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Ughh totally frustrated!

Hello Friends,



Sorry I have not been able to check in for a while..I have been busy with life trying to figure things out and make sense of things..So I am guessing I had a good run for about 3 months where my hair did not fall out and now it is back to its ugly self...My hair is starting to fall out again..Seems like it may either be in the same area or damn near close to that area. I now have 3 new small bald spots instead of just the one I had...I also now discovered that I have… Continue

Added by Trish on August 7, 2011 at 8:00pm — 9 Comments

Children with Alopecia

This segment on the Colorado news, says it all. Yes, having alopecia at Any point in life is extremely difficult. But children are just starting out in their lives. I am grateful for having alopecia in my adult life; I was already "me" and secure, thankfully. How much more difficult it is for children. This is why I organized my event "Musicians for Children's Alopecia Project Benefit" to be held at World Cafe Live in Philadelphia, 9/16/2011, 7p-11p. An excellent night of music, awareness which… Continue

Added by Lili Añel (aka Eulalia) on August 7, 2011 at 12:49pm — 1 Comment

Found out my daughter has a severe milk/egg allergy

For those of you who don't know our story... my 3 year old daughter was diagnosed with AA in the middle of April and initially lost about 80% of her hair. We shaved her head and now with all the regrowth, she has about 70% so I would say that is quite significant... just praying it sticks. We took her to see a homeopathic doctor a month ago and did an allergy test as well as an absorption test and we found out that she has a severe allergy to milk and casein as well as moderate allergies to egg… Continue

Added by Jules1984 on August 6, 2011 at 3:15pm — 7 Comments

Am I perpetuating the fear of being discovered?

Have you ever walked down the road, sat in a restaurant, or been in Safeway and seen someone who's wearing a wig? Most of us are hard to spot because we have spent years trying to make ourselves look like everyone else... but much like LGBT (lesbian, gay, bi-sexual, transgendered) have "Gay-dar" I think those of us with Alopecia have "wig-dar". What I'm worried about is that I'm perpetuating the fear of being discovered.

I know for me personally I prefer to tell my story than be outed… Continue

Added by Kate anderson on August 5, 2011 at 9:00pm — 11 Comments

My 11 year old son was just diagnosed with alopecia. What to expect next?

At this point his Alopecia is limited to one eyebrow. Even with it being his eyebrow he is having a difficult time talking about it and does not like to hear me discuss it. Is this limited to just this area, will it continue to his other, his head.. What can be expected as anything I have read or seen it seems it does not just limit itself to an area for long. Am I wrong, am I missing something?



I would just like to chat with people whom can give real life experience answers for a… Continue

Added by Garfield on August 4, 2011 at 1:00pm — 6 Comments

Indiscreet best friends

So I just opened an account on facebook, which I'm starting to regret. On my profile picture I'm wearing my wig, and I love that picture so much because it was so hard to get a good picture with it. On my camera, my hair came out too shiny, and it look really fake. So I finally took one on my phone and loved it.



Before I got a wig, I asked my best friend to go with me to a wig shop because I didn't know what to look for. At the time, she was dating some guy and I guess mentioned that… Continue

Added by Trixie on August 3, 2011 at 3:00pm — 5 Comments

Free Scarves and Head Wraps!!!!

Just found a website called Good Wishes and they are giving away complementary scarves and head wraps. Go to www.goodwishesscarves.org

Click on request a scarf and you can either email them, call 1-888-884-3653, or download the request form and fax it back with 3 scarf options. Out of the 3 you choose, they will mail one out to you free of charge. They said it'll take about 3 weeks before I'll receive it. I ordered mine today, go and get… Continue

Added by Michelle on August 1, 2011 at 7:22pm — 3 Comments

International Alopecia Day is Saturday, August 6, 2011!

For those of you who don't know about it, International Alopecia Day is an annual event that got started right here on Alopecia World a couple of years ago.



It's a day to celebrate who we are, be proud, raise awareness among non-Alopecians, and connect with other people with hair loss. Here's the Group page where you can join:…



Continue

Added by Mary on August 1, 2011 at 7:00pm — 12 Comments

Would a new diet reverse alopecia?

Added by Tallgirl on August 1, 2011 at 12:00pm — 7 Comments

Depo Jag

Well as you all may know i posted blogs while back with almost full head of regrowth and was so happy but couple of months back i noticed more hair in the shower again, my hair was probably 2inches long too. I have been on the depo contraceptive jag now since last october but only just read the side effects and one standing out was HAIR LOSS i was gutted as now im not sure if its the jag that could have caused it or it would have happened anyway, has anyone else ever heard of any contraceptive… Continue

Added by lynne on July 29, 2011 at 5:29pm — 2 Comments

Track from my band...

FYI - I've added a track from my band to my profile page under "My Music". This is what I do since Alopecia stopped running my life. :-)

(I'm the vocalist. My bf is on bass, guitar, and percussion. The sax player is freakin' mazing!)

Added by Marie on July 29, 2011 at 12:00pm — 9 Comments

I was wondering...

So lately I ve had some white hair growing on my head its a slow process but it's there. I was just seeing if anyone had any major results after seeing that grow, I dont want to excite myself??????

Added by Debbie on July 29, 2011 at 9:23am — 5 Comments

Society defines people by their hair?

Just like being thin, society puts too much emphasis on hair and hairstyles, especially the younger you are. As you age, it is considered natural to begin losing hair (just strictly from Androgenic Alopecia let alone other forms). Nevertheless, hair is way overrated. Unfortunately, Hollywood and advertising has effectively set the societal norm that having hair is what defines beauty, youth and/or masculinity. This is not true. The reality is, having hair or not makes no difference whether on… Continue

Added by Brian on July 29, 2011 at 4:17am — 4 Comments

Possibly Grow Hair...This is VERY Encouraging!

http://www.safesalt.com.au/Wheatgrass/alopecia.html

C H E C K IT O U T !

Added by Elizabeth on July 29, 2011 at 1:24am — 7 Comments

The trials and tribulations of an alopecian

Ok.... so when I first started to accept that I was losing my hair and it was not going to come back, I thought, well at least wearing wigs and scarves will be easier to maintain. Boy was I wrong!!! I thought that I could just slap on any kind of wig and go. There is human hair, synthetic hair, straight, curly, short, long, lace front, mono top, vacuum, priced from $40.00 to $5000.00. Good Lord! At least with my hair I could put it in a ponytail or bun, where it down, straight or curly, it was… Continue

Added by Michelle on July 28, 2011 at 7:30pm — 12 Comments

Ha-ha hair

Now my hair has been growing, yes I was kind of happy, but not for long...It's falling out again, I know everyone had this kind of thing happen to them, but for me it's the first. It always grew back and stayed for years, but not now...

I'm a bit lost on how I am supposed to feel. I used to be optimistic but I guess alopecia tends to wear out a lot of optimism...

Now I'm thinking if I should just shave it off again or wait a bit. I'm sooo frustrated and tired of looking like this,… Continue

Added by Calipso on July 28, 2011 at 6:00am — 14 Comments

Looking for "Shawn?" from England (Disney World)

Recently I went to Disney World and while waiting in line at a water ride at Typhoon Lagoon I turned around and saw a woman my age who I could tell was an alopecian sister. I debated asking her, but finally got the nerve to ask her (I hate when people ask me so I wanted to be sensitive and told her I thought we might have the same condition). At first she seemed taken back when I first asked her, but when she realized we had the same condition we got talking and talked and talked until we made… Continue

Added by Rodeli on July 27, 2011 at 11:55pm — 2 Comments

Desiderata

Go placidly amid the noise and haste, and remember what peace there may be in silence.



As far as possible, without surrender, be on good terms with all persons. Speak your truth quietly and clearly; and listen to others, even to the dull and the ignorant, they too have their story. Avoid loud and aggressive persons, they are vexations to the spirit.



If you compare yourself with others, you may become vain and bitter; for always there will be greater and lesser persons than… Continue

Added by Tallgirl on July 27, 2011 at 10:32pm — 7 Comments

hair extensions

hi i really need some help i am 19 and have had alopecia for the past 8-9 months. It started with on patch which grew back but now have 5-6 really big ones and it is making me feel very down. I have been looking into the specialist hair extensions you can get just to cover it up so i feel a bit better about it but not sure if they will make it worse or not have tried looking on the internet but cant seem to find the information i need. It would really help me if anyone has tried them or knows… Continue

Added by boo. on July 27, 2011 at 6:33am — 2 Comments

How it all began?

As maybe you have seen on my profile it all started when I was 11, starting what we call in Mexico Junior High School or Middle School I guess.. so I was having this Instruction course before classes, you know, to meet other students and see how it all works at this new level. So it was kind of harder for me because I studied for 6 years in the same school and I loved it, I didn't even want to accept that I was growing up, you see when you start puberty you're only caring about how your face… Continue

Added by Gabby on July 27, 2011 at 4:30am — 3 Comments

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