Featured Blog Posts – October 2008 Archive (85)

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The 'featured members' on the homepage

This morning a member of Alopecia World raised the important question, "Why are all the featured members or members on the Main Page always from the same selective groupings?"

After noting that the current list of featured members is predominantly female and includes a model, an actress, the "drop dead gorgeous," a stylized photo shoot, a promoter of alopecia awareness, a motivational speaker, and an author, the member also asked "Why are others excluded?" and concluded, "It…

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Added by Alopecia World on October 23, 2008 at 9:30am — 11 Comments

The Lion In Me





I absolutely love this picture, it reminds me that true strength and character of a person comes from the inside not outer appearances.



When I look back on times when I was ready to give up and throw in the towel there was always a lion in me.



When I myself looked at my outer appearance in judgment there was always beauty in me.



When I felt weak and feeble there was always strength in me.



When I… Continue

Added by Royalty on October 23, 2008 at 5:34am — No Comments

Thank you to all who responded to my last blog, now I've got another question I hope you can help me on.

My daughter Juliana is 5. She recently had quite significant regrowth, but as soon as it came in it all fell out again. My husband and I spoke to her to see if she would like us to talk to her class about her AA. She came to me the other day and said "Mommy, are you going to come and talk to my class about my alopecia?" I said, "Sure sweetie." Now my question is, does anyone know where I can get a video of some kind that will simple, on a kindergarten level for them to understand, or should I… Continue

Added by Renee on October 23, 2008 at 2:57am — 4 Comments

A new leaf

When i woke this morning I decided that i needed to talk about my alopecia to anyone. I will answer questions if i'm asked but I have never just voluntarily had a long discussion with my friends or anyone about it. Most of my friends knew that i wore a wig but it's just something that nobody talked about. So I decided to get to church a couple of hours early and just wait for the first person to talk in. I prayed that it would be a girl and not a guy because that would have been totally… Continue

Added by Amber on October 22, 2008 at 11:33pm — 3 Comments

Are there any aspiring Children's Authors in the group?

Hello my fellow Alopecians :-)



I haven't stopped by in a while as I've been busy getting ready to teach my first ever "Children's Author Academy". I realized I didn't share this with all of you and I know there are probably at least a few of you who have a great idea for a children's book brewing inside of you! Obviously some of the greatest children's books share life lessons and we have all certainly learned a few!!! My class is focusing on creating your own bestselling children's… Continue

Added by Laura Duksta on October 22, 2008 at 3:53pm — No Comments

Getting alot easier

I've been feeling a lot more comfortable going out and about in my bandanas/scarves. I have not yet went completely uncovered (that's the next step) but what I have done is a major thing and I don't feel as self conscious as I used to. I do get all kinds of looks, but that's to be expected. I'm going out with the expectation of anything happening so that I won't be completely taken by surprise if something does happen, or something is said. As long as I have my attitude in the right place I… Continue

Added by Angie W. on October 22, 2008 at 12:02pm — 3 Comments

Who is afraid of the normal things to be excited about?

Hello All!

I am new to this and the main reason that I found this website is because of the questions that I have.

I am a 23 year old, who is just getting a start of life and as i think of the future I am scared. I stopped wearing wigs when I was in second grade, I haven't had hair growth since I was 6 mths old, and have adapted my style with not having hair. I dont wear thin tank tops because there is no distraction from my shoulders and my head. I feel like i look like a man. I… Continue

Added by Amanda Crouse on October 21, 2008 at 11:36pm — 7 Comments

Misfortune can become fortune

An old man and his son lived in an abandoned fortress on the side of a hill. Their only possession of value was a horse. One day the horse ran away. The neighbours came by to offer sympathy. "That's really bad!" they said. "How do you know?" asked the old man.



The next day, the horse returned, bringing with it several wild horses. The old man and his son shut them all inside the gate. The neighbours hurried over. "That's really good!" they said. "How do you know?" asked the old… Continue

Added by Carol on October 21, 2008 at 10:48pm — 3 Comments

How could I possibly date a bald woman?

In one episode of the sitcom Seinfeld, George dated and claimed to have fallen in love with a bald woman named Georgina.

Jerry couldn’t believe his ears and yelled, “How could you possibly love a bald woman?”

“Since when was love about looks?” responded George.

“It’s always been about looks!” shouted Jerry.

Given that my fiancée, Cheryl Carvery, prefers to keep her head shaved bald because…

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Added by rj, Co-founder on October 21, 2008 at 4:30pm — 10 Comments

Things aren't going well...

Munchkin has now lost over 70% of her hair. She's not dealing well with it. She's coming to realize that she's probably going to be completely bald when it's all said and done, and is in the "it's not fair" stage. All I can say is, "no, it's not" and hug her. I have set up counseling for her, both to help her deal with this, and hopefully give her more tools to deal with all of her stress that I know is exacerbating the condition, if not triggering it to start with.



We see the… Continue

Added by theantichick (Shannon's Mom) on October 21, 2008 at 4:20pm — 6 Comments

Eyebrow tips and swimming!!

We have been pondering this situation for awhile as it is coming into summer here in New Zealand and Nicole will soon begin swimming at school.



She has just got her knew Freedom wig so that is all good but when her hair gets wet you will be able to see her lack of eyebrows. At the moment she wears false eyebrows to school which are great but you aren't supposed to swim in them.



We have bought numerous waterproof eyebrow pencils which kinda work. Nicole said she will draw… Continue

Added by Sharon on October 21, 2008 at 12:50pm — 9 Comments

The Samurai and the Zen Master - A Japanese Story

A certain sumurai had a reputation for impatient and hot-tempered behaviour. A Zen Master, well known for his excellent cooking, decided that the warrior needed to be taught a lesson before he became any more dangerous. He invited the samurai to dinner.



The samurai arrived at the appointed time. The Zen master told him to make himself comfortable while he finished preparing the food. A long time passed. The samurai waited impatiently. After a while he called out: "Zen Master - have… Continue

Added by Carol on October 20, 2008 at 9:46pm — No Comments

Fuel the Fire

I sit here trying to figure out what I'm suppose to be learning from this experience! Where am I to grow from here? I KNOW with 110% certainty that there are NO accidents in life! God has a plan for me! Somedays I am too stubborn, too angry, or too scared to accept this new path. I feel like I should have the Serenity Prayer tattooed on me So that I remember I can not change things!!



So, if I can not change things for myself ... How can I MAKE A DIFFERENCE? How can I help others? How… Continue

Added by Celeste Edwards on October 20, 2008 at 11:09am — No Comments

Alopecia is wonderful sometimes!

I was sitting in the lunchroom at work when this cute guy I've been secretly looking at for a little while sat next to me. After finding out that he was a genetics student at the university here I thought I would clarify something for myself (and others as it related to a recent question asked on AW). It actually sparked quite the conversation and we talked about alopecia for a little while before he shyly admitted to having psoriasis (although you'd never know).



Now normally I was… Continue

Added by Carol on October 19, 2008 at 9:22pm — 1 Comment

finally feeling good!

Hi everyone...well it's been 1 full week and god do I love my vacuum piece. I'm starting to feel good again when I get ready. It's really becoming part of me! i wanted to thank all of you who helped me through this week cuz it was one of the roughest weekends of my life (last week). I was so glad to have found this site and all of you! I'm in a good space and hope you are all feeling good too. I've come to the realization that I'm not dying...it's just my hair is gone! And to tell you the… Continue

Added by kelley on October 19, 2008 at 6:20pm — 5 Comments

And its done.....

WAHOO!!!! I wish it wasn't so patchy in back. I would LOVE to go out, bald and proud...but the back of my head looks like a soccer ball. Any suggestions on ways to minimize the difference in colors in the back??





And one more of the long one again....…



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Added by Rachel on October 19, 2008 at 1:14pm — 9 Comments

update

Wow, is all I think each time we look on this site. I am still in awe for all of you wonderful people. I wanted to post an update on the dilema that Nicky is facing at school. It seems as if this site as opened up a new world for Nicky. He doesn't concentrate on his alopecia as much anymore since he has seen a whole world of people that live with his diagnosis. It seems as if when he gained more self confidence/self acceptance that his peers accepted him more. Things are going better for him.… Continue

Added by Carrie & Nicky Johnson on October 19, 2008 at 12:00pm — 5 Comments

Live Life to the Fullest

Life is short so we have to make the best out of it. I never realise I had so many supportive friends and family around before AU. I really appreciate it and thanks God for that. He may take away my precious hair but He gave me something special in return that no amount of money can buy.



I would like to take this opportunity to thanks all who have supported me during the darkest days of my life including those who take the trouble to read my profile and blogs. Now, I know what it… Continue

Added by 3mee on October 19, 2008 at 9:30am — 2 Comments

Not again! NOT AGAIN!

AHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!



I just asked my husband to check the top of my head as something up there did not feel right. Another missing patch of hair!!!!!! It's a perfect circle in the size of a quarter, in the middle of my center part toward the back.



Hair has been falling out like crazy lately. This morning and this evening I was running my hands through my hair and pulling out entire strands my the dozens. In the shower my hands have been covered in hairs… Continue

Added by Georgie on October 18, 2008 at 11:37pm — 2 Comments

A little positive thinking

I love quotes, especially if they motivate or inspire. Here are a few that I have found helpful:



- "Do not follow where the path may lead. Go instead where there is no path and leave a trail."

Harold R. McAlindon



- "You cannot plough a field by turning it over in your mind." ANON



- "Our greatest glory is not in never falling but in rising every time we fall." Confucius



- "Children are like wet cement. Whatever falls on them makes an… Continue

Added by Carol on October 18, 2008 at 5:37pm — 4 Comments

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