All Blog Posts Tagged 'support' (31)

When Did I Stop Thinking About My Alopecia?

Recently, I found myself wondering something.  When did I stop thinking about my alopecia?

When I first lost my hair, it was impossible not to think about it. I thought about it all the time. Whenever I washed or brushed the strands I had left, when I stared back at the bald reflection in the mirror that I no longer…

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Added by Cheryl, Co-founder on March 9, 2026 at 6:00pm — 4 Comments

A quick check-in — if you’re open to it

I wanted to take a moment and simply check in with everyone.

Life moves fast, and sometimes it’s easy for conversations here to get quiet — but the experiences we’re carrying don’t disappear just because a forum slows down. So if you’re comfortable sharing, I’d love to hear from you:

What’s one thing you wish the alopecia community talked about more openly?

There’s no right answer and no pressure. Just a space to be honest — whether it’s a…

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Added by Cheryl, Co-founder on November 14, 2025 at 10:12pm — 6 Comments

Embracing the Journey and the Challenge Ahead

The "Call to Adventure" in the world of alopecia is undeniably daunting, but it is also a call to self-discovery, resilience, and personal growth. It's a journey that no one chooses, but it can be transformed into a path of empowerment and acceptance. As you navigate the challenges, emotions, and uncertainties that come with living with alopecia, I leave you…

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Added by Cheryl, Co-founder on October 3, 2023 at 6:42pm — 1 Comment

The Power of AlopeciaWorld.com: Finding Strength and Encouragement in Like-Minded Connections

Hey there, fellow members of Alopecia World. Today, let's talk about the importance of our community and what it means to us.

 

Living with alopecia can be incredibly isolating and challenging. But by joining Alopecia World, we have found a place where we can share our experiences, struggles, and victories with others who truly…

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Added by Cheryl, Co-founder on March 12, 2023 at 4:30pm — 3 Comments

NAAF Webinar: Identifying Bullying and Standing Up to It Safely

"IDENTIFYING BULLYING AND STANDING UP TO IT SAFELY"

Thursday, August 25, 2022 - 4:00 PM PDT / 6:00 PM CT / 7:00 PM EDT…
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Added by Cheryl, Co-founder on August 6, 2022 at 9:45am — No Comments

Steve 2.0

Hi everyone,

I am new to this site as off yesterday but not new to alopecia unfortunately. I am a 24 years old male, currently living in the highlands of Scotland and I have had alopecia for roughly 6 years now. At first my alopecia started off as AA and then slowly developed over to AT where it currently still sits. I have had patches off slight regrowth but nothing major. Currently I have lost about 90% off my scalp hair, 50% off my eyelashes and my eyebrows are roughly…

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Added by Steve on August 10, 2015 at 3:30pm — 2 Comments

Your presence may mean far more than you think

Recently, a mother whose beautiful young daughter has alopecia said to me, "I always tell my daughter that you are her twin. I tell her when she grows up, she's going to look like you."

The emotions that statement elicited in me were very strong: I was honored and extremely humbled.

Our reach as alopecians is far beyond us. We may be just living our lives and, at the same time, encouraging a neighbor, a person on our morning commute, or perhaps someone we least…

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Added by Cheryl, Co-founder on July 31, 2014 at 12:00pm — 10 Comments

I'd like to offer support for anyone!

Anyways long story short AU since 96. So I've been through a whole lot. I found myself to be a strong person and AU has never really stopped me, the people I've met here tells me they wish they had my spirit.

Feel free to message me I do check this quite often.

 Remember you are not alone!

Added by Nammer on July 16, 2014 at 12:00am — No Comments

Alopecia Mommy

Hello Alopecia World!

I'm a new mommy (two babies under 2 years old!) and I started losing my hair shortly after a minor car accident while I was pregnant with my son. I gave birth to my daughter last summer and experienced about 90% hair loss following delivery.  I'm curious if there are any other moms out there that have had this happen to them?  Or anyone that struggles with alopecia and wants to share...

I started writing on wordpress:…

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Added by alopeciamami on November 18, 2013 at 1:02pm — No Comments

Celebrating three years of liberation

September 3, 2010... this was the year that I took the first steps to liberation. Liberation from myself, liberation from disease and liberation from society's perceptions of what I should look like and how I should be. This date was the day that I shaved my head. 3 years ago I did the one thing that I never thought I would have the courage to do. I picked up a pair of clippers and shaved what remained of my hair. Alopecia Universalis had taken most of it and I finished the task. Its…

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Added by Bald and Fabulous AKA Terri on September 2, 2013 at 8:30pm — 2 Comments

New Jersey group

i know no one with alopecia nd would like to meet some ppl

i stood talking to alot of ppl i thought were

my friends i got very depressed when my hair started to fall

out nd after a while those ppl who o thought

were my friends stopped wanting to hang

around me cause i was going bald

how immature was that smh some days im feeling high nd some

im very low...i just want to meet a few ppl that know what im dealing

with

--------------

AW: For…

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Added by butta on August 26, 2013 at 8:30am — 1 Comment

Nominate your Hairy Hero!

Is there someone in your life that has loved you and accepted you even though you were bald from Alopecia? If so, nominate that person as a Women Behaving Baldly Hairy Hero! Visit us here to submit your nomination.

Added by Laura Hudson on March 20, 2012 at 9:00pm — No Comments

It's OK. You are OK

Driving home tonight from work, something struck me. For the first time since I was first diagnosed with alopecia at the tender age of 8(28 years ago) I can actually feel the emotional scars fading. No longer do I feel restricted or ashamed of having alopecia. Yes the scars will always remain but fading they are. From all the years that I hid having alopecia, from the shame and embarrassment I felt, the lack of feeling "normal" or even "beautiful" and feeling totally alone. Of doing the…

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Added by Bald and Fabulous AKA Terri on February 19, 2012 at 8:00pm — No Comments

Speaking to students about alopecia

I am asking any of you who have decided to give speeches to schools or classes...what questions usually come up? What information do you include in your presentations? I am thinking of doing this, as an alopecian since 1963 and as a teacher now...I think I can help.

Added by Tallgirl on December 28, 2011 at 6:00pm — 3 Comments

A Year in Retrospect

I just wanted to start off by saying I wish everyone a very Merry Christmas.

Looking back on the year pass, I amaze myself by how genuinely happy I have been. Yes I still have bad days but dont we all? And yes I still have hair memories. But how can you not when you see commercial after commercial with hair flipping all over the place. We definitely need to see some fabulous bald ladies in commercials. But during those moments I just rub my smooth head and I feel better.…

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Added by Bald and Fabulous AKA Terri on December 19, 2011 at 9:20pm — No Comments

A step in the right direction

Wow so much has happened this summer. My first annual alopecia event that I put to together in my city was a wonderful success. I met many people within my city that also have alopecia. Adults and children. Many of which knew nothing of this wonderful site and all you wonderful people here. It was nerve racking to step out in front of the audience at the baseball game and tell everyone why I was here. And it happened all so fast. My plan was to walk out and tell everyone why I was here and then… Continue

Added by Bald and Fabulous AKA Terri on September 8, 2011 at 8:00pm — 11 Comments

Alopecians...do NOT boost your immune system!

Several months ago, I decided to start taking Zinc for my Alopecia Areata, thinking it was a good thing to boost my immune system. After probably a couple of weeks on the Zinc, I began to wonder if this was a good thing to do, or not. Well, at this years NAAF conference, what I began to suspect was confirmed. DO NOT take Zinc, or anything else to boost your immune system!!! Your immune system is attacking your hair follicles, thus, boosting your immune system only aids in what is causing your… Continue

Added by Diana Carter on July 2, 2011 at 1:35pm — 8 Comments

Crazy times!

Lately I have been so overwhelmed with finals and work that I haven't really taken some time for myself.



Its like, we work so hard to find some things in life that we forget about the little things. I have definitely taken for granted some things lately but, with hard work comes success. Other times, when you work so hard for some things, others just happen to come along, and are given to you. This is an excellent example:…



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Added by Kylie Bamberger on May 27, 2011 at 9:00pm — 5 Comments

Join the newly formed 'Single Parents with Alopecia' group!

If you are a single parent diagnosed or treated for Alopecia, who has school aged children, join the Single Parents With Alopecia Group to hear others stories, share your own, vent, seek emotional support, get or give tips & advise, encourage others, make friends, or at the very least realize you're not alone.

If you plan on joining, you may choose to reply to this blog so others on this site will know!

The body follows the mind,

Elizabeth

=)

Added by Elizabeth on November 18, 2010 at 8:00pm — No Comments

My first alopecia meeting

WOW!! What a blessing! My first meeting was today, and it was amazing! I got to meet lots of new friends, and there were Alopecians there from children to adults. Our guest speaker was Tracey Casey-Arnold, an Alopecian for 36 years, since the age of 6, who has her own business called Whatever It Takes. She recommended a book to us called 3 seconds, and spoke of how it takes 3 seconds to fuel your passion. We need to all find what our great passion is, and to embrace it! We can all change… Continue

Added by Diana Carter on November 14, 2010 at 12:03am — 8 Comments

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