Featured Blog Posts – June 2013 Archive (22)

Good doctor in the USA?

Hi everybody,
I live in Italy, but I will go to the USA in september to attend a conference (I am a PhD candidate in anthropology).
I have gone to many doctors here, but nothing worked except a corisonic treatment that intoxicated me, many years ago. Do you know if there is any GOOD doctor I could go to in the USA? An expert in Alopecia, obviously.
I will go to Dallas, Washington DC and NYC... Thank you

Added by Cat on June 26, 2013 at 3:30am — 2 Comments


So, I'm tired putting myself out there when it comes to dating! Men in LA are so shallow, you know in life somebody should like me for who I am! it just makes me sick how this guy I met he asked me, and I told him on third date and showed him my head, and he ran but the funny thing he said it didn't matter, its what's in the inside. Sorry Jermey you are shallow and think you are perfect when all you are is fake!

Added by Toni on June 25, 2013 at 12:31pm — 4 Comments

Newbie feeling very sad

Hi I was told about this wonderful site by my friend who's cousin has AA, I have 4 boys and my youngest daughter is 3 has been confirmed as having AA ..... I'm so sad for her she on the other hand is totally unaware of anything !! But I feel like I need to get rid of her repunzal dolls DVDs anything that's going to make her feel that she needs to have long hair to be beautiful :( the thing I'm struggling with the most is the not knowing how bad it will get ? Will she loose everything or forever… Continue

Added by Claire Eadie on June 24, 2013 at 4:34pm — 30 Comments

Loss and growth (how I grew it back)

I have had alopecia areata since this February and in this time I have lost all of the hair on my head. I remember at the beginning the smallest dime sized patched being the biggest deal and freaking out. Looking back I realize how lucky I was to have 95% of my hair at the time. I am 18 and this is my first wave of it. I have had an extremely stressful year and attest my initial hair loss to excessive stress. I now have over an inch of hair all over my head and have little to no shedding…


Added by tree on June 23, 2013 at 9:30pm — 11 Comments

Most dermatologists...suck

I have honestly come to the conclusion that most dermatologists.... suck. No, seriously they are horrible and don't know what to prescribe they just give any type of drugs and hope it will work. Not cool! Today, I actually had to tell me new dermatologist that no, you cannot give me cortisone shampoo while on squaric acid because it defeats to whole purpose of the acid. So, I have come to the conclusion that in college I will study pharmaceutical science and either become a dermatologist…


Added by Sara on June 20, 2013 at 10:30am — 8 Comments

Here we go again

I feel really bad that I didn't keep up with stuff after my regrowth. In fairness I have been in and out of hospital for 18 months with bi-polar and that time was awful, strangely I had a full head of hair throughout all that. But about a week after finishing my uni exams for my second year, which had been deferred whilst I had been ill, my hair has started falling out again. It's been happening for about a week but it's pretty fast like usual.

Luckily I'm pretty ok with it. This is the…


Added by Lyndsey Pitchford on June 19, 2013 at 2:35pm — 2 Comments

Keeping hope without getting too hopeful

I've had alopecia for about 5 months now, not even sure exactly what kind yet ( i'm seeing a rheumatologist soon).

I lost about 40% of my hair, but the last month or so most of it started growing back, i couldn't help but get excited. I had little fuzz covering nearly all my head again. Well the past few days i started noticing smooth spots on my regrowth.

How can i keep from getting too excited when i see regrowth? I don't want to get my hopes crushed, but i also don't want to…


Added by Vane on June 18, 2013 at 1:00am — 2 Comments

Wrong diagnosis

So last week Thursday my dermatologist stated that I had Alopecia Areata for sure but wanted to perform a biopsy just incase. So a week later, which is today, they removed 2 stitches that I received from last week. She came back with my results and I actually have Androgentic Alopecia and Demodex Folliculitis. Which in other terms I had human mites eating at my hair follicules which in turn was making me lose my hair. They issued me a prescription for Metrogel and would like to see the…


Added by V.R.Alva on June 13, 2013 at 5:30pm — 4 Comments

Photoshopped graduation picture!

My daughter just graduated from elementary school for handicapped children, but she has Down´s Syndrome and has had Alopecia Universalis for 5 years. And as a reward when the children got their diploma they also got a picture of the class and teachers.

I was stunned when I realized the picture of my daughter had been photoshopped. The photographer had put hair on her head and she looked like a boy. I was so sad, I found the photographer and the only explanation he gave me was this:…


Added by Tinna Ros on June 12, 2013 at 6:30am — 32 Comments

The angel who gave me my life back

I am 20 years old and was diagnosed with alopecia areata back in November. I've always had long hair so I was used to losing a lot of hair when I washed, styled or brushed it but then I noticed a bald spot. My alopecia had a fast time course, I noticed the spot in October, was diagnosed in November and by January, I was almost completely bald. I barely had any time to learn what alopecia was and accept it. Everything was happening so quick,I hid behind messy MESSY spray and powder cover-ups…


Added by Carmen on June 9, 2013 at 9:51pm — 5 Comments

Swimming and sport

Hi all,

Can anyone give any advice on water wigs or any wigs they have used to play sport (in a pony tail under a cap for example).

I wear a Follea Gripper wig and don't really want to use it for swimming or sport. Am looking for the best options / alternatives.

Would really appreciate any advice on options you have actually used.

Thanks x

Added by els on June 9, 2013 at 3:00am — 3 Comments

Celebrating alopecia

All my life I was known for my beautiful red curls. My hair was my most unique and prized physical feature. Three years ago when my hair suddenly fell out, I was totally shocked. It turns out that I have an autoimmune condition called Alopecia, where the immune system mistakenly attacks the hair and causes it to fall out. I was devastated. I had never even heard of Alopecia before. I was uncomfortable in my own skin and confused about who I was without my hair. I knew deep down that the loss…


Added by Erin Leach on June 7, 2013 at 1:00am — 3 Comments

Mom and I do not agree on how to deal with my daughter's alopecia! Am I wrong?

My daughter is only 5 yrs old dealing with this and is in early stages of alopecia. I was secretly hoping it was areata however as of this week her eyebrows n lashes are falling off. I have done all home remedies that has so far allowed her to keep bout 30% of her hair. Still falling off but at a slower rate, i dont know if thats a good or bad thing. My mom had alopecia Universales since she was 15, bak in the 70s wen no one knew about it. She was tortured everyday to a point she moved out…


Added by JEANETTE on June 6, 2013 at 10:30am — 7 Comments

Recurring alopecia

im 18 and just found a new patch on my crown size of two finger tips. I had alopecia from the age of 11-15 the size of my hand on the top of my head im terrified it will get that big again my scalp is tingling and itching is this A sign of more hair loss to come? please help :)

Added by pop on June 5, 2013 at 9:00pm — No Comments

Friends and my hair

I just read the blog post from a sister asking how friends took the news about Alopecia. I've not told any friends which is why I thought I'd do my own blog about my experience with people finding out..

With having alopecia for what feels like all my life my mum, dad and brother obviously knew from start. I remember my mum having alsorts of ointments to try all which smelled horrid.

She also used to cut me and my brothers hair. I don't think this helped me in long run as she would use… Continue

Added by KFlame on June 5, 2013 at 1:00am — No Comments

Alopecia and GMOs

Just throwing this out there. I have watched countless videos on Youtube (as I'm sure many of u have as well) about Alopecia and how many people seem to have positive effects of regrowth from organic diets. I am weak in that regard and am currently working on gettimg better with my diet, but I wondered if even in some small way there might be some connection, and if the incidences of alopecia are higher here in America than in other countries? This is just a curiosity, but I know that none of… Continue

Added by Kat on June 4, 2013 at 10:24am — 2 Comments

Back to reality

Ok this is my first blog ever so here it goes. My name is Nicole and I'm 24. I have a beautiful 4 year old princess and an amazing fiancé. Back in November 2012 I noticed a small spot on the back of my head. I didn't think anything of it. Come January it grew bigger and I finally went to my doctor. I found out it was alopecia areata. I assumed it was from my birth control mirena. I got my bc removed in January and noticed growth. I came back to reality about a week ago when I found another spot… Continue

Added by Miss_nikki_b on June 4, 2013 at 9:56am — No Comments

Hello all. Just a bit of an update

I haven't been on the site for a while, but its good to see so much happening as far as help, support and advice.

I first started losing my hair back in Oct 2011. I was 41 then. I had just been through a marriage break up and having never had hair loss before I have staunchly put it all down to stress. I started with just a small bald patch on my chin. I didn't worry and thought it must be "one of those things" A week or two later my daughter was giving my hair a trim and told me I had…


Added by Carl on June 3, 2013 at 8:30pm — 6 Comments


I must must must stop getting pleasure of out freaking ppl out, although my hair is now short I can still wear my long hair pieces, which I did to show a friend how natural they can look (ironically). Anyway a group of teenage girls, who had sow me the day before (with short hair) were asking if it was a wig/hair piece/extensions ect (genuinlely interested in extension), and a smart mouth teenage boy shouted 'What r u going bald or something??' I shouted back 'Yes, wanted to see' wiped off…


Added by Jo-Anne on June 3, 2013 at 4:27pm — No Comments

Any recommendations for non-allergenic wigs?

I have had allopecia for 40 years now and have worn just about every type of wig there is. For a long time, I wore human hair wigs that were made for me, but then we moved to Hong Kong for a while and they would not withstand the humidity there- and I couldn't learn to do them myself. So I changed to wigs with mono-caps, but synthetic hair. I liked them a lot better because I could maintain them. But a couple of years ago, I found a wig that really gave me a nice new look and I get…


Added by Sara on June 3, 2013 at 3:20pm — 3 Comments

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