May 2011 Blog Posts (96)

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The world can be a strange place

My sister visited for Memorial Day Weekend. Its been very hot and one evening we decided on going out for ice cream.



My sister, my husband and I got in the car and drove to a local ice cream place. We ate our respective ice creams at one of the tables outside of the establishment. I was out without a hat, scarf; it was very hot. I often forget that I no longer have hair. I feel comfortable just being out, in the world, bald.



As we proceeded to get back in the car, I hear a… Continue

Added by Lili Añel (aka Eulalia) on May 31, 2011 at 9:30pm — 4 Comments

May 31 - My therapy update

Went to therapy today and there was obviously a big group again, this time we had a special person in there talking about substance abuse, and guess what I found out?

I overly take my meds and I find it a necessity to have my 3 glasses of wine at night and that means I have a substance abuse even tho i don't do it in the day time but I over take my meds in the day and then i have my drinks at night, so after therapy is over I have to attend a substance abuse program. makes me feel… Continue

Added by Lisa-Lynn Marini on May 31, 2011 at 7:00pm — 4 Comments

Conquered my fear

I finally "came out" so to speak about my Alopecia today to everyone i know.. this is what i posted in my Facebook notes.. the stress of hiding it and everything seemed to make my depression worse, which in turn i always feel tired. I am hoping now I can get back on track =-) Much Love all!



My boys are so self conscious about things, and I am always telling them not to worry about what other people thing, but then I realized, it is my fault that they are like that because I am always… Continue

Added by Amy Evans on May 31, 2011 at 6:00pm — 5 Comments

Change

Hi everyone,



A lot of changes have been made since I was last up here. I am single, but its not because I have alopecia. It took a while to accept myself and the changes my body has been through because of depression. Depression can create more problems and ruin good relationships. Sometimes accepting things that we cannot change and relying on God and others to help us get through the trial will help keep depression at a minimum. I still have those days that I just want to explode… Continue

Added by Shereka Moore on May 31, 2011 at 2:28pm — 3 Comments

Grandmother's prayers

strength comes with numbers and I have witnessed healing and need prayer for my granddaughter who is nine with this weird attack, and thank all of those who bear the same relation with me... I am in small alberta town and my granddaughter lives in a small alberta city where the specialists have gone to larger hospitals,, she needs a specialist who lives closer than 300 km.... I would also like to know if stress is the major dealer of this awful curse???

Added by grandma concerns on May 31, 2011 at 11:30am — 5 Comments

Wig stylist in my area

Can anyone recommend a person in the monmouth county area that cuts wigs? I have a new Freedom wig that needs to be cut.

Added by Kathleen on May 31, 2011 at 10:17am — 4 Comments

Tuesday :/

Tuesday morning really shouldn't have stayed up till 2-30 this morning as now i have to deliver 600 papers not good. Still at least i can get the empire magazine while i am by the shops. It has a 36 page special on Harry Potter which has got to be one of the best things in the world. Time to go do my paper round then :/ have a good day :) xx

Added by velvet on May 31, 2011 at 5:17am — 1 Comment

Does massaging the scalp help or is it just in my mind?

Hey all,

So I don't know it it's just my imagination, but I feel like the more I brush/massage the new hairs on my scalp the thicker they become. I used to always hide my regrowth underneath my wig and rarely ever massaged my head unless I was in the shower. I feel like I'm seeing a slight difference...

Has anyone had experience with this? Also, I've heard using some herbs or oils is good, any thoughts?

Thanks for your continued support!

Jen

Added by Jennifer on May 31, 2011 at 4:44am — 5 Comments

Experiments with Makeup

I have in the past experimented in a big way with makeup (though unfortunately I can’t do this any longer). It started in the early days of punk / new wave, and mainly for when I went out clubbing. Having said that, for about 3 years I used makeup every day. It was a glamorous period.

Once I’d got the confidence to do so, I graduated from a bit of eyeliner around the eyes to something more extravagant. I was inspired (as indeed were a lot of the punks & latterly goths) by Chinese Opera… Continue

Added by David B327 on May 30, 2011 at 3:40pm — No Comments

Bank holiday monday and i am seriosly bored. Its raining so i cant go outside and even facebook gets boring anyone got any good ideas :D x

Bank holiday monday and i am seriosly bored. Its raining so i cant go outside and even facebook gets boring anyone got any good ideas :D x

Added by velvet on May 30, 2011 at 6:00am — 3 Comments

Videos and comment threads, my Youtubes

Made a new wig video recently. Still maintaining my Youtube channel, obsessing over 'insight' and grooming my playlists. Some playlists are so old that some of the videos are gone, deleted or user account closed. I get a decent number of views. I hope my videos and essays help people with the shock of being diagnosed with alopecia, or the dread of realizing that it IS going to progress to Totalis or Universalis from Areata. I want to reach both those women (and men) who choose to go natural…

Continue

Added by Laura Adams on May 30, 2011 at 3:30am — No Comments

The new one to alopecia

So I've finally found some place to talk to people with alopecia and hopefully be understood - Alopecia World:).

Living in a small country with alopecia is hard, not only because people are unaware of this disease but also because even doctors for a long period of time couldn't diagnose me. A lot of websites I found in Lithuania were about how to hide alopecia, how hard it was to have it and how terrible everything is if you have it. Unfortunately I had a different perspective on it and… Continue

Added by Calipso on May 30, 2011 at 3:00am — 3 Comments

Here it goes

So i have not written anything on here in terms of Blog, but lately I have been feeling more and more alone with my alopecia. I was diagnosed in 2007 with AA, and when my first spot ( which I named OScar) started to go away I thought that was the end of it, but since then I have developed another spot ( Ramon), lost my right eyebrow (gretchen) and my left eyelashes (lola). The last couple of months I have seen a quicker rate of hair loss in the front. I used to have side bangs but had to go to… Continue

Added by Gabriela Gonzalez on May 29, 2011 at 8:30pm — 3 Comments

My experience with regrowth and acceptance

Hey everyone,



My name is Jennifer and I have had Alopecia Areata since age 11 (smack dab in the middle of fifth grade).



I am 23 now and have recently experienced surprising regrowth of 90 percent of my hair. To give you the full history, I had been shaving the fifty percent regrowth I had developed gradually so that I could wear a suctioned wig by "Fuller Hair". To be completely honest, I continued to shave it even as I noticed improvements because I liked feeling in… Continue

Added by Jennifer on May 29, 2011 at 8:18pm — 3 Comments

SUCCESS!!

I reached my goal today and went for a walk wit my husband around the block and we did it in broad day light right after dinner, I was hesitant at first due to my social anxiety problem but I grab held of his hand and off we went.
I'm very proud of myself and tomorrow we plan to do the very same thing hopefully soon enough I won't have anxiety attacks and i'll be able to go out on my own .
I've aheived my goal that I set and I am proud of myself

Added by Lisa-Lynn Marini on May 29, 2011 at 8:13pm — 1 Comment

Not again

I'm now dealing with my 6th round of Alopecia Areata in the span of 10 years. However, this time I feel like I've nothing left in me. This shedding of hair comes fast on the heels of my last bout, and I am feeling like maybe this time it's going to all come out. Its rapid pace frightens me.



I don't have the strength to walk around with my shaved head and bald spots again like I did before. I don't have the strength to wear a wig in 80 degree humid weather and sweat like a pig like I… Continue

Added by Violet on May 29, 2011 at 4:00pm — 5 Comments

Right then its sunday i am gettin annoyed now. For no apparent reason i am getting irritated by everthything even if people are sat to close to me. Hopefully it goes soon as i have youth in a bit and…

Right then its sunday i am gettin annoyed now. For no apparent reason i am getting irritated by everthything even if people are sat to close to me. Hopefully it goes soon as i have youth in a bit and i dont want to get annoye there :/. Hope everyone is ok xx Continue

Added by velvet on May 29, 2011 at 10:12am — No Comments

Biggest challenge for me BEGINS

I have set a goal for tomorrow night at 9:00 p.m eastern standard time to start walking around the block with my husband so this way I dont have to deal with axiety cause most people in my complex are in their homes.

The reson for this goal is because I went from a 110lbs to 145lbs. i've excercised at home but it's doing me no good, perhaps its a sign of God to push me out and work on my anxiety so i'm looking forward to my walk around the block with my hubby tomorrow night .

wish me… Continue

Added by Lisa-Lynn Marini on May 28, 2011 at 8:35pm — 4 Comments

Excited!

Today I went to an Clinique Store to get some Eyebrow Powder. I told the make up artist about my Alopecia (so she could help me find the right product) & she was so sweet about it! She offered me to make an appointment next weekend to have my make up done by her, FOR FREE! I'm super excited :) It's going to very interesting to see her do my eyebrows & tell me what looks good me, I'm very picky when it comes to my make up. However though I can't wait. :)

Added by Sophia on May 28, 2011 at 12:12pm — 1 Comment

Woop had a job trial last nite i think it went pretty well as i have been asked to go back tonite. Got paid £20 for last nite and as its a pizza shop we got to eat loads of pizzas on the job so much …

Woop had a job trial last nite i think it went pretty well as i have been asked to go back tonite. Got paid £20 for last nite and as its a pizza shop we got to eat loads of pizzas on the job so much fun. Love it cant wait for tonite :D x Continue

Added by velvet on May 28, 2011 at 6:08am — 2 Comments

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