April 2011 Blog Posts (94)

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Head designs for a bald guy

I was reading the Jewish Chronicle the other day and there was an article about a man named: Philip Levine. Since going bald he decided to use his head as a canvas for art. I really like this idea! He has a couple of websites, so check them out:

http://www.headism.co.uk/
http://www.philsays.com/

Added by Vicsta on April 23, 2011 at 7:33am — 18 Comments

Cool story of a famous bald guy logo ;-)

Valve bald guy logo Recently, a Redditor wrote Valve Software Company to inquire about the bald guy in the Valve logo pictured here. The Redditor got this really cool response from Ray Ueno:

I worked with Gabe and team to develop the "guy in the logo" back when we first named the company, Valve (circa 1995/6), and…
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Added by rj, Co-founder on April 23, 2011 at 3:00am — 7 Comments

many good friends

please feel free to add me on facebook at lisa lynn marin ilongbottom would love to see some of you there no need to post bld picttures but it;s nice to add some good friends

Added by Lisa-Lynn Marini on April 22, 2011 at 11:08pm — No Comments

Please read!

I just wanted to thank-all of you for all your support wether sad, wether happy, I am so happy to be apart of AW, i've many of you wo have the same problem as myself,Some painful stories and some stories of hope and have at times given me the courage to go on and deal with my allopecia.
I just wanted to wish each and everyone of you a very wonderfyl Easter!!
I love yo all
<3 Lisa

Added by Lisa-Lynn Marini on April 22, 2011 at 9:07am — 1 Comment

And I wonder why my hair keeps falling out

So the last time I blogged I was 3 months pregnant and my hair had started to fall out again. Well it decided to do that wonderful thing that alopecia areata does and grow back and give me hope. At one point it actually started to get really full and thick and i had no spots. Then my little pumpkin was born (Hailey Darlene Burley-Heslop Oct 31st, 2010 thats why we call her our pumpkin 8lbs 13oz she was a big pumpkin lol) and then i noticed the back of my hair line started to creep up and up and… Continue

Added by Danielle on April 21, 2011 at 11:00pm — 9 Comments

My Alopecia Story

Last year I was diagnosed with a mixed Scarring Alopecia. Alopecia is just a fancy word for hair loss. This is an extremely rare condition. There are many different types of Alopecia (including male pattern baldness) and they are further categorized into scarring and non-scarring.



Without medication my symptoms are a bright red inflamed scalp, dry flaky lesions, prickly pear itching,, patchy areas of pustules that burst and drain. and areas of tenderness all over my scalp. It is… Continue

Added by Jana Hartley on April 21, 2011 at 11:17am — 5 Comments

If Alopecia World is important to you, then here's what we need from you

Dear Member,

Alopecia World has become an invaluable resource to the alopecia community because of the contributions of each and every one of its members.

It is you who provide the kind of information, inspiration and interaction that draw alopecians from around the world to our beloved community and keeps them coming back for more.

Therefore, Cheryl and I are grateful beyond words for your positive presence on AlopeciaWorld.com and hope that you will increase your…

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Added by Alopecia World on April 20, 2011 at 9:30pm — 9 Comments

a pleasant day today !

So I went to my usually psychiatrist today, he put me on better meds to help me cope with my depression over hairloss. I told gim how insecure I am answering the door in my turban or for everytime someone sees me I have a total different wig on you know what he said to me," WHO CARES it's none of their business why you do those things, you are who you are and you neeed to be happy about that.

As we said goodbye he gave me a hug which normally never happens, but he did and told me "hang in… Continue

Added by Lisa-Lynn Marini on April 20, 2011 at 6:42pm — 9 Comments

Need some advice please

On my profile I've added some wig photos of myself and could really use some opinions as to which one looks better, I will not take offense to any comment but it does help to know . Thank-you all for taking this time to helo me out
Lisa
have a great day:)

Added by Lisa-Lynn Marini on April 20, 2011 at 10:00am — 15 Comments

Loving every minute of it!

Yep, I'm a bald and I love it! I don't feel like I'm hiding some secret any longer. Well...with hairloss I wasn't really hiding anything, I was ignoring a problem that was right in front of my face in hopes that nobody would notice. Anyway, I digress. I am bald, I am happy about it. I still wear a wig to work and church. I am afraid that it would be career suicide at work, I work in management so I think I'll keep on wearing the wig there. At home I am a free bald bird. I haven't been "out" as… Continue

Added by Aunt Janet on April 20, 2011 at 2:30am — 11 Comments

Posted bald pic on Facebook

Well I just changed my profile pic on facebook. Bald, for all to see. Why? I was sitting here after a challenging phone call by my daughter thinking of the trauma she has lived through and is still going through and by association my hb and I as well when suddenly my hairloss didn't seem important anymore. Why am I hiding this? A lot of people I know know I'm bald. I gave a whole speech on it for god's sake to a crowd of people, some I associate with regularly. I outed myself publicly. So...… Continue

Added by Pat on April 20, 2011 at 2:26am — 14 Comments

Happy yesterday, sad today

I sure wish there was something magical to make me happy, I feel as if there is no hope.

I couldn't get over how happy I was yesterday and BANG!! today I am completely opposite.

I wish they would find a cure for alopecia, just like they are trying for cancer patients, heart and stroke foundation why the hell isn't it for alopecia?? makes me so angry.

I found it so hard to even get out of bed in the mornings and night time is my favorite time of the day, cause im going to sleep an… Continue

Added by Lisa-Lynn Marini on April 19, 2011 at 8:00am — 14 Comments

Got a cell phone? Use it to send photos and videos to Alopecia World

Sharing photos and videos with members of Alopecia World just got a lot easier!

A unique "Add By Phone" email address has been assigned to your profile on Alopecia World.

You can use this address to send photos or videos, one at a time, to Alopecia World.

If your mobile phone has a camera and email, this is a great way to add photos or videos to Alopecia World while on the go!

To find your Add By Phone email address, logon to Alopecia World and click the…

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Added by Alopecia World on April 19, 2011 at 7:00am — No Comments

Mother Teresa

Life is beauty; admire it.
Life is bliss; taste it.
Life is a dream; realize it.
Life is a challenge; meet it.
Life is an opportunity; benefit from it.
Life is a duty; complete it.
Life is a game; play it.
Life is a promise; fulfill it.
Life is sorrow; overcome it.
Life is a song; sing it!

Added by Tallgirl on April 19, 2011 at 1:30am — No Comments

Is it worth going bald for 'good hair'?

So asked the The Grio in this article. But what do you think?

Added by Jera on April 19, 2011 at 1:29am — No Comments

WOW I needed that!

Had a fantastic weekend this past Saturday night. One of my dear Friends is a musician and she was making her debut on Saturday at a dance in the city. A bunch of my BFF's and I went to support her and I must say she was fabulous...

I went all dressed up with one of my fabulous scarves on my head that I absolutely love. My BFF said to me that I should make my bald debut as well but couldn't gather up the courage...not yet. We all went out and had a fabulous time. I had a woman approach me… Continue

Added by CATHERINE on April 18, 2011 at 7:17pm — 1 Comment

For Everyone!

For the many of you who have commented on my blogs, I have felt some btter adat times I read them ovr and ovr for some self confidence,,ty all veryy much and I hope your all havng a gorgeous day!'
Love you all

Added by Lisa-Lynn Marini on April 18, 2011 at 6:42pm — No Comments

My first "Gentleman"!

So I go out to dinner with my husband last night, after returning from a visit with my sister in New York. We go to our usual diner. I was wearing a cap which is like a conductors cap in that its short around my head, not like a baseball cap that covers you all the way.



The waitress that usually waits on us came up from my side and said "Good evening gentlemen", and I turned around and looked at her. I was wearing lipstick and I said "well, if I take my hat off you'll get to see what… Continue

Added by Lili Añel (aka Eulalia) on April 18, 2011 at 4:47pm — 9 Comments

Itching

Hey guys. Just curious on everyone's level of itching. My head itches like CRAZY when the hair falls out. normally skin itches when hair grows in right? Anyone know why?
I stopped going to the dermatologist after 4 rounds of injections. I felt it did more harm than good for me. I am not a fan of chemicals being blasted into my head and it didn't seem to make the hair grow back. but doctorless, I'm left with a ton of questions about this condition.

Added by Lindsay on April 17, 2011 at 12:27am — 5 Comments

My New Look

I have gotten to the point where I was frustrated with my hair. It was getting more and more difficult to hide my holes. My pony-tail was about half the size it once was. I would have cut my poor scraggly hair months ago but I wasn't sure what to do about it. So I decided to bite the bullet. On Wednesday I went wig shopping and found something that looks like me. Who knew red highlights were my thing^^; Then last night I had my hair cut really short. Now as my hair falls out it will be much… Continue

Added by Cynthia Smith on April 16, 2011 at 1:55pm — 4 Comments

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