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So my bf shaved my head again...

whoa, it's been a while since I've updated. So far, I've been keeping busy with work, friends, trips and moving into a new place. It's all been tiring but really good. I've also weaned off steroids and feeling so much better about it. I did get lots of hair growth, but then i started losing hair again, I got so annoyed with my hair dropping all over the floor that I told my bf one day, just shave it off. And he did. I'm feeling free again......and I'm ok with it. I may not walk out of the house… Continue

Added by Clara S. on October 19, 2010 at 4:17am — 1 Comment

I'm not in control of this

Found out today that my injections will not be covered for my AA. They consider it "cosmetic surgery". This is definitely not one of those good days. They act like I am having botox or something. I told them, this is an immune system disorder..and this is not right! I cancelled my next appointment. I am done. I don't want to go through the creams, the itching, the pain from that, so I am giving this to God. I told them to cancel my appointment and to make sure the doctor knows why I did… Continue

Added by Diana Carter on October 18, 2010 at 3:06pm — 9 Comments

I won second place in speech contest!

Woo hoo!!! I placed second in an Area Toastmasters speech contest. Gave my alopecia story and the best thing was afterwards quite a few congratulated me for being to courageous to speak about it and a couple had family members or friends who were dealing with it or had dealt with it in the past. So all in all I feel I managed to get some awareness of alopecia out there and also its affects on our emotional health. Without the support of alopecia world and the inspiration I get from reading… Continue

Added by Pat on October 17, 2010 at 9:20am — 10 Comments

AA in Rowlett, Texas

Saw a lady in the grocery store tonight that had 'crop circles' like me..I wanted to go over and introduce myself to her, and ask her if she had AA, and tell her I did. I didn't go though..I thought, "what if.." "what if she doesn't know she has it?" or "what if she is sensitive about talking about it?", or "what if she thought she had it hid good?" ...so, I didn't meet her. WIsh I had. Maybe she and I could have been support for each other.

Now I guess I will never know. Did I do the… Continue

Added by Diana Carter on October 17, 2010 at 12:33am — 4 Comments

Living with alopecia

So, I woke up one day last February, styled my hair as usual and went to work just like any other day. I went into the bathroom and was doing what most girls do..checking your hair before you walk out when I noticed a bald spot about the size of a nickel on the top of my head. I honestly thought that I must have somehow pulled my hair out without realizing (As if you could pull a clean chunk of hair that big out without noticing) but It was the the only logical explanation I could think of at… Continue

Added by Kathryn S. on October 16, 2010 at 10:30pm — No Comments

There go my eyelashes

Well, quite frankly; I am feeling terrible. Last night me and the mirror had a long talk. My head has been shaved for a while and new hairs are starting to pop out. BUT. Of course they just fall right out again. Lets top that off with my eyelashes falling out and following after my eyebrows. I am really discouraged with this disease. Most of the time I am really positive and try my best to keep my chin up. This is just getting so hard. I have plenty of support from my family and my fiance, it… Continue

Added by Rachel Rei on October 16, 2010 at 3:30pm — 7 Comments

a HUGE door just opened up for me, and i mean HUGE!!

Ok, i was at a concert last night for a band called ozomatli, it just so happens that their drummer used to be in the band the wallflowers(one headlight,6th avenue heartache, three marlenas), i went to the show just meet him even though i had met him before in 1997, anyways i had a awesome conversation with him, as time went on he offered me extra drumming lessons at his studio when it finshed and i may possibly be his drum tech on tour in the near future, so this just opened up a huge door for… Continue

Added by Paul on October 16, 2010 at 1:36am — 2 Comments

4 wigs and a new boyfriend

Way back in the spring I had been so proud of myself for finding some really super cheap foam heads to put my wigs on. I hardly wear wigs so it's important for them to keep their shape for the off chance that I do feel like wearing one. My bedroom isn't the largest and my space is a little compromised so I took the cowboy hat off my TV (even though it was really cool cause sometimes it looked like the actor was wearing it when they do close ups of their faces) and placed my hairy heads there… Continue

Added by Carol on October 15, 2010 at 9:16am — 4 Comments

I wish there was a cure

sometimes i really wish i was never born this way. i miss having hair like normal girls, and feeling pretty. i miss being able to see normal and not having people picking on me. i hope they find a cure soon.

Added by Brandi Badzinski on October 14, 2010 at 10:31pm — 7 Comments

My story

I honestly had never heard about Alopecia and would never have expected this would happen to me. I am hoping that by putting some of this into words it might help me a little to deal with it. I am married and have 2 children and a great support system but of course no one knows what this is like and although they try it has been very hard for me. I am a strong person, always have been the rock in my family. I tend to hold things in and I know thats not good for me but its something I have done… Continue

Added by Kelly Hamel on October 14, 2010 at 11:26am — 11 Comments

Feeling discouraged :-(

I don't really know what all I want to say. I just hope I articulate myself well enough. Lately I feel like I say all sorts of things, but its all jumbled up in my head. It makes sense to me when I say it, but not necessarily to others around me who hear it.



I only have one other blog post on here and its about my fingernails. I tried biotin for a few months and I didn't see a change so I stopped it. I actually had one thumbnail reverse itself on its own, but within 2 months it was… Continue

Added by Maruf Hussain on October 14, 2010 at 11:03am — 8 Comments

Jobs & wigs

I found out last week that starting on Jan 1st, my position at my job will be eliminated. So... I am on the job hunt. I started thinking about starting a new job and the fact that I wear wigs. Where I work currently is a small office and every person knows that I wear wigs. I will wear a scarf occasionally. I also will change out the wig I wear every three months. Sometimes I go from short to long or red to blonde. I have been asked by two men (not coworkers) if I have cancer. I am not looking… Continue

Added by Alliegator on October 14, 2010 at 9:59am — 7 Comments

Definitive biopsy results and a good birthday gift!

Hi All, I hope everyone is doing well...So, here goes lol..I spoke to a woman last night to get my biopsy results from the pathologist report and it turns out she did not give me to much info, except for that I had scarring alopecia..I begged the women to give me more information, but was told that she was unauthorized to tell me what my result was due to her not understanding what the report said ha...Ok, so the women tells me you have to come in and speak to the dr tomorrow morning so she can… Continue

Added by Trish on October 13, 2010 at 6:02pm — 8 Comments

Half of my biopsy update

Hi All, I am so depressed and con not stop crying..I am so down that I can hardly write this..My first part of the results was that I do in deed have alopecia, but it is a scarring kind and that my hair will never grow back..The other part is also devastating where she told me the dr would have to tell me the rest of the report..Scared is not even the word as to what I am feeling right now..



Has anyone been told that they had scarring alopecia and the biopsy was not conclusive or had… Continue

Added by Trish on October 12, 2010 at 10:58pm — 8 Comments

Just diagnosed

My hairdresser, who also cuts my five year old daughter's hair, found a dime size completely bald spot on August 7, 2010. This original spot has not changed at all since then, but on this past Friday I found two more. I took her to see her pediatrician yesterday and he confirmed the diagnosis. He basically told me that I must have patience as the hair could take a year to grow back or worst case scenario she could loose all hair including eyelashes and eyebrows. I was fully aware of this since… Continue

Added by Kirsten Phifer on October 12, 2010 at 3:41pm — 11 Comments

How can I make it better for my daughter?

My daughter is in second grade and she started wearing a wig to school since day one because thats what she wanted, her wigs looks very natural and stays on all day, before school started i wrote a letter to the principal and her teachers to let them know she would be wearing a wig everything was fine untill about a week ago she told me that her teacher made her talk to her class about her condition. then kids started teasing her about not having hair, My daughter says that her classmates told… Continue

Added by Saida Z. (Ariana's mom) on October 12, 2010 at 5:14am — 10 Comments

Peach fuzz

Yesterday, 10/10/10 I noticed what I've been suspecting ...I have white 'peach fuzz' on my two largest spots..I was excited, but then, I don't wanna get too excited. Figure this is just the 'cycling' of this disease..fall out, grow in, fall out, grow in. Still, I will take the times when it is not falling out when I can get them.

Added by Diana Carter on October 11, 2010 at 9:49pm — 3 Comments

I need some input SOS!

I am wanting to know about the new lace front wigs and what are your opinions on them and how natural do they look and feel.....soooo curious......I AM SPONGE!!!

Added by Lainie A Brown on October 11, 2010 at 6:47pm — No Comments

NEWBIE!

just wanted to say hello to EVERYONE!!!

Added by Lainie A Brown on October 11, 2010 at 6:20pm — 3 Comments

Happy Thanksgiving

So it is Thanksgiving in Canada today (I do live here ha). And so I am sharing some things I am thankful for:

-My son, he is the most amazing person I know

-All of my family, they are great people

-The roof over our head, the food we eat

-My fiance, he is so understanding and I am thankful

-All of my friends, you guys are the best, you help me through so much

-Where I live, that we have good schools, and so many opportunities

-Music and books

-My health,… Continue

Added by Erin on October 10, 2010 at 8:37pm — 2 Comments

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