November 2008 Blog Posts (93)

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halloween was.....

well every halloween i look at as an opportunity to wear a costume wig. i go around bald all the time, so why not have some fun, right? well this year i just felt like owning being bald and dressed up as uncle fester from the aadams family. i thought id share a pic.

Added by emily on November 21, 2008 at 1:06pm — No Comments

Today is it!!!

SO, today is the day and the test results are in. Lyn's appointment is at 1:00 today to find out what the heck is actually going on. We'll finally have an answer to wether it's AA or typical hairloss due to thyroid trouble or other problems. I can't wait to finally have some answers and move on with a course of treatment, if there is one for her. Have a great day out there everyone and wish us luck!

Added by Lyndsey on November 21, 2008 at 9:36am — 2 Comments

I love oblivious people

I was just sitting in class today half paying attention to the professor go on about water pumps or something. I had noticed a hair clip on the ground in my previous that was next to my chair. Out of no where, the guy next to me picks it up and asked me if it was mine. I sat there for a minute trying to figure out who would think that a hair clip of all things would be mine.... Then I realized that he probably just didn't even notice or think about it. I love it when that happens. I don't… Continue

Added by Kristen Ridenhour on November 20, 2008 at 4:27pm — 1 Comment

Running for Research

Hi all,



Myself, Jackie McKillop and Donna Roper are all set to raise funds on behalf of AUK during 2008 and 2009, by completing the 26.2 miles of the London Marathon. The money is intended to be used for research into our condition.







Please don't think of this as just running 26 miles (I make it sound so easy lol) .... between now and the race date, each of us will be running an average of 30 - 35 miles per week, meaning that we'll be clocking up approximately… Continue

Added by Dave on November 20, 2008 at 4:14pm — 1 Comment

Bitter/Sweet Irony of Each New Alopecia World Member

First let me state that I am grateful for this site, as I feel it is informative and provides a welcoming forum for those of us in this "world of Alopecia"



Though, I can't help but to feel a bit of sadness when I get the email notice that another parent has joined Parents of Children with Alopecia, or non-Alopecians in Alopecia world, or Carolina Alopecians, etc. etc.

I say this because I have been where they are and know some of the emotions that they are feeling. Feelings of… Continue

Added by Kayreyn on November 20, 2008 at 2:30pm — 2 Comments

Alopecia Ophiasis ...

I was just wondering if there's any connection between alopecia ophiasis pattern and alopecia totalis or universalis. Is there anyone who had alopecia ophiasis and then became totalis or universalis? Or, anybody who had wonderful regrowth?

Btw, my head looks like a pineapple! I can't believe I'm saying this but it looks really funny. Lots of hair on top and hardly anything on the sides! I will take pictures soon and show before I shave my head.

Thanks everybody!

Added by Christine on November 20, 2008 at 4:06am — 1 Comment

The Twelve Days of Alopecia

I know it's a little early but it takes time to write a song. My first entry is based on the Twelve days of Christmas with an Alopecia Twist. i'll appreciate assistance with this. Here is the first verse....

On the first day of Alopecia Areata i recieved my first little bald patch on me
On the second day of Alopecia Aerata I recieved......

Your turn. Post your entries and let's make this work. Have fun and be creative.

Jeff

Added by JeffreySF on November 20, 2008 at 2:30am — 12 Comments

help

does this get any easier.?I hate the way I feel about my self now. STEPHANIE

Added by stephanie robertson on November 19, 2008 at 6:59pm — 3 Comments

Update of Carmellaness

I've started working that night job. Wednesday, Thursday, Friday. I have to switch back to days by Monday for Clinicals that's always fun.
School is going ok, although I feel like giving up on the regular.
I wish I cold make enough money to buy a new pair of jeans and go to the spa for a day, even a half day.
I turned 28 and my good friend has the same b-day (she turned 21) so we threw her a surprise party.
I'll put up some pictures.

Added by Carmella on November 19, 2008 at 4:53pm — 3 Comments

Things Alopecians Like #7

Guys, This one's for you: No need for ear or nose hair grooming.

Added by Jill on November 18, 2008 at 10:31pm — 1 Comment

Nearly four weeks into my Alopecia Journey

Well, it's still falling out, but has noticably slowed down. No sign of stopping just yet though and who knows if any areas are growing or not. Hubby took his first really good look through it the other day so hopefully next time he looks he'll notice something good or bad. Apparently I've got bald bits, shaved looking bits and some stubble areas. Who knows aye. On the whole still pretty coverable.



I'm still very selfconcious (sp?) about it all, I stay home if it's windy or wear a… Continue

Added by Karen on November 18, 2008 at 7:26pm — 1 Comment

MRI today

Today Amelia went for her MRI, and we had to go to Charlotte to Carolina's Medical Center. Everyone there was helpful and friendly. I called the doctor, and he said that the everthing was normal in the pituitary gland. We have done blood work, and now this, but still no answers. The dermatologist hasn't been much help either, but she did prescribe some foam to put on the scalp. It was spots but now more hair has come out, and we are almost to the point of shaving. I cry at just the thought, but… Continue

Added by bugzmom on November 18, 2008 at 5:55pm — 1 Comment

Check out my new website! www.michellechapman.co.uk

Hi all!
Hope you are all well and just wanted to say I have created my own website at www.michellechapman.co.uk. Please have a look and let me know what you think! It's my first attempt at building a website and had great fun doing it!
Thanks,
Michelle
xx

Added by Michelle Chapman on November 17, 2008 at 10:27am — 2 Comments

First tat, Pic and explaination

Photobucket


Okay... so the colors are a little off because my camera was being stupid... but you get the idea. it's all grey and black ink.



The celtic knot represents my Irish heritage, the unending love I have for my life, my family, and the fact that everything I do is connected to the "bigger picture".



The angel wings are symbolic of the faith i have, as well as the strength i've gained by the… Continue

Added by Reen on November 17, 2008 at 12:30am — 1 Comment

my new treatment method

I'm going to try a new treatment that I've been wanting to try for a while. NOTHING. Well, not exactly true. I will do pretty much nothing so far as treatments, but I will try to stop obsessing about my alopecia and thinking about it every minute. I don't think it's healthy. I see some hair fall out, I get super upset, and then more hair falls out, and it continues in a cycle. I noticed I wasn't losing a lot of hair when I wasn't stressed out.



So lets see how this goes. I'm not going… Continue

Added by Christine on November 16, 2008 at 6:00pm — 3 Comments

My therapy

I made a promise to a professor when I was in college that I would find a way to give back within five years after I graduated.



He made us all pick a cause that was important to us. I said I wanted to help other people struggling with alopecia gain the self confidence it takes to accept its role in their lives.



It's been almost eight years since I graduated from college, and I haven't done anything. But I realized I'm not really in a position to help anyone until I can… Continue

Added by Stephanie on November 16, 2008 at 12:10pm — No Comments

My New Winter-Caps / Wigs...Asking for opinions... :)

Hey Everybody...

I am posting pictures of my new "Winter-Caps", that's what I call my wigs when I wear them because I don't just wear the same hair every day in the winter months here in AZ... I will go to work on Monday with a cap to match my outfit, and on Tuesday I might wear a scarf and on Wednesday I might wear a short wig and on Thursday I might wear a long wig depending on what I feel like that day.



I use to buy wigs that have blond highlights and now I want to try… Continue

Added by Yvonne~Yhoney on November 16, 2008 at 3:30am — 8 Comments

The media vs. beauty and sexuality

I have been reading posts by many others here on this site. It is refreshing to see so much positivity and strength, and that is very motivational and inspirational to me. I also appreciate those who are frustrated, confused, worried and just plain angry, because I STILL feel those sometimes. Plus I have many of the same anxieties and questions that others have here.



I am currently not dating anyone right now, and even though I have had very few problems with my alopecia affecting my… Continue

Added by Andie on November 15, 2008 at 11:01pm — 4 Comments

omG

zac asked me out! yay! i left a comment for him on myspace that said "hey wuts up?" and he said "nothing wanna go out?" and i said "yes" so were going out! yay!



and i left my phone in my locker yesterday! Dx but i went to get it today. damn that place is creepy on the weekends! it was so deserted. i was with my friend kara. we finally found and open door at the back and we had to go up stairs and around to get to my locker cuz the doors separating 2 hallways was closed. and then we… Continue

Added by Courtney on November 15, 2008 at 6:51pm — No Comments

Attention world...here comes my bald head...

So tonight I will make my first social appearance BALD! I have been furniture shopping wigless...but I don't know those people so who cares. I also went to the renaissance festival and bought a tiara with a drop gem (its really pretty) and wore that around on my little naked head. Tonight I will go to a wedding party and a going away party...bald. i spent a stupid amount of time trying to figure out what clothes match a bald head. what is the perfect earring length to accompany my pea… Continue

Added by Rachel on November 15, 2008 at 6:26pm — 9 Comments

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