July 2010 Blog Posts (99)

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Dotty's Inspirational/Motivational Reflection

Let me tell you something you already know. The world ain't all sunshine and rainbows. It is a very mean and nasty place and it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain't how hard you hit; it's about how hard you can get hit, and keep moving forward. How much you can take, and keep moving forward. That's how winning is done. Now, if you know what you're worth, then go out and get what you're… Continue

Added by Dotty on July 9, 2010 at 6:10pm — No Comments

Hairpieces and airport security?

I have a friend that has alopecia areata (I have totalis). She wears a partial hairpiece that has metal clips that attach to her remaining hair. She is about to go on a flight. Has anyone had any experience with going thru the metal detector at an airport with metal clips in their hairpieces? She is terrified. Any ideas, suggestions, thoughts?

Added by BBWR on July 9, 2010 at 12:06pm — 3 Comments

Pregnancy and me

so i'm 32 weeks pregnant with a big healthy boy we are calling Eric.

it has been a pretty good pregnancy, my lupus has not been a problem and i've had some hair growth.

my ANA (anti nuclear antibodies) is a lot lower than it has ever been since having alopecia.



so i've had hair growth under my armpits, i have eye lashes again but not enough to wear mascara, a few eyebrow hairs. i have patches of hair on my head that has been growing well but i have been shaving it when it… Continue

Added by Alison on July 9, 2010 at 10:33am — 3 Comments

Trying to break my self-imposed silence

When I first discovered Alopecia World and joined our beloved community, it seemed as if I had so much to say that I couldn't stop blogging, commenting on various discussions, making new friends, comforting others, and generally trying to spread the message of awareness and education to alopecians and non-alopecians alike. I reveled in the fact that for the first time, I wasn't the only one that I could share my experiences with in dealing with this double-edged sword that is alopecia. I fell… Continue

Added by kastababy on July 9, 2010 at 3:33am — 6 Comments

Oral steroids and me

I've been on prednisolone for wow, nearly 4 and a 1/2 months. In a week, I'll be done with weaning off it! So far, i've experienced more than 90% of hair regrowth and while I admit it's rather exciting to see the hair, I know that I'll never know if it'll fall again once I stop the treatment.



Regardless, I've pretty much decided that I wouldn't do the oral steroid treatment again. Simply because of the side effects, I've gotten sleepless nights, upset stomachs, frequency of peeing, a… Continue

Added by Clara S. on July 8, 2010 at 9:42pm — 7 Comments

Can i dye my hair?

Hello, everyone! I am thinking about dying my hair a lighter color so the contrast of the spots and my dark hair is less noticable. Does anyone know if this is could be damaging and possibly cause more balding to occur?

Please tell me what you think!

Love lacey
xx

Added by Lacey on July 8, 2010 at 9:00pm — No Comments

My hair is beginning to grow back again. While I notice that I become happier and more outgoing when this happens I'm now not even wanting to deal with the whole regrowth. You know, the fine hair tha…

My hair is beginning to grow back again. While I notice that I become happier and more outgoing when this happens I'm now not even wanting to deal with the whole regrowth. You know, the fine hair that begins to come in that sometimes doesn't look all that nice for awhile yet you're so happy to get. I'm still kind of wanting to shave my hair off completely. It seems like it would feel so refreshing and like it would be such a release. Like, "There, it's gone. Now who cares if it falls out or… Continue

Added by elle on July 8, 2010 at 2:06am — No Comments

Advertising and Anti-Spam Policy for Members of Alopecia World

Effective immediately, Alopecia World's new advertising and anti-spam policy is as follows:

Alopecia World will not tolerate unauthorized advertising by any business, organization, or anyone affiliated with a business or organization in an official or unofficial capacity.

Every business and organization allowed to maintain a profile on Alopecia World must receive written authorization from Alopecia World before posting any advertisement or promotional material elsewhere on the…

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Added by Alopecia World on July 8, 2010 at 12:00am — No Comments

New job update :)

so i havent gotten to post for awhile... things have been crazy, plus ive been enjoying being a stay-at-home mom for awhile! lol... i started my new job yesterday & i absolutely LOVE it! my new boss is AWESOME... WAY better than that stupid BBBB! my new boss told me i can wear whatever i want on my head as long as im comfortable... thats the BEST! also, a lot of the people have come up and talked to me about them having cancer, or a loved one having cancer & losing their hair, so i feel… Continue

Added by Jennifer Easter on July 7, 2010 at 9:39pm — 8 Comments

Article in the New York Times

Thought I'd share this:

http://www.nytimes.com/2010/07/06/health/06voices.html?emc=eta1

Added by Mary on July 6, 2010 at 11:52am — 8 Comments

How do you find such an idea? \ Как вам такая идея ?

Hi everyone .. I want to share with you my idea. Maybe someone has already done a similar (Then write what were the results). Art therapy for children bald from chemotherapy - hold her bald from alopecia people ... To come to the children with paint, makeup, jewelry and scarves shlyapai. Pair, with the children to create drawings, images to make photo essay and the exhibition "Beauty is alive ".... How do you find such an idea?



Привет всем.. Хочу поделиться с вами своей идеей. Может… Continue

Added by Vinichuk Oksana on July 5, 2010 at 8:44am — 22 Comments

A few wig questions

So my best friend is donating her hair to me so i can make a wig im not entirely sure which place i can get one made at , or which is the best place to go to i want a wig that is like the vacum wigs (or whatever its called) one that will stay on . so if any one can give me any suggestions that would be great.

Added by lauren on July 4, 2010 at 6:31pm — 2 Comments

Ingrown hairs?

Hey all,

I was just wondering something and this might be a weird question, but has anyone experienced ingrown hairs where they have lost hair but gaining some regrowth? I have noticed a few marks on my skin and this is the only explanation I can think of.

Sarah

Added by Sarah McA on July 4, 2010 at 7:54am — 2 Comments

HAPPY 4TH OF JULY ALOPECIA WORLD

JUST WISHING EVERYONE ON ALOPECIA WORLD A VERY HAPPY, FUN & SAFE 4TH OF JULY.

HAPPY BIRTHDAY AMERICA ****** :) *****

Added by Pamela Rosse on July 3, 2010 at 2:44am — 2 Comments

In the News!!!

I can't believe no one is talking about this so I had to post. Researchers at Columbia University have discovered the 8 genes where Alopecia lies. This is a huge step forward. These are a few links I have found.





http://www.vingsnetwork.com/blog/2010/07/hair-loss-alopecia-areata-causing-gene-uncovered/…





Continue

Added by Late K8 on July 2, 2010 at 11:52am — 4 Comments

Regrowth

Hi all. I don't know what to make of this. Just a quick rundown of me. My first spot appeared about a year ago and since then grow a mind of its own and started to creep all over my head. 13 March 2010 i cut my hair all off for cancer "with hope" my hair will get the hint and grow back. but only to find out about the rest of the little self minded spot on my head. So i got a HEADBLADE (THANK GOODNESS THERE IS A COMPANY IN SOUTH-AFRICA THAT SALES THEM) I've been shaving my head for the last 2 +… Continue

Added by Michelle on July 2, 2010 at 6:53am — 4 Comments

Time for an update

Well, let's see.



Since last time, Nathan's hair has all gone. I'm liking this, even if that sounds weird, to the point that I couldn't find him in his school photo from last year, because I was looking for someone with no hair, and it just doesn't seem like HIM with hair anymore.



The latest is that half of his right eyebrow is getting pretty sparce, and most of the bottom lashes on his left eye are now gone too. a few on the lower right, but heh.



I'm kind of… Continue

Added by Judith on July 2, 2010 at 3:04am — 1 Comment

Dotty's Inspirational/Motivational Reflection

"Beauty is a primeval phenomenon, which itself never makes its appearance, but the reflection of which is visible in a thousand different utterances of the creative mind, and is as various as nature herself."

Johann Wolfgang Von Goethe

Added by Dotty on July 2, 2010 at 1:49am — No Comments

Breakthrough!

Hey all,



I got an email from the NAAF which had some interesting news I wanted to share with you!

Here is what it said:





Lionel -



Because of your commitment to the National Alopecia Areata Foundation, we wanted to alert you to the most exciting news about NAAF funded genetics research to date!



On Thursday, July 1, 2010 this research will be published in the prestigious scientific journal Nature. Various media outlets will begin covering the… Continue

Added by Lionel on July 1, 2010 at 5:11am — 1 Comment

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