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Back to the Rheumatologist

Well, I went back and got my official diagnosis after extensive testing. I mean extensive! I had 15 vials of blood drawn. Because he was confident what he would see, he started me on treatment a month ago. I am on Plaquinel (a quinine based anti-malarial) and Neurontin (an anti-seizure) to treat the symptoms of Lupus. It's not an exact science...there's a lot of trial involved in regulating medications.



I've been dealing with Pleurisy, an inflammation in the Lungs which can… Continue

Added by Andrea on December 29, 2009 at 11:12am — 3 Comments

Dermatologist Results

So... I went to the Dermatologist for a checkup.





Nothing New. The cortizone shots caused a crop circle in the back of my head though. It looks like a smiley face. I only have to go back if I have any questions, or if I just want to say hello.

It's weird, but I have spots in the back of my head, with little tufts of hair here and there. I asked my mom if I could shave them off, but she laughed and said no. Ho-hum. The hair is really dumb though.

I cant wait for another… Continue

Added by Leah Turlo on December 28, 2009 at 4:11pm — No Comments

Abuses in the Indian Human Hair Trade

Below is an excerpt from the film "Good Hair" by Chris Rock showing the inner-workings of the "human hair" weave trade. Featured is a religious ceremony called "tonsure", practiced in India. Also featured is hair stylist Elgin Charles Williams. I haven't purchased a human hair wig yet (one 50/50, unsure of origin) but when/if I do I will make sure it is not Indian hair. I thought these women were being paid for their hair, they are… Continue

Added by Andrea on December 28, 2009 at 3:17pm — No Comments

Dotty's Inspirational/Motivational Reflection

"A successful person is one who can lay a firm foundation with the bricks that others throw at him."

Added by Dotty on December 28, 2009 at 12:49pm — No Comments

Round 2 is harder than expected

And it seems to be Round 2 of Alopecia. It seems harder this time than the first time around. Everyone keeps saying that it is easy this time because I know what to expect and I already have wigs. But, for some reason, I'm having a harder time with it and don't feel like I can tell anyone that I am having a harder time. Is that stupid?



Well, heres where I stand as of now. I started noticing it coming out in the shower about a week and a half ago....…



Continue

Added by Rachel on December 28, 2009 at 2:28am — 6 Comments

Regrowth Follow-up

Hi!! Its been a really long time since I've updated on here. I wanted to let you know what things look like on my head. First of all, my eyebrows and eyelashes fully recovered....





I even got a haircut and have a little hair style...





And even my own ponytail...





See the next blog for the next part of the… Continue

Added by Rachel on December 27, 2009 at 11:58pm — 3 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on December 26, 2009 at 9:07pm — No Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on December 25, 2009 at 12:57am — No Comments

My new wig

On Tuesday Pick Me Up magazine paid for me to go to London to have a wig chosen and then cut by Trevor Sorbie (who does loads of great things for people with hairloss). I chose a human hair wig from Trendco very close to my natural colour and then he cut it after looking at a pic of my old hair and I love it. This wig is amazing. Not only is it cut really well but its actually real hair. I loved my synthetic wigs but then I got this one and its sounds silly but I love the way it goes wavy in… Continue

Added by Lyndsey Pitchford on December 24, 2009 at 3:20pm — 9 Comments

Merry Christmas

I rarely make my YouTube videos embeddable, but I wanted to share this with you all! Be… Continue

Added by Andrea on December 24, 2009 at 2:42pm — 1 Comment

The Movie Grey Gardens/Alopecia

Has anyone seen the movie Grey Garden's starring Drew Barrymore? She portrays a character that deals with alopecia. The movie is quite interesting it is based of a true story of Jackie Kennedy's relatives. I think it is the first movie I've seen that shows a character that has alopecia. It was touching to see it portrayed on screen because Drew really captures what it is like to lose your hair; and how she learns to deal and doesn't lose her spirit. Just wanted to let you guys know, don't know… Continue

Added by Francie on December 24, 2009 at 1:57pm — 9 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on December 24, 2009 at 12:09pm — No Comments

Screenwriting 410

Just a little update. Thanks for all of your support with my screenplay. I was picked to move onto the next level!! Which is Screenwriting II or SAC 410 at U of M. It is a very competitive program and in my class on 17 only 5 students were picked to move onto the next class and I was lucky enough to get picked. Thanks for all of your support and maybe someday my script with make it to the big screen and let the world know a little more about Alopecia. <3 -
Kelci

Added by Kelci on December 24, 2009 at 1:45am — 1 Comment

Dotty's Inspirational/Motivational Reflection

Until you make peace with who you are, you'll never be content with what you have.

Added by Dotty on December 24, 2009 at 12:29am — 1 Comment

Dotty's Inspirational/Motivational Reflection

Added by Dotty on December 23, 2009 at 11:59pm — 1 Comment

Gail Porter in recent news stories - what a role model!

This is a nice interview with Gail from Nov. 5, 2009, with a lot of positive comments about dealing with alopecia areata:



http://www.thesun.co.uk/sol/homepage/woman/health/health/2714727/Gail-Porter-on-what-its-like-to-be-bald.html



This link has a bunch of nice photos of Gail at a fashion/benefit event in October, with other events also:…



Continue

Added by Mary on December 22, 2009 at 4:24pm — 5 Comments

Derm update today

I went back to the dermatologist today for a follow up after my first round of steroid shots 8 weeks ago. She said she does see a little bit of regrowth! Although it's just a little, and the other hairs are still coming out like crazy, I'm still going to go ahead and shave/buzz it all off on NY Eve. I figure it's a good way to ring in the new year, which I can't wait for. 2009 hasn't been kind to me, with a bad breakup after 9 years, the passing of my Grandfather, after his short, but hard… Continue

Added by Callie on December 22, 2009 at 10:26am — 6 Comments

I love this one!!!!!

When things go wrong as they sometimes will, When the road you're trudging seems all up hill, When the funds are low and the debts are high, And you want to smile, but you have to sigh, When care is pressing you down a bit, Rest if you must, but don't you quit. Life is queer with its twists and turns, As every one of us sometimes learns, And many a failure turns about, When he might have won had he stuck it out. Don't give up though the pace seems slow--You may succeed with another blow,… Continue

Added by Dotty on December 22, 2009 at 12:34am — No Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on December 22, 2009 at 12:28am — No Comments

Happy Holidays

Happy Holidays Everyone. I have not written in a while. All is well. Some days are better than others. I am still dealing with the alopecia one day at a time. It is so amazing how much hair defines a person. I try not to think about it but it's there...Like the big pink elephant in the middle of the room...

Added by Diane Holland on December 21, 2009 at 11:20pm — 1 Comment

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