Featured Blog Posts – May 2009 Archive (75)

Wig help please

So im 16 years old and i finally decided that i want a wig. Im having trouble finding a place to get one. Can some one give me some advice were to getr one. I have a wig already but i didnt really get to pick it out. my mom and the wig lady basically picked it out and ignored what i said on it. I really dont like that wig either.

Added by lauren on May 31, 2009 at 9:30pm — 4 Comments


Hi :)

This past week I have come to realize;


b. Yes, my hair (Or lack of rather) looks odd


It has taken me a very long time to say that. when I was 6-10 all I wanted to do was keep my hair, then it fell out. 10-16 I just wanted to fit in with a natural looking wig and have no questions asked, it didn't work. 16 upto now I've kind of been a in a bit of a void, not really sure if I was comfortable… Continue

Added by Lizzie on May 31, 2009 at 6:41pm — 3 Comments


This is really hard for me to go thru without my husband to hold me hand. See he was turned into immigration and deported 5 months ago. I didnt start losing my hair until about 3 weeks ago. I still see him everyday on webcam and i can hear his voice thru conference call. But its not the same, I cant touch him, he cant hold me the way I need him to. He cant kiss me on my head and tell me that everything is going to be alright. All I want now is to sleep and only wake up when my passports get… Continue

Added by Kristen Viveros on May 31, 2009 at 10:08am — 2 Comments

I am loosing my eyebrows!

I am totally freaking out now. I just noticed this morning that my eyebrows are falling out! i knew it would come to this but its happening so fast. I have been crying all day.

Added by Kristen Viveros on May 30, 2009 at 4:31pm — 15 Comments


Wow, I am feeling great! I just got back from participating in a Cops for Cancer event and yep... I have shaved my head. Well, it's a very close buzz, not razored. And I love it! It feels great to have shed that ugly, thin, flat, good-for-nothing bio hair. :)

Added by Tawny on May 30, 2009 at 4:28pm — 3 Comments

need answers!!

well ive now had hairloss for about 7wks now, and i would like to know if any1 has had problems with there scalp and head while losin there hair,
i have suffered pains in my head on both sides, and also had some headaches, my head is itchy and im still quite tired, has any1 else suffered these or different side affects of hairloss, will be grateful of any comments, thanks,

Added by lynne on May 30, 2009 at 4:11pm — 10 Comments

The Greatest Love of All

I have been listening to alot of Whitney Houston lately, mainly because I feel like I wanted to sing on top of my lungs and Whitney Houston songs are quite fun to sing along to don't you think? haha

I came across the song "Greatest Love of All" and I am sure all of you must have heard of it. It is a classic. When I was young I used to sing it on Karaoke (yes, we asians love our karaoke!) Before you get any ideas, no I can't sing to save my life but it feels good to burst out in song… Continue

Added by Salmezan on May 28, 2009 at 6:42pm — 2 Comments

New Pictures Added

Hi Everyone,

It's been a busy couple weeks and I haven't been on AW in a while. But I thought I'd share a few pictures of the "new me" wearing my wig. We visited some friends this weekend whom we haven't seen since before my daughter was born and they didn't even notice anything different. (of course he's a guy, with sons, LOL)

But I got through the weekend being outdoors quite a bit and even did some canoeing. I am SO happy with my wig, but now I am getting excited,… Continue

Added by Tawny on May 27, 2009 at 10:36pm — 2 Comments

i love this site!!!

i joined this site a few days ago and im already feeling more confident about myself!! i walk to school not caring about all the mean comments people will say to me. everyone here is so understanding and kind.my bff, nicole, tries to help me but she just doesnt understand what i am going through(not that she doesnt give good advice or anything) and special thanks to mary!! i will be on this site almost everyday but not this weekand cause i am going camping(: with nicole. THANK YOU

Added by Nikki Mans on May 27, 2009 at 5:19pm — No Comments

A moment to be proud of!

A few days ago I met up with Margaret, a fellow alopecian who lives in the same area as me. I am originally from Brunei, a small country on Borneo Island, South-East Asia. For those of you who don't know where that is, well it is near Singapore and Malaysia :) I have been diagnosed with Alopecia Universallis since I was 9 months old. My parents took me to see numerous specialists over the years but nothing could be done. However I did start to grow hair at the age of 4, patchy ones at first,… Continue

Added by Salmezan on May 27, 2009 at 1:18pm — 2 Comments

Scientists identify gene that may explain hair loss

I just came across this Reuters article and had to share it. I believe this could be the start of something truly wonderful.

Scientists identify gene that may explain hair loss

Tue May 26, 2009 2:39am IST

HONG KONG (Reuters) - Researchers in Japan have identified a gene that appears to determine cyclical hair loss in mice and believe it may also be responsible for hair loss, or alopecia, in people.

In a report published in the Proceedings of the… Continue

Added by Sue F on May 27, 2009 at 1:30am — No Comments

coincidence or not?????

I am a 57 year old bald hairdresser. I recently have come "out of the closet" with my disorder. I have been fortunate enought to find a collection of realistic wigs and to master the art of glueing and painting on my facial hair. I can't say that i am thrilled about having no hair, but i have always tried to find the bright side to a bad situation, so you could say that i am coping.

Today, I totally by chance came upon 2 new clients who both were suffering the affects directly and… Continue

Added by brenda kay on May 26, 2009 at 10:20pm — No Comments


this is so hilarious!!!! so 4 u 2 get this story i need 2 tell u that ive been wearing a bandana 2 school (im in the seventh grade ) for a week now and everyone new something was up cuz usually were not aloud 2 wear 1 but my mom talked 2 the principal and he let me wear 1 and and thought everyone knew about my alopecia or at least that i was loosing hair but today i girl came up to me and asked if i was in a gang?!? i said of course not and asked her why she thought i was in one and she replied… Continue

Added by Nikki Mans on May 26, 2009 at 8:24pm — No Comments

newspaper interview

Ivonna, another alopecian, and myself were interviewed and photographed by our local newspaper and the article was in today's daily paper. I was very impressed by the size of the article which took up 1/3 of the two pages. We even looked good in the photos - we kept our wigs on but showed a before alopecia photo as well as our present ones. Hopefully it will get some awareness out there. Just this morning I showed the article to a woman at a local coffee shop and she told me her husband had aa… Continue

Added by Pat on May 26, 2009 at 12:36am — 3 Comments

rude people!!!

why do people think they have the rite to ask me why am i wearin a bandana, or why am i lookin like a pirate, how rude and insensitive can people get,

dont they realise how difficult it is livin without any hair, my confidence is at its lowest now, ive had some1 tell me ive put on weight or i look terribly pale, i just want to be accepted for who i am,

im not any different apart from havin no hair, i have feelings and these small minded people dont realise how much it hurts wen they… Continue

Added by lynne on May 25, 2009 at 6:06pm — 7 Comments

hats off!

this weekend i got my first real haircuts since january. my mom had trimmed up the ends a while ago, but this was the first real cut. my strategy was to wait as long as possible to let some of the new growth lengthen before getting a cut, but i could not stand all of the straggle-y hair any longer. so, he shaped it up about as well as he could given what he had to work with. this also meant changing my part (which, as you can imagine, always feels weird) because my hair seems to naturally be… Continue

Added by Paula on May 25, 2009 at 5:03pm — 2 Comments

Gonna Get A Tan On My Head.

I was thinking about how white my head is...lol. So I decided that I am getting some baby sun block and I am going to jump on the trampaline and see if I cant get a little tan on this white scalp of mine... lol. I promise I wont stay out for long... dont want a burn. OUCH!

Added by Kristen Viveros on May 24, 2009 at 7:29pm — 3 Comments

What embarrasses me most...

What embarrasses me most is not that I am as bald as an eagle, but the way that I've handled it over the years.

I mean...it is JUST hair...whenever I fail to make a big deal of it, the rest of the world follows suit.

I met a girl once who is stark bald, and never - ever wears a wig. She is probably the most beautiful and fashionable girl I've ever known, and her make-up is always picture perfect. When someone asks her why she doesn't have any hair she just smiles and… Continue

Added by Jackie on May 24, 2009 at 3:30pm — 8 Comments

Getting Past Hurdles

I really want to say thanks to everyone who commented on my last post. You all helped me make a decision I was fighting with. I'm close to the end of an Associate's degree now and as part of one of my classes, I had to go on a mock job interview where the interviewer was the one grading me and part of that grade was on my appearance - was it professional enough. I thought about wearing my wig as this would be the most professional-looking thing to do, but in the end, I chose to go as I am. I… Continue

Added by Kathie Nietenhoefer on May 24, 2009 at 4:09am — No Comments

Totally Me

I am bald, I am bold and I am not ashamed. I go out in only my bandannas. I never wear wigs nor do I ever plan to wear one. I am a very open minded person. I love to show off the new me. I love to make people wonder whats wrong with me. Let them stare because they dont know what they are staring at. I get a lot of sympathetic looks, as though people think I am a cancer patient. But, no one has the guts to ask me whats wrong. People will always talk about someone or something so I say, why not… Continue

Added by Kristen Viveros on May 23, 2009 at 9:27am — 10 Comments

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