April 2013 Blog Posts (39)

WOMEN BEHAVING BALDLY IN LONDON APRIL 24- 28TH!

MARGARET WILL BE IN LONDON ON BUSINESS APRIL 24TH-28TH AND IN OXFORD 29-MAY 1ST. FOR ANY WOMEN WHO ARE INTERESTED IN BEING INTERVIEWED FOR WOMEN BEHAVING BALDLY. PLEASE EMAIL: WOMENBEHAVINGBALDLY@GMAIL.COM

Added by Margaret H Baker on April 14, 2013 at 2:54pm — No Comments

Pulse steroid therapy

I am recently diagnosed with alopecia universalis.

Can't stand the 2 month's stress....and my derma (one of the top docs in mumbai city) has put me directly into following regimen so that I get a good chance0 (possibly) of getting my lost pride.



1. Dexamethasone 100mg three days pulse therapy ( 3 hours slow i.v infusion for consecutive days in dextrose)

2. Oral pulse steroid every week ( 5 mg dexa) for 6 months.

3. Azithioprine 50mg everyday for 6 months.

All… Continue

Added by Mumbai on April 14, 2013 at 12:00pm — 5 Comments

First time I've ever spoken to a classroom of strangers about my hair

I am a freshman at a New Jersey State College. I enrolled in an acting course and I was given an assignment that really helped me open up about my condition. We were each given a poem and we had to write an essay about why we would have written that poem today. What would have inspired me to write this? The poem is called Phenomenal Women and after reading it a few times, I knew that writing about alopecia would be my best option. Here is the link:…

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Added by Kate Jean on April 11, 2013 at 1:00pm — 9 Comments

Leaky Gut

"All disease begins in the gut.

- Hippocrates

Hippocrates said this more than 2,000 years ago, but we’re only now coming to understand just how right he was. Research over the past two decades has revealed that gut health is critical to overall health, and that an unhealthy gut contributes to a wide range of diseases including diabetes, obesity, rheumatoid arthritis, autism spectrum disorder, depression and chronic fatigue syndrome.

In fact, many researchers (including…

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Added by Felicia on April 11, 2013 at 10:07am — 1 Comment

Frustration in coping and covering up

Hi, my name is Jerrod I am 28 and have been dealing with alopecia areata for about 1 1/2 years. It started with just a small patch of thinning hair that was not noticeable to anyone but me. A few months after I noticed that small spot I was getting my haircut and my barber noticed the patch, which was larger by then and totally bald, he told me about alopecia.

Since then I have been doing my best to hide the bald spot in hopes of spontaneous regrowth. However, the affected area has…

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Added by husker1984 on April 11, 2013 at 12:59am — 4 Comments

Silly women!

Another silly comment about my head / hair / lack of! At a course for work today and getting a cup of tea at the registration part of the morning. Woman walks right up to me "Are you on the chemo?" My colleague beside me said later that she was go smacked!! I said that thankfully i wasn't and that my immune system is over active not allowing my hair to grow properly. Oh, she says and pours a coffee!! She was fortunate not to get my tea over her head! Then her equally silly friend pipes up,… Continue

Added by Jules on April 10, 2013 at 3:00am — 11 Comments

Student with fear of heights will skydive to help alopecia sufferers

According to an article in The Bolton News:

"A UNIVERSITY student with a fear of heights has just signed up to jump from an aeroplane at 12,000 feet.

Twenty years-old Joe Slack from Westleigh is doing a sponsored skydive on May 11 to raise fund for the support group (Bebold.org.uk) that has done such a lot to help his younger sister, Kim, who…

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Added by Cheryl, Co-founder on April 10, 2013 at 1:36am — No Comments

People amaze me

Today I signed up for a gym membership and the only reason Im saying anything about it is because something funny happened. I was changing directions of the machine to do the other side of my body and this guy comes running over to help me. I had it under control and he said to me "How long have you been fighting the good fight." It took me a couple of seconds to figure out he thought I had Cancer. I responded but saying I don't have Cancer it's Alopecia and it fell out about a year and a…

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Added by Sheena Tha Cody on April 9, 2013 at 10:00pm — 7 Comments

Love this quote. Don't know who said it, but I love it

Changes are part of life. Instead of fighting it, embrace it. Sometimes, it can be the best thing that ever happened. Just breathe, and keep moving forward.

Added by Sheena Tha Cody on April 9, 2013 at 10:00pm — 1 Comment

Final getting comfortable

It's been a long while since I've been on here last.

I just find myself on here when I need to talk about something no one else could understand. Now a days I've been writing in a journal but sometimes I wish I could get a response to what I write in it.

So I came back here. Here is the most comfortable place, the place I can be who I really am and people understand me. Dealing with this for such a long period of time you figure I'd be use to this by now. I mean I am but there are…

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Added by Julie on April 9, 2013 at 9:00pm — No Comments

Mistaken for shaving for Cure for Cancer

Quite a few people have now stopped me in the street, asked me in shops or public places if I have shaved my head through choice for Cure for Cancer.. I hadn't even heard of it so it was a surprise at first but now I am ready for it! It still surprises me that people would think that a girl has gone bald by choice! Maybe some others have had the same experience?! I don't mind people asking at all really and so far it has been followed up with a positive comment like, "Oh well you suit it.." but… Continue

Added by Jules on April 7, 2013 at 5:17am — 8 Comments

Alopecia's crazy, come-and-go, asymmetrical, unpredictable nature is like _________________.

Fill in the blank. Get creative. I'll post the ones most appropriate and fun for this site. Sometimes, ya just gotta laugh when you are tired of the tears.

Mine: ...the reverse of parasitic mistletoe clumps that attack bare winter trees.

Added by Tallgirl on April 6, 2013 at 12:30am — 4 Comments

Swapped clippers for a razor

Tonight he clippers became useless. Hardly any hair patches to clipper down and even without the guard it is not short enough - crazy! So back to the razor.. unreal to think that 6 months ago I had an awesome short pixie cut.. ah we'll, make the most of that we got I guess!!

Added by Jules on April 5, 2013 at 7:14am — 2 Comments

Exercise hats 101

Hi Alopecia Friends:

For a long time, I have been searching for exercise hats to wear to cardio karate and yoga classes. Yesterday, I tested the CoolMax exercise hat and the Madison exercise hat. Both stayed on during my classes, including jumping jacks, bending down to touch my toes, and the downward dog yoga pose. I am not sure how well the hats will stay on when I do martial arts falls yet.

Basically, there are two kinds of exercise hats: beanies/turbans and bandana wraps.…

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Added by Brandy on April 4, 2013 at 12:00pm — 4 Comments

One last try with medication

I have tried oral steriods, steroid injections, and topical foams since being diagnosed with Alopecia Totalis about 2 1/2 yrs ago. I had about 95% regrowth on my scalp after the combination of olux and rogaine, but no success with the first two items. But, within the year, all the growth fell out. I often wonder whether my hair would have grown without the aid of medication. Who knows. I am now Alopecia Universalis.

I have come to accept that this disease is highly unpredictable. Yet, I…

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Added by Yellow Daisy on April 2, 2013 at 7:49pm — 10 Comments

Ugly

I was diagnosised with AA about a month ago I started injections today, I feel so depressed and alone I feel ugly I hate looking at myself in the mirror I hate spending 20 extra mins to do my hair to use make to cover the patches or comb it a certain way to make them less visible every person I talk to I feel them staring at the patches on my head I feel like a monster I'm tired of everyone saying at least your a guy, like that's suppose to make me feel better like its okay for me to lose my… Continue

Added by Marcus on April 1, 2013 at 11:05pm — 2 Comments

Abandoned - nervous breakdown

I wrote in my prvious blog about what has and is happening to me. I received a few comments, but I have not heard back from anyone since which has saddened me very much.

These last days for me have been the worse of nightmares. My family has now abandoned/turned their back on me during my time of great need. I am all alone facing this now, my job is on the line. I do not know where to turn, or what to do. I have no one to talk to. I cannot stand to look at myself in the mirror. I am…

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Added by suffering on April 1, 2013 at 9:45pm — 13 Comments

So sick of ...

I am so sick of my mom treating me like I am sick. I moved back in with my parents for a bit after college and now I'm ready to leave, but she constantly shoots me down whenever I mention. When I ask her why, she tells me it is because I am "sick." I cannot figure out how to explain to her that no I am not "sick." I have an autoimmune condition and that if this is making me "sick" then I'll be sick for the rest of my life?

It's irritating. No matter how hard I try to explain to her…

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Added by MaddiiBoo on April 1, 2013 at 10:24am — 9 Comments

First time here!

Hi... diagnosed with Alopecia when I was 5 then by age 12 i had lost every piece of hair on my body and scalp. I did not have any regrowth till age 17 and only then it was only my scalp! I will be 28 in 28 days and to this day i stil have no hair on my body anywhere.Just on my scalp and I have about 65% of that. no faciacl hair either. I understand how turamatizing the situation for a young girl to have hair then none! But today i can Thank Jesus for Alopecia it has made me a very strong…

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Added by tiffany muela on April 1, 2013 at 5:57am — No Comments

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