Hi I'm Natalie

I am 25yo old and I have Alopecia Universalis for many years I've had to hide my alopecia, for the reason that not many people are aware of the condition, so I would like to raise awareness about the condition and raise some funds for the Australia Alopecia Areata Foundation AAAF.

I will be participating in the Stadium Stomp without my wig, which i wear every day.

I've registered to participate in Stadium Stomp, Australia's longest consecutive stair climb to…

Hi I am Judy

About four and a half years ago my hair suddenly went flat and started falling out, my long dark eyelashes dropped off, my eyebrows disappeared and after four months I was totally bald. Every bit of hair over my whole body disappeared. I had been to Doctors and a Specialist and they said this is Alopecia Universalis (total body hair loss).

The plus side of this is that it saved me a fortune in leg waxing and hairdressers.

And just for another kicker, I was…

I just wanted to share my recent appearance on the news on KMIR6 in Palm Springs. I hope my LOVE U formula is helpful! It definitely helped me and my coaching clients.

After going from having small bald patches that would grow back over a few months, to losing 98% of my hair and half an eyebrow—the journey has been far from easy. I look back now, and cringe over how I would stress out when I discovered tiny little patches that were covered by the thick head of hair I once had.

How I would whinge because my hair was too thick, boring and normal when I was younger, along with other image issues.

How I would kid with my best friend whether he'd…

In the past few weeks, I've really changed. Changed in the sense that I'm not allowing myself to hide that I have alopecia anymore. I'm no longer considering it a 'secret'. I shouldn't be ashamed of it, because alopecia is apart of me, and I will not be ashamed of myself. It was difficult to talk about it before to my family, and even worse when I talked about it to my best friend. I would always end up crying. But recently, I told more of my friends, without a single tear, and they…

I have AU and think I'd be happier/ more comfortable bald during the labor/ delivery. But I don't want all my pictures with me bald... I was thinking some type of head covering- but something not too obviously (bald underneath) for the posterity of my photos! Any suggestions? I think I will bring my wig to wear home from the hospital. But I do want to get some pics shortly after the birth and want to look ok.

Thanks,
Lisa

I don't know if anyone has started a blog about this, but since I just registered to attend my first NAAF conference in St. Louis June 27-30, I'm curious which of my AW friends are attending.

Who's going?

I am almost finished with sixth grade I only have five more days. The thing is I am contemplating whether or not to shave my had now or wait until August I was wondering what you guys think. I was thinking wait so I don't get a sunburn on my head but also if I waited I could get teased and made fun of behind my back, but that would be okay with me as long as they didn't do it to my face. On the other hand though, I could shave it now and risk getting it sunburnt and have hair when school…

I was diagnosed with alopecia areata a few weeks ago. I noticed a bald patch on my crown when getting ready for prom, which was a huge shock. I went to the dermatologist the next week, and he found 3 other patches. I got the steroid injections, and hair is starting to slowly come back in. Unfortunately, more hair is falling out near the patches, in the places that I did not receive injections (they only did about 15). The patch on my crown is growing to the size of a large palm, and I can no…

Hi everyone. I have AU, which developed after I left the working world due to a disability. I am considering trying to go back to work, but realized when it came time to thinking about interviews, that I am going to have to explain my disease in order for the interviewer to not think I am sick with cancer. I know that it may not sound like a big deal, but I am really not happy that I don't have much of a choice if I want to continue to live free from binding, headache producing wigs! I feel…

I haven't been on here in so long, but since I have, I've come a long way with the acceptance of my alopecia. I'm in a much better place, even though it still sucks at times...

I got married last September :) and had a beautiful custom made wig for my wedding. I loved it! I wanted long hair and the guy I go to charged me approx $1250! I know , that's alot of money :( but it was a full cap (and I don't have to wear any tape, which I love, because I HATE using the tape!) I previously…

The following list of books were written by members of Alopecia World. Please click the title of each book to learn more about it and to purchase a copy.

If you have an updated profile on AlopeciaWorld.com and would like your book listed here,…

Hello everyone,does anyone have any ideas to promote fashion with alopecia? Just because we lost our hair don't mean we have to look a hot mess.your suggestions are needed.

Hello everyone, my seven year old daughter was diagnosed with AA on both sides of her temple and nape she is balding. She has long hair so we can cover it with her hair and head bands for now.because Alopecia is unpredictable i do not know if all her hair will eventually come out. But I don't want her to feel like she has to cover her balding spots or her bald head for that matter. She also lost most of her eyebrows and eyelashes.i dont want her to have a low self esteem because of her…

It's been a while since I posted on here, and I felt its about time I do. Since September I have been in and out of hospitals, different specialist, and I think my PCP and I see each other more than I see my best friend. LLLOOONNNGGG story short, I have been diagnosed with Fibromyalgia (OUCH!), POTS, and a severe case of restless body syndrome. I am currently on Short Term Disability, have been since January, with currently no sign of me going back to work any time soon. Because of the POTS…

After several job interviews, some were successful, I manage baldness now by explaining the situation very simply and quickly at the beginning. Two minutes of explanation are enough to enable my interviewer to focus at other, really important subjects for the job.

Really struggling tonight, looking back at me before I lost my hair, and I was so damn beautiful I can hardly believe it. I feel like growing hair is like winning the lottery... does anyone know if people who have been completely bald have grown their hair back? I feel incomplete... I am afraid to go ahead with life, I feel fake without hair. 

For the last two weeks I had seen very small hair growing in my left eyebrow, I didn't believe myself and I didn't even wanted to talk about it to anyone, and now I am seeing hair growing in my right eyebrow also my eyelashes, but so far still there's no progress in my head hair, hopefully it will grow back... And the other thing is that I am scoring high marks in my school, I feel so energetic and very overwhelmed these days... I really hope that we are will have some good news in the very…