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Bad re-growth day, Part 2

Well, I spent the whole Thanksgiving weekend from Friday night onward in bed with a migraine and scalp pain that has just been excruciatingly out of this world and left me totally incapacitated. I was going to wait until after the holidays to talk to Todd about cutting off all my hair again, because that has been the only way I have been able to control both the scalp pain and the migraines, but this weekend left me no other choice but to bring it up. The moment I mentioned it to him, Todd said… Continue

Added by kastababy on December 1, 2008 at 6:56am — 3 Comments

Gluten Intolerance

Not sure if I've got this blog thing figured ,but here it goes...



I was curious about AU and AT I've lost almost all my hair and my brows were falling out. The story behind that, is advice from an allergy specialist. I have intestinal problems so on my last visit to my gastro Doc he says "Have you changed your hair." I smiled and told him whats been happening. He immediately refered me to an allergy specialist.

On my visit with this Doctor, she explained that 40% of alopecia… Continue

Added by Amber Lounder on November 28, 2008 at 10:30pm — 9 Comments

Warm for the winter but is it going again?

Winter is here. As the temperature has dropped I have appreciated more then ever that I have had virtually full re-growth. My hair is now cut to a number 3 and has grown back all over my head apart from a small patch on the left side. I say that but did it not grow back completely and then it has it fallen out again? I’m not sure. There is also a slight shortage of hair over my ears on both sides but compared to how it was before I shaved my head last year it is brilliant and so warm compared… Continue

Added by Ray on November 28, 2008 at 4:00am — 4 Comments

Thanks

Since it's Thanksgiving I decided that giving thanks was in order. I have so much to be thankful for!

- my wonderful family that has been by my side and helped me so much. Specifically my mom who has listened to me cry and shaved my head when I asked her to.

- the opportunity I have to go to college. I am so happy that I live in a country that allows me to pursue my education and allows me to do and become anything that I want.

- this wonderful country - I can't even imagine… Continue

Added by Val on November 27, 2008 at 10:00pm — 1 Comment

What can Alopecia World do for you?

In July, we posted an official blog titled "What is Alopecia World to You?"

However, in this blog, we want to ask, "What can Alopecia World do for you?"

In other words, what additional site features would you like see?

What improvements would you like for us to make to the site?

How can we better serve you as a community?

What's on your Alopecia World wish list?

Please…

Continue

Added by Alopecia World on November 26, 2008 at 8:30pm — 3 Comments

Thanksgiving

I just recently moved from Georgia to Music City (Nashville, TN). My family - Mom, Dad, Amanda (little sis), Benjamin (little bro) and Beau (little dog) are coming to visit me here for Thanksgiving. Momma is bringing her buzzers to shave off the little bit of hair I have left. I'm excited to be taking control. This way if my hair continues to fall out it will come out as little bitty pieces instead of long strands. However, I'm a little bit scared. I'm scared to be taking the plunge into "bald… Continue

Added by Val on November 25, 2008 at 11:00pm — 1 Comment

Me with hair

I know it is nuts. But I wore a wig for halloween and thought hey ill post a pic. I know it is a bad wig but hey why spend money for one night right. anyways let me know what you think.

Added by Jennifer on November 25, 2008 at 7:28pm — 1 Comment

New eyebrows

I just received my first pair of human hair Natural Brows. They arrived unexpectedly soon; I think I paid for the least expensive postage! Soon after I arrived home and saw a biggish parcel on my bed with other mail, I got as excited as a child looking at his present under the christmas tree on christmas day. Hastily ripped open the sealed plastic envelope, tore the carton box, unwrapped the wrapping paper, opened the packaging and looked at the realistically-finished eyebrows. Carefully… Continue

Added by Roderick Peresso on November 25, 2008 at 7:13pm — 4 Comments

keeping my noggin warm....

Hi...this isn't nearly as earth shattering or dramatic a post as some of my others, but I'm excited about my most recent alopecia realization. Sleep caps! Yes, I'm probably the last alopecian to know they exist. But I was laying in my bed a couple nights ago, a little cold - it does get a bit nippy in Phoenix in the winter believe it or not. Oh, well, I also didn't want to turn on my heat yet either as I'm saving money leaving it off right!!! I was thinking as I was laying there that it would… Continue

Added by Kelly on November 25, 2008 at 12:00pm — 3 Comments

One Eyebrow or No Eyebrow

Interesting times these days....life's pretty great by almost any standard you can measure it, but this Alopecia thing has a way of getting in my craw every once in a while. Chalk it up to the pressure of life (yes, I'm a believer that the stress around me and in me is a major instigator for my Alopecia), and we're all feeling it somehow, but my left eyebrow all of a sudden - after a good 4 years of stability - decided to call it quits. The bigger problem in this predicament is that he didn't… Continue

Added by John Paul on November 24, 2008 at 8:43pm — No Comments

The Bald Woman Project 2009.

As an artist I've always enjoyed exploring ideas and asking questions through various mediums. From film, photography, stage plays to painting I love using these as doors to present questions to the world. Lord willin', sometime in 2009 I'll be able to put the art piece on exhibit.

I'd like to get some ideas from my fellow alopecians about some projects that you'd like to see featuring bald women. Honesty is appreciated.

Added by Leon Johnson on November 22, 2008 at 12:18pm — 3 Comments

I found a new bald spot

I've been keeping my real hair really short lately... my wig doesn't seem to move on my head so much if my hair is short.



And I noticed the places where I do have hair don't seem to be growing as quickly, and the bald spots that showed up last spring seem to be taking a much longer time to grow back. One is almost completely grown in, and I can feel peach fuzz on the other, but it's taking a long time.



But yesterday, I noticed another bald spot on top, a little to the… Continue

Added by Stephanie on November 21, 2008 at 8:35pm — 3 Comments

Today is it!!!

SO, today is the day and the test results are in. Lyn's appointment is at 1:00 today to find out what the heck is actually going on. We'll finally have an answer to wether it's AA or typical hairloss due to thyroid trouble or other problems. I can't wait to finally have some answers and move on with a course of treatment, if there is one for her. Have a great day out there everyone and wish us luck!

Added by Lyndsey on November 21, 2008 at 9:36am — 2 Comments

I love oblivious people

I was just sitting in class today half paying attention to the professor go on about water pumps or something. I had noticed a hair clip on the ground in my previous that was next to my chair. Out of no where, the guy next to me picks it up and asked me if it was mine. I sat there for a minute trying to figure out who would think that a hair clip of all things would be mine.... Then I realized that he probably just didn't even notice or think about it. I love it when that happens. I don't… Continue

Added by Kristen Ridenhour on November 20, 2008 at 4:27pm — 1 Comment

Bitter/Sweet Irony of Each New Alopecia World Member

First let me state that I am grateful for this site, as I feel it is informative and provides a welcoming forum for those of us in this "world of Alopecia"



Though, I can't help but to feel a bit of sadness when I get the email notice that another parent has joined Parents of Children with Alopecia, or non-Alopecians in Alopecia world, or Carolina Alopecians, etc. etc.

I say this because I have been where they are and know some of the emotions that they are feeling. Feelings of… Continue

Added by Kayreyn on November 20, 2008 at 2:30pm — 2 Comments

Alopecia Ophiasis ...

I was just wondering if there's any connection between alopecia ophiasis pattern and alopecia totalis or universalis. Is there anyone who had alopecia ophiasis and then became totalis or universalis? Or, anybody who had wonderful regrowth?

Btw, my head looks like a pineapple! I can't believe I'm saying this but it looks really funny. Lots of hair on top and hardly anything on the sides! I will take pictures soon and show before I shave my head.

Thanks everybody!

Added by Christine on November 20, 2008 at 4:06am — 1 Comment

The Twelve Days of Alopecia

I know it's a little early but it takes time to write a song. My first entry is based on the Twelve days of Christmas with an Alopecia Twist. i'll appreciate assistance with this. Here is the first verse....

On the first day of Alopecia Areata i recieved my first little bald patch on me
On the second day of Alopecia Aerata I recieved......

Your turn. Post your entries and let's make this work. Have fun and be creative.

Jeff

Added by JeffreySF on November 20, 2008 at 2:30am — 12 Comments

Nearly four weeks into my Alopecia Journey

Well, it's still falling out, but has noticably slowed down. No sign of stopping just yet though and who knows if any areas are growing or not. Hubby took his first really good look through it the other day so hopefully next time he looks he'll notice something good or bad. Apparently I've got bald bits, shaved looking bits and some stubble areas. Who knows aye. On the whole still pretty coverable.



I'm still very selfconcious (sp?) about it all, I stay home if it's windy or wear a… Continue

Added by Karen on November 18, 2008 at 7:26pm — 1 Comment

MRI today

Today Amelia went for her MRI, and we had to go to Charlotte to Carolina's Medical Center. Everyone there was helpful and friendly. I called the doctor, and he said that the everthing was normal in the pituitary gland. We have done blood work, and now this, but still no answers. The dermatologist hasn't been much help either, but she did prescribe some foam to put on the scalp. It was spots but now more hair has come out, and we are almost to the point of shaving. I cry at just the thought, but… Continue

Added by bugzmom on November 18, 2008 at 5:55pm — 1 Comment

my new treatment method

I'm going to try a new treatment that I've been wanting to try for a while. NOTHING. Well, not exactly true. I will do pretty much nothing so far as treatments, but I will try to stop obsessing about my alopecia and thinking about it every minute. I don't think it's healthy. I see some hair fall out, I get super upset, and then more hair falls out, and it continues in a cycle. I noticed I wasn't losing a lot of hair when I wasn't stressed out.



So lets see how this goes. I'm not going… Continue

Added by Christine on November 16, 2008 at 6:00pm — 3 Comments

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