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News

Hello to all, last news:c'est is a disaster, after the fibromyalgia, the disease of bottom dow, the universal alopecia, the prediabetes and a goitre, I have been supposed to be 3 weeks at the hospital for a sarcoïdose I'm fed up I cannot it any more and then I suffer, so physically as morally diseases after which the medicine does not know how to look where the search does not make any progrée. but why I?

Added by coccinelle on July 5, 2011 at 4:57am — No Comments

The cruel world

Yesterday I went to the store for some food. Suddenly an older foreign woman is flipping me her finger. I look around and it takes a second before i realise it is really me she means. Then she starts screaming - racist! bla bla bla, fu-ing racist bla bla... ehh, I am so surprised that I can´t get a word out. She walks away.



Then she comes back after a minute - and starts screaming again... then she says cancer? and points at my bald head. -" if not - racist! bla bla… Continue

Added by Helena Wenzin on July 5, 2011 at 1:33am — 13 Comments

Do you shave your head or have someone do it for you?

Just wondering.....does anyone out there shave their own head or do you pay someone to shave it? If you do shave, do you use a razor or a barber set of clippers?

Added by Ktownnana on July 4, 2011 at 10:00pm — 17 Comments

Finally back home - missed Alopecia World!

I wanted to post a short blog just to let you know that I didn't fall off the face of the earth, or abandon AW. I was travelling for 7 weeks in the UK (I posted a blog from there about meeting a bald woman at the airport in London), and then right after I got home, I took off for a week at my annual Balkan music and dance camp. So, I've had very infrequent Internet access for the past two months. I arrived home yesterday and am slowly catching up on everything.



This was my second…

Continue

Added by Mary on July 4, 2011 at 1:30pm — 11 Comments

FREEDOM

HELLO SISTERS OF ALOPECIA WORLD...



I THANK GOD FOR THIS SITE THAT HAS BEEN AN ECOURGMENT. I ONLY BEGAN TO WEAR MY BALDNESS ON THIS FRIDAY. I FELT SO FREE WITHIN BECAUSE I WAS EMBRACING WHAT GOD HAS GIVEN TO ME. HE TRULY GAVE ME HAIR BUT FIVE YEARS AGO IT BEGAN TO DISAPPEAR. I WORE THE WIGS, THE WEAVE AND TRYING TO CONTINUE TO OBTAIN THE LOOK I WAS ACCUSTOMED TO. I AS A WOMAN DID NOT GO WITH MY HAIR UNDONE. BUT, GOD ALLOWED ME TO REALIZE THAT HAIR DOES NOT A CHRISTIAN MAKE. HE LOVES… Continue

Added by jean on July 3, 2011 at 10:26pm — 4 Comments

Hair Hair Hair!

Hello, my name is Laura! OK I don't have Alopecia but I do know what it's like to be judged for not having any hair. I suffer with bi polar and during one of my erratic episodes I shaved all my hair off. I had a lot of mean things said about me but I want you all to be proud of yourself.... in this video of me on youtube



https://www.youtube.com/watch?v=Mw1P5GMMSYo



It tells you all you should be proud of being… Continue

Added by Laura on July 3, 2011 at 6:37pm — 1 Comment

Alopecians...do NOT boost your immune system!

Several months ago, I decided to start taking Zinc for my Alopecia Areata, thinking it was a good thing to boost my immune system. After probably a couple of weeks on the Zinc, I began to wonder if this was a good thing to do, or not. Well, at this years NAAF conference, what I began to suspect was confirmed. DO NOT take Zinc, or anything else to boost your immune system!!! Your immune system is attacking your hair follicles, thus, boosting your immune system only aids in what is causing your… Continue

Added by Diana Carter on July 2, 2011 at 1:35pm — 8 Comments

Shaving head!!

well i've decided to buy me a very good razor and some shaving cream to get rid of the stubs today, am tired of the itching under the wig and am going to my inlaws today with a wig on , I know i'll be itching like crazy, maybe I should tell them I have head lice or something so we could leave faster,,,lmao
But I am lookng forward to getting my head smooth instead of living with stubs, it's either hair or NO HAIR right?
so I may as well say bye bye to the stubs
xox

Added by Lisa-Lynn Marini on July 2, 2011 at 10:47am — No Comments

2011 NAAF conference, changed my life

Nerves and excitement consumed me the days leading up to finally boarding a plane from Detroit to L.A. I knew I was going to finally meet people who have Alopecia, I had no idea how amazing this was going to be... I arrived there a day and a half prior to the conference starting so I could do some sight seeing.. yes.. I am a typical tourist.. My husband and I had a blast touring the walk of fame.. sunset.. the pier.. the observatory... totally different world from Detroit. The day came to check… Continue

Added by christine policicchio on July 1, 2011 at 11:30am — 16 Comments

How do I just do it?

So I've been bald for 5 yrs now and I went from wearing baseball caps to turbans to now a wig and something I struggle with every summer is I just wanna go swimming with nothing on my head I wanna be able to take my son's to a pool with nothing on my head, so all I wanna know is how does one get enough nerve to do it. I feel naked when I have nothing on my head, and I only do it around people Im comfortable around, and I wanna to be able to do it in public, and Im scared to, idk why. When I… Continue

Added by Debbie on July 1, 2011 at 9:39am — 14 Comments

My bald head

I can't tell you how nice it feels to have a long day in the heat with a head full of hair ( wig) and come home to take it off!!
I sure do appreciate that while others have no way of doing that with their own hair and feel the nice breeze on a sexy bald head!!!
God Bless all of us who are bald we don't realize the pros about it very often but I just realized that pro today!! and let me tell you,,,, it feels damn nice!!

Added by Lisa-Lynn Marini on June 30, 2011 at 7:30pm — 13 Comments

Human Hair Wig - It's a love-hate relationship

Hi Everyone,



Hope you are all doing well...coping well with this most incovenient and expensive condition. I haven't been on here in a while. I am hoping to get some new tips and tricks :) I am still new to this and am grateful that everytime I blog on here I obtain a whole bunch of useful advice!



Over the past few months I got way too frustrated with synthetic wigs...so I bit the bullet and purchased a human hair wig. I was excited...couldn't wait to get it in the mail. A… Continue

Added by Beverly on June 29, 2011 at 10:00am — 6 Comments

Need advice on a stubby head please!

I had mentioned before I have a stubby head except for the sides of my head , the stubs have been that way for a year now, doctors say its as good as its gonna get, and I still don't understand why that is, even though I know it is caused by my white cell count, but here's the thing, I'm always itchy leaving my head scabby whenever I wear wigs with a cap under it.

I try shaving it to releive the itch, I use soap and I can't seem to shave it right making everything worst and cutting myself… Continue

Added by Lisa-Lynn Marini on June 29, 2011 at 8:29am — 9 Comments

The Journey

I was reading a magazine today and came across this poem by Mary Oliver. Im not a poetry reader much but this spoke to me and I wanted to share it with you......





THE JOURNEY by MARY OLIVER



One day you finally knew what you had to do, and began, though the voices around you kept shouting their bad advice

— though the whole house began to tremble

and you felt the old tug at your ankles.

"Mend…

Continue

Added by Bald and Fabulous AKA Terri on June 28, 2011 at 9:04pm — 5 Comments

WHO LOVES YA BABY .......

Since I was a little tyke - playing slot cars , digging up the yard with my TONKAS or just lighting the woods on fire behind the house , there was only ONE exclusive BALD guy in Hollywood.



Ladies and Gents .... it was Telly Savalas .



Strong , Charismatic , Independant and Aint takin CRAP from no one !

Smart mouthed , razor sharp wit and always I mean always a TOOTSIE POP on board.



As I see my smooth eggplant in the mirror .... I finally get what Telly was… Continue

Added by R0BB on June 28, 2011 at 4:41pm — 2 Comments

Stye

I was diagnosed with AA in July,2010. It progressed to AU in March 2011. After about 3 weeks of wearing false eyelashes , I developed a stye in one eye...it got serious enough for medication, now that eye is healed and my other eye has one. It has been a constant struggle to heal. I find myself constantly having to deal with debris in my eyes. Has anyone else had this problem? Is it common to have eye problems when dealing with no eye lashes? I am still trying to deal with this condition. First… Continue

Added by Kathy S on June 28, 2011 at 10:05am — 3 Comments

Once again

So my hair had started to come back and I was so excited, but now after a very stressful 2 weeks of withdrawals from taking Cymbalta my hair started falling out again. I had most of the sides come in, was still missing the top, but now the sides are going away again. Thinking very seriously about a Freedom Wig. I know they are expensive, but I need to bite the bullet. My one BIG concern is spending the money and then not being able to wear it. Here are my questions.

1. I live in Florida it… Continue

Added by zeida on June 27, 2011 at 9:34pm — 5 Comments

Happythankyoumoreplease

I posted a blog previously about a movie called "Happythankyoumoreplease". It is an Indie film so it was in limited release to movie theaters. I live in a large city so I figured it would show in my city. Unfortunately, I was wrong. I guess it only played in NY and LA. So it finally came out on DVD not too long ago, and I finally got to watch it this past weekend. I give it a thumbs up. It was a little better than expected. It had some laughs, and some of the other characters were charming/… Continue

Added by Alliegator on June 27, 2011 at 3:01pm — 3 Comments

Anxious to hear about latest research

What did you all hear at the conference last weekend?

Added by Tallgirl on June 27, 2011 at 11:30am — 10 Comments

Summertime musings

Well its officially summer in the River City. We have had fires everywhere for months (southern Georgia, neighboring Florida counties to the west and south). Even on some days when it was actually not too hot to don a wig I left it at home anyway, as I did not want to get that smoke smell in it.



Anyway, have a niece getting married soon. I already have me dress and hair (wig) picked out. I have always instinctively felt [pressured??? obligated??? i worry...] that for formal… Continue

Added by Laura Adams on June 26, 2011 at 3:41am — No Comments

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