Sometimes I feel like a fake. I try to present myself to other people as someone who is strong and in control of the situation. I see hundreds of people each day who I know has their own struggles to deal with and sometimes I forget my own. I do not realize that my spots might be showing or that someone could be staring. I come onto this site and I look at all the pictures and think to myself that everyone is so beautiful. I saw a girl with Alopecia and I cried at her beauty and strength.…Continue
Added by Natasha Gehrke on February 29, 2012 at 2:00am — 4 Comments
I 15 when I woke up with no hair.
I went to bed and it was all there I am sure of it.
I sometime think maybe it was never there to begin with.
And no tears was shed.
Because I believed at 15 that it will be back soon.
I was not sick I felt fine so then there is nothing wrong, so it will be back I just have to wait………………
At 15 I woke up with no hair
Added by Rashedat on February 28, 2012 at 5:00am — 1 Comment
Hello everyone. I am now just six weeks in to being diagnosed with Alopecia Areata. I am working on accepting what is happening and the possibility that the hair I once had and loved might never return. How do you prepair for something that might be just fine but then again might not? I wish I could just see into the future and find out what is in store for me, you know? I feel like my hair loss is moving really fast. Two months ago I had normal thick hair and now it is thin and I have 4…Continue
Added by Anne Emm on February 27, 2012 at 10:03pm — 6 Comments
It's been almost a year since I've been on here. There wasn't much to report. My hair was growing in and no spots of hair loss. I even wondered if I really had alopecia areata, maybe the doctor was wrong?!? Well, now the itchiness and the painful areas on my scalp have started again. I have some thin areas--the beginnings of spots, I think. Trying not to stress about this, but that is easier said than done.
Added by Michelle on February 27, 2012 at 11:30am — No Comments
I have alopecia universalis
I am 24 years old
And my name is Natalie
My life changed in 2010 when I watched my beloved Pop (Grandfather) fight his battle against CANCER.
I had alopecia areata at this time.
During the time I spent with my Pop, by his side in his hospital bed I completely lost all my hair.
My Pop encouraged me to accept my alopecia and live life to the fullest.
I will never forget the day I went to the hospital and I said to him “ I look…
Added by Natalie Martin on February 27, 2012 at 4:04am — No Comments
Do you guys ever feel heart broken are alone in this world are maybe its even lonely because no one acutally gets what we are going through.. Iv been told Im too emotional when it comes to things because I care too much but really is that so bad? I was happy for a while I had almost all my hair back and now that all this stress is in my life every time I take a shower I have hand fulls of hair and I just cry and cry. I go out into public with a smile on my face and just pretend everything is…Continue
Added by Izzy on February 24, 2012 at 8:53pm — 19 Comments
Well I am three weeks into loosing my hair. I have Alopecia areata I think maybe I have lost over 50% with most of the patches on the back of my head a very top. I am unable to hide it anymore so I have been wearing a wig.And yes I feel so self concious in it. Yeterday it was windy so I had to worry and wonder if if was going to blow off. Luckily it did not.
I dont understand this whole alopecia areata, I thought you only loose patches. A few more weeks of this I will have very little…Continue
Added by Klo on February 24, 2012 at 8:44pm — 5 Comments
Me and me 2 girls were in the car on the way home. I had my wig off in the car. I drove up to the house and my 6 year old noticed my husband had a friend over. My 6 year old says, "Oh hurry, put your wig on". I said no I don't have to. Then my daughter says, "Oh it's so gross". I told my child that there is nothing wrong with my bald head. I told her I am fine the way I am and I am a beautiful child of God! Someday, when she is about 25, she too will lose the rest of her hair. I hope she…Continue
So, I am officially a member of Alopecia World....Just recently, Alopecia invaded my world.
It was a Friday, right before Christmas when I began complaining that my head felt sore (like it had been up in a tight ponytail). A few days after Christmas (Tuesday), I noticed an excessive amount of hair come out when I was rinsing the shampoo. The next day I noticed a single bald patch on my part. Thursday, when I was rinsing my hair, a CLUMP fell with a splat and I screamed for my husband.…Continue
Added by Michele on February 23, 2012 at 1:00pm — 18 Comments
So I just started college and for the moment I'm wearing my wig full time (cos its gorgeous and short and its a little easier to get to know people). I plan to wear my scarf after a few days so that the alopecia card is introduced early. But I think I've met a guy who may become more than a friend. I don't want to scare him off, but i really don't like the idea of hiding my alopecia. I was wondering how other people handled similar situations or any advice?
(And yes, I know the whole…
Added by Georgia Gardner on February 20, 2012 at 9:00am — 9 Comments
By no means beautiful.
I am not 99% of the people out there.
Then again I never was.
No one ever is.
By mistake or design.
While all of the in betweens have always been hard.
I am still here
While my body can't express the thoughts of this world
My mind still lives there.
In what could have been.
Added by David on February 20, 2012 at 1:00am — No Comments
I'm so terrible about updating on here. I know last year I said I started losing hair again, which I still am but on the bright side it hasn't progressed much further. I still avoid gluten because now I get stomach pains along with an ill feeling when I do eat it. Plus, I just feel better. My experience in uncovering the effects of what we eat affects our bodies has been a huge journey for me and I will continue to eat healthy to avoid gluten, processed foods, large amts of sugar, and stay…Continue
Driving home tonight from work, something struck me. For the first time since I was first diagnosed with alopecia at the tender age of 8(28 years ago) I can actually feel the emotional scars fading. No longer do I feel restricted or ashamed of having alopecia. Yes the scars will always remain but fading they are. From all the years that I hid having alopecia, from the shame and embarrassment I felt, the lack of feeling "normal" or even "beautiful" and feeling totally alone. Of doing the…Continue
Added by Bald and Fabulous AKA Terri on February 19, 2012 at 8:00pm — No Comments
So my hair loss is getting worse and worse by the day and I am thinking about just shaving it all off. the hair does nothing anyway and is disgusting. do you think that you feel better once the hair is gone and you dont have to deal with it anymore??
Added by Jill Casaldi on February 19, 2012 at 3:20pm — No Comments
Yesterday at work I had to stay late to help unpack some new mannequins that we had received. So, at the store I work at our mannequins wear wigs.. and I thought since the store was closed it was the perfect opportunity to try one on! Hahahaha, it was just for fun, I would never actually wear a wig. But me and my co-workers sure got a kick out of it. :)
PS: My eyelashes are growing back!…Continue
Added by Erika Vincent on February 18, 2012 at 11:49pm — 6 Comments
My daughter got AU at age 4 and lost all hair until we started her on probiotice at age 5. Then it almost all came back, and has been back and forth since. She probably has 30% now.
It seems to be going in the wrong direction right now. So we're adjusting her brand/dose. Has anyone else had luck with probiotics?
Added by Dean on February 17, 2012 at 10:41am — 8 Comments
I looking to purchase a wig. Is there any wigsite/ stores that sell wigs for black women?
Added by Angie on February 16, 2012 at 7:00pm — 13 Comments
rather excited that i stumbled on this site i have been struggling with my AA for awhile now. nice to see people coping with it! i have actually only met one other person with alopecia. a young boy who was a fan of my band. hearing his story was really grounding for me. made me understand im not alone in what im going through. his strength really was inspiring. well i hope to meet many more people and get some support and hopefully give some in the process!
Added by Jack Kelly on February 15, 2012 at 5:34pm — 1 Comment
I've had AA for the past 25 year on and off. In 2004 my hair started to fall out again and I have not had a full head of hair since. In 2009 I had to start wearing a wig to cover up the spots. Last year I was pregnant and was hoping that would help with my hair. During my pregnancy it was at a stand still. Balding areas didn't grow and hair I had didn't fall out. Now over the past month (3/4 months postpartum) it has been falling out in clumps. My scalp even hurts to the touch. I won't let…Continue
Added by Katie B on February 15, 2012 at 12:53pm — 3 Comments
I've started back at my gym!! At first I was very, very timid. The hat I wear is from Lululemon and like normal ball caps it has a gap at the back where you adjust it. So, the whole gym can see my bald head (with the strands of hair that's left on my head). I'm onto week 2 and even though I get stares ALL the time, I could care less! I feel great. I'm not used to going to the gym decked out in makeup, but I am way more confident to face the world with my brows penciled on and my liner…Continue
Added by Amanda on February 15, 2012 at 12:30am — 5 Comments