Featured Blog Posts (3,064)

How annoying!

Does anyone else get this?

I went into town with my mum for a bit of a girly day out shopping really. We were queuing to pay, and with it being half term holidays, we were next to a mum with her two young daughters. The youngest, about 4 or 5 years old, kept staring at me and whispering to her sister, "That girls got no hair". okay I can accept that. I'm sure I would have at her age. then she turns around to her mum, "That girls got no hair". okay, a little annoying now. once…

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Added by Lizzie on February 19, 2010 at 6:43pm — 4 Comments

There and back again

Hard to believe that it's been so long since I've posted anything here. Hope everyone here is doing well. My own journey over the past 8 months has taken me to many places…some new, some not so new, some I’d rather forget and be done with. My alopecia continues, primarily in the background as I continue to adapt, yet occasionally offers…

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Added by Tony on February 19, 2010 at 7:13am — 1 Comment

updated ver1.0 Tired of being tired - here's how I see it

Heres how i see it. What do us Alopicians all have in common, at fist glance it appears nothing, you could say the same thing about people who have athletes foot or fungal nails, kids, men ,women, healthy and other wise all can get athletes foot and fungal nails what the commonality,... you got it a third unwelcomed party Microbial pathogens they have been around forever and evolve and can adapt. I did some detailed research about these little critters turns out there are many types of… Continue

Added by George Ortiz on February 18, 2010 at 12:30am — 3 Comments

Guilty Crack Head

I have had Alopecia Areata for about 20 years. The first time it fell out I lost most of my hair, eyelashes, and eyebrows. Then some grew back, but not all of it. A few years later a friend who was a nurse told me to try P.U.V.A. which I did and to my surprise all of my hair grew back 100%!!! Of course as you all know there is no cure and when I stopped the…

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Added by Devin on February 16, 2010 at 11:12pm — 17 Comments

Dating

This weekend has made me reflect on a lot of things. When my hair first started to fall out, the thing that seemed the most scary to me was meeting a guy and having to tell him about my alopecia. Then when I got my wig I gained a lot more confidence, and telling someone didn't seem so scary, in my mind. I have now lost 3/4's of my hair....the other quarter, which I was certain would have gone by now is still hanging in there. I have really come to terms with losing my hair and it's something…

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Added by Sarah McA on February 16, 2010 at 6:45am — 10 Comments

Head Jewels

Many of us aspire to be more like our wonderful AW role model, Crowned Regal. Last night I tried a little bit of "royalty" on my head - I wore some glue-on head jewels for the first time. I bought a kit online last year from a company that supports women with hair loss due to cancer, called "Crown Jewels", but I hadn't found the right moment to try the look.

For my first attempt at head decoration, I chose all-red jewels and wore them to a Valentine's Day folk dance party. I…

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Added by Mary on February 14, 2010 at 8:33pm — 10 Comments

Just some thoughts

Sometimes i feel like my hair is a burden i know i really should be so happy that i am able to keep some of my hair as i see many other people on the site have lost it all. However sometimes i wonder if having nothing at all would in a sense set me free. I find myself constantly stressing about the development of new spots and the shedding of the hair i currently have. Its as if im trying to hold on so tight to whats left on my head i give it so much worth. When in reality hair… Continue

Added by Lacey on February 13, 2010 at 12:06pm — 6 Comments

Share The Love--Be Authentic!

This has been an exceptional week for me in my worklife as an instructor. For the first time since I shaved my scalp in '08, I chose to stand before a class of adults without a head cover. The positive reception was more than I expected. But more importantly than that, I had an opportunity to share Alopecia World with others who are experiencing alopecia in their lives. Mostly it was with women who have children or family members with the condition. And one man showed me his chronic bald…

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Added by Galena on February 13, 2010 at 11:58am — 11 Comments

Baldar

My friend's bald dad and I have always had a joke about how bald people can find each other. So when we'd get seperated in a store or something, we'd take it upon ourselves to use this "power" to bring the group back together.

It may just be a joke, but at the same time I think it's fairly true. Not only am I easy to spot in a crowd, but bald heads always catch my eye. My family is always making jokes about how at conferences they would be like "Oh, there's Kristin!.. wait no.. Oh!..…

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Added by Kristin on February 12, 2010 at 9:54pm — No Comments

Question about AA turning into Au

Hello all:



I have AA and yet I know very little about the ins and outs........ so to speak.

I lose patches very randomly used to be fall and spring but now I never know.

My brother also has been diagnosed with AA as of last year.

He was very lucky to have his patches ( head and beard) fill back in after approx 6mos.

But now he is losing it again and now is also losing on his legs and hands.

Is this normal for AA or could it be becoming AU.

Any…
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Added by Dawn P on February 12, 2010 at 12:01am — 2 Comments

Read all about it! Autoimmune illness and vitamin D deficiencies

There is research relating autoimune disease, inflamation, and vitamin D deficiencies may all be related and infact a direct result of small intracellular bacteria that are thought to be the root cause of autoimmune illness.the cliff notes version is small intracellular bacterium invade the nuclei of many of the bodies cells over time

causing inflammation and chronic disease.in other words the invading bacteria stop the body from being able to properly regulate the…

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Added by George Ortiz on February 11, 2010 at 6:00pm — 14 Comments

Travelling with a wig! Tips, please



Hiii everyone! :)
My name is Emilie, and i am 16 years old.
I have had alopecia since i was 12.
I have tattoed eye brows and getting tattooed eyeliner very soon!
I also wear a wig.
I have 2 that are exactly the same, so i can wear one sometimes and the other one other times.
I also have another one for sleeping when im at friends houses and stuff.
I straighten my hair every day even though it…
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Added by emilie on February 11, 2010 at 3:00pm — 5 Comments

Regret

well hi people its bn a while since i wrote a blog so thor id update, i have been feeling alot better this yr so far than i did last yr, altho i was quite fed up 2day not sure why tho,
i have had regrowth now for months altho it was growin slowly i decided the other nite to shave it off to see if it would grow n differently or thicker and not white, but now been thinkin i made a mistake it felt weird doin it as i hadnt shaved it since last april,
i cant believe its almost a yr…
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Added by lynne on February 11, 2010 at 1:17pm — 2 Comments

Yes! There IS LOVE in belonging

I wanted to reprise my blog of last year because I've received so much strength from coming here.

I love Alopecia World because there’s nothing like belonging… I’ve been given the power to take back my life by interacting with the strong and caring people on this site. There aren’t words that are adequate enough to describe how important your love and encouragement has been to me. Thank you Alopecia Family and Happy Valentine's Day!

~Galena

Added by Galena on February 11, 2010 at 7:59am — 1 Comment

Doctors' attitudes

Hi, I went to see a different doctor at the Hospital today and he seemed really interested in my condition. Previously my GP and the hospital specialists had made me feel that I was wasting their time. I am sure I read a blog on this site that said 'Doctors are not comfortable with AA/AU sufferers because they can't cure it'. Well I have never expected a cure; I know from my own experience and others on this site that AA/AU has it's own agenda and can come and go for no particular…

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Added by Diana Hastings on February 10, 2010 at 12:04pm — 4 Comments

Vytorin 10/40 for hairloss??

Went to doc today and got Vytorin supposedly its for cholestoral but they had patients have hair growth.Its suppose to be new to hair loss treatment. Anyone else heard of this or have any experience with it??

Added by Regina Hastings on February 9, 2010 at 8:17pm — 5 Comments

First blog!

Hi ! I'm Mackenzie ! And I have Alopecia Areata .Okay ! So... here is my first blog . Lately I have been going back an forth between ,do I cut off my hair and get a wig ? .I'm not really sure what to do. I still have alot of my hair , but there is this one spot in the front that is kind of big . I get my hair cut to cover it up , but there is another little spot not to far from it and I'm afraid it's going to get bigger like the other one did . It's so hard being a teenager… Continue

Added by Mackenzie on February 9, 2010 at 5:07pm — 7 Comments

Writing blogs is so therapeutic

Well, a lot has happened since my last blog post...so I thought I would write another one..this is a great way to keep track.

I went to my doctor who arranged for me to have blood tests. I got tested for diabetes, auto immune disorders, protein and iron deficiencies. I also got my thyroid checked plus a few other things. I had convinced myself this was all down to low protein in my body. Turns out I was wrong. All my tests came back normal. I guess I should have been relieved…

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Added by Sarah McA on February 9, 2010 at 10:41am — 14 Comments

Just Diagnosed

My hair started falling out in December and in January I was diagnosed with alopecia areata. I now have 6 patches. The only treatment I'm doing right now is a topical steroid cream that I apply twice a day.

I'm concerned that my doctor told me there's no cause and no cure, but when I look online, I see people talking about vitamins, stress management, etc. Is there some special shampoo or hair treatment I should be using? Does stress make it worse? I don't feel stressed. Well,…

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Added by Suzanne Kennedy on February 8, 2010 at 1:27pm — 19 Comments

Bald for 48 years!

Hello all,

I've decided to muster up the courage to write about my situation,,,Alopecia Universalis! Let me first start off with the good....I've been married for over 30 years and have 3 children, none have Alopecia - thank God. Let me say secondly, it has not been easy. I first started losing my hair at age 8. I am now 55. My hair have never come back. My elementary and teen years were the worst. Thought sometimes of committing suicide. It is my faith in God that I didn't I am strong! I… Continue

Added by j watson on February 7, 2010 at 3:14pm — 3 Comments

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