All Blog Posts Tagged 'Alopecia' (97)

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Awarenes not Ignorance

I'm trying to bring awareness to those who lack the knowledge of what Alopecia is and how it affects those(children to adults) who live with it everyday of their lives.



So, I've started a discussion via SocialVibe.com (I'm an active member)to ask the website to ad Alopecia to their list of causes.



Join/discuss with me ...… Continue

Added by Jade J'adore on December 3, 2008 at 3:18pm — No Comments

One Eyebrow or No Eyebrow

Interesting times these days....life's pretty great by almost any standard you can measure it, but this Alopecia thing has a way of getting in my craw every once in a while. Chalk it up to the pressure of life (yes, I'm a believer that the stress around me and in me is a major instigator for my Alopecia), and we're all feeling it somehow, but my left eyebrow all of a sudden - after a good 4 years of stability - decided to call it quits. The bigger problem in this predicament is that he didn't… Continue

Added by John Paul on November 24, 2008 at 8:43pm — No Comments

To All Men!

Ok, I have a few questions for you guys.

How do you feel about bald women? If your girlfriend or wife was thinning, would you encourage her to shave her hair off if it to preserve her mental health or leave it and let nature run its course, or would you try to encourage her to find a solution? What do you love most about a woman (or YOUR woman, especially if she has some form of alopecia)? Do you think bald women can be as beautiful as women who have their own hair? What draws you to a… Continue

Added by Alexandra on October 11, 2008 at 11:05pm — 13 Comments

Hair Again

I am now experiencing a really weird feeling. I now have hair again.



I cannot believe that it has all come back. I have not shaved my head for a month now and I have more hair than I would have thought possible in such a short period of time.



The last time I shaved was on the Saturday evening of the August bank holiday. I shaved at about 1800 hours as I was going to our friends’ 25th Wedding Anniversary party. As always with a big night out I wanted a really close shave… Continue

Added by Ray on September 26, 2008 at 1:00pm — 8 Comments

Photos on Flickr.

Hi all.

I just found an great alopecia group on Flickr to join. Lots of photos with/of alopecians as ourselfs.

http://www.flickr.com/groups/alopecia/

Take care everyone.

Roger.

Added by Roger on September 16, 2008 at 12:12pm — 4 Comments

Pondering on the last 6 months

Yesterday marked 6 months since we started Alopecia World and although we had a vision for it, I never knew it would be SO amazing.



I look at the photos, videos, advice giving and it is unbelievable how much all of you have inputted and shared your lives with Alopecia World.



I watch adults showing their spots or lack of eyebrows, all to which the outside world they may hide. I watch women happily upload photos of them with a new wig, eyebrow tattoos or post their first… Continue

Added by Cheryl, Co-founder on September 8, 2008 at 4:00pm — 10 Comments

September is Alopecia Awareness Month

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. You are also welcome to make suggestions and discuss your plans in the comments section below.

Wishing you great joy and good success,

richard jones (rj) & Cheryl Carvery
Co-founders, Alopecia World

Added by Alopecia World on August 24, 2008 at 9:30pm — 8 Comments

"Sad" Mother

Hi all.

My mother is not taking my hair loss well. To be perfectly honest, she's an emotional wreck over it. It is not enough for her to know that I've adjusted to the fact that some day I might be bald and wearing a wig. It is not enough for her to know that I've managed to overcome my sadness. She says that she's proud of how well I'm taking it, but sometimes she finds it hard to believe that I can truly be as accepting of it as I claim to be. The truth is, I was depressed at first. When… Continue

Added by Alexandra on August 10, 2008 at 5:22pm — 2 Comments

I'm New Here! Here's My Story.

Greetings! Although I am not yet bald, I am sort of afraid (make that

terrified) that I will be eventually. For the past year or so my hair has

been falling out at a rather steady pace when I comb it. I went to

dermatologists, endocrinologists, trichologists, and gynocologists to try

to get to the bottom of this. One said that going on a birth control pill

might help, but I've heard negative things about the Pill (increased hair

loss, blot clots, no sex drive) and… Continue

Added by Alexandra on August 6, 2008 at 6:54pm — 5 Comments

The worst summer ever!!!!!!!!!

This year we have had the worst summer ever. The weather has been terrible with lots of rain and on many days it has been cold but the sun actually shone briefly on Sunday. What a wonderful feeling it was to have the warmth of the sun on my bald head. It felt as though it was how I should always be and this only served to confirm my view that despite now having re-growth all over, I will continue to shave my head and continue with my new image of being bald or at the very least the proud owner… Continue

Added by Ray on July 21, 2008 at 6:30am — 1 Comment

What is Alopecia World to you?

Alopecia World member Willow recently wrote us and gave our beloved community a wonderful compliment. She wrote, "I think your web(site) is a miracle to some people, a helping hand to some, but it's an extended family to us all."

We are grateful beyond words that Alopecia World has come to mean so much to so many people. Not just the more than 1,200 amazing individuals who are now registered members, but also the thousands of…

Continue

Added by Alopecia World on July 6, 2008 at 1:00am — 16 Comments

Discharged from my consultant!!!!!!!!!!

The weekend was pretty poor really. Daughter trouble! How they can make life difficult! Who would think that a 16 year old girl who is loved and looked after so well could cause so a bad weekend but she did!



Regardless of the problems it was going to be a low key weekend really apart from a concert in Manchester on Saturday evening. I had shaved my head on Friday morning and then left it for the full weekend as I was going to see my consultant on the Monday morning. By Monday morning… Continue

Added by Ray on July 1, 2008 at 1:00pm — 1 Comment

Dating at any Age and Stage.

Dating can be scary at any age.

I look back as a 16 year old girl on my first date. I was incredibly nervous as well as wondering what this boy I was in a car with alone was going to do because before then we had only been in group settings. My 3 brothers and 2 sisters had told me horror stories about what dates were all about. They loved to tease me as a child and this continued into my teen years.



After seeing clips of this video

( …

Continue

Added by Billie on June 10, 2008 at 5:00pm — 4 Comments

More encouraging registry information...

Hi guys, if you've read all these posts, you know that there has been some discussion about the purpose of the National Alopecia Areata Registry and how our information and blood samples will be used. I went back and read more carefully myself on the MD Anderson site.



My purpose in posting this particular blog is not to cause a reaction or upset anyone who may disagree with what I am writing. I just feel that there is signifcant reason to believe that the registry will be doing… Continue

Added by Kelly on June 1, 2008 at 12:30pm — 5 Comments

Help find the cure

Have you registered on the Alopecia Registry? http://www.mdanderson.org/departments/alopecia/

It will help MD Anderson with research on the exact causes for Alopecia. It is also possible that you will be asked to go to level 2 and actually partcipate in a research study. I was surprised when I was asked to participate in the research. I am now in that process and would appreciate your good thoughts and prayers for it to go smoothly. I must fill out paperwork, visit a dermatologist and get… Continue

Added by Kelly on May 14, 2008 at 8:00pm — 1 Comment

How/When My Alopecia started (a long one...)

Hello My Shining Ones :-)



I also just posted a video that shares some of this same *long* story....if you'd rather watch than read :-)



In my first blog I said I would share "how/when" my Alopecia started as the story has unraveled itself to me slowly over the years! When I was 7 or 8 years old I realized I was somehow meant to "travel the world, meet my brothers and sisters and spread the message of love." Yes, perhaps an odd thought for a child, but it was something that… Continue

Added by Laura Duksta on March 18, 2008 at 8:14pm — No Comments

Hello My Bald Brothers and Sisters!

Wow!!! What a great site! And how cool are social network sites! I think Alopecia World is using the same system that we just moved my company to www.CoCreatingOurReality.com. If any of you are following along with the New Earth book with Oprah and Eckhart Tolle you'll enjoy our site...come check it out when you get a chance!



But back to Alopecia World...this is awesome! What a great resource and place for people to meet, ask questions and feel a sense of community! I *LOVE* the… Continue

Added by Laura Duksta on March 8, 2008 at 8:15pm — 3 Comments

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