2013 at 9:13pm — 1 Comment

Wrong diagnosis

So last week Thursday my dermatologist stated that I had Alopecia Areata for sure but wanted to perform a biopsy just incase. So a week later, which is today, they removed 2 stitches that I received from last week. She came back with my results and I actually have Androgentic Alopecia and Demodex Folliculitis. Which in other terms I had human mites eating at my hair follicules which in turn was making me lose my hair. They issued me a prescription for Metrogel and would like to see the…

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Added by V.R.Alva on June 13, 2013 at 5:30pm — 4 Comments

No hair. No problem.

I'm still having fun! This summer has been a whirlwind of graduation, bachelorette parties and weddings. While I have had some hesitation about being in a lot of pictures with a quirky haircut and missing hair, the experience of enjoying my friends and my life has overpowered the hesitation and made me even more comfortable in my skin!

Here I am with my father after receiving my Masters in City and Regional Planning. He was rocking his "someone I <3 has alocepia" wrist band that…

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Added by HilEspi on June 12, 2013 at 1:38pm — No Comments

There it goes again

I've had AA for a few years now. I shaved my head 9/02/10 and since then I have been patchy, then full head of hair, then patchy again. I understand it will probably be like this for the rest of my life... I've come to terms with that. When I do have hair I color it, give myself a fohawk, whatever I think to do at the time. but WHY is it that when I have a FULL head of hair growing great like this...…

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Added by Tamara on June 12, 2013 at 11:30am — No Comments

My polka dot head!

I decided to share my story since everyone on here is so brave in sharing theirs! I am grateful for finding this site because outside of my family and few close friends noone knows that I have AA.



I'm 43 now and started early menopause at 38. My AA started 18 months ago. About a week after getting my hair highlighted (as I had been doing for years). I ran my fingers through my hair and felt smooth skin in the lower back side of my head! I have long hair which covered the spot and… Continue

Added by Shari on June 12, 2013 at 7:22am — No Comments

Photoshopped graduation picture!

My daughter just graduated from elementary school for handicapped children, but she has Down´s Syndrome and has had Alopecia Universalis for 5 years. And as a reward when the children got their diploma they also got a picture of the class and teachers.

I was stunned when I realized the picture of my daughter had been photoshopped. The photographer had put hair on her head and she looked like a boy. I was so sad, I found the photographer and the only explanation he gave me was this:…

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Added by Tinna Ros on June 12, 2013 at 6:30am — 32 Comments

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