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Ok, so I am in an Honors English class this year. We are required to do thirty hours of research or writing over the next school year. I chose to do mine on Alopecia, I am here asking for you help, I need to get a couple of peoples stories and a few other things if you are willing to help please inbox me or comment on this post. Thank you in advance.
~Jessica Hoschouer
Added by Jessica Hoschouer on November 15, 2014 at 8:00pm — 3 Comments
My Son Lost all his hair at 2 1/2 years old. Now he is 12.
Up until November 2013, he had little to no hair. That all changed a month later. In December 2013, His hair has started to grow back. He has regained about a 1/3rd of the hair back, with lots of new ones coming in.
Would anyone know what triggers a regrowth? I would like to help him grow even more hair back. Its a very confusing condition.
He is not taking any medication, so that is not a factor.
Added by Hauye on November 11, 2014 at 11:00pm — 4 Comments
Hi guys, wanted to know who here has done the treatment and had 100% of his hair of back?
Added by Tomy Pereira on November 11, 2014 at 9:00pm — 2 Comments
I am the legislative liaison for the National Alopecia Areata Foundation in Massachusetts. We have an action alert out that we need as many people as possible to provide input on their condition as possible so that we can be involved in a program that the FDA has called Patient Focused Drug Development Initiative (PFDDI). PFDDI is a program that the FDA has begun to get the patient perspective about what is like to live with a condition and how it affects their life in order to help with…
ContinueAdded by Marianne Peterson on November 10, 2014 at 8:00pm — 2 Comments
Well, girls with alopecia who choose not to wear a wig! But you get the idea..
I wrote this Buzzfeed article that pretty much sum up life with alopecia.
Let me know what you think.
Enjoy!
10 Things Girls With Alopecia Will Understand:
http://www.buzzfeed.com/erikavincent21/10-things-girls-with-alopecia-will-understand-13pji
Added by Erika Vincent on November 8, 2014 at 6:00pm — 2 Comments
I have been on Xeljanz for 2 1/2 months 5 mg 2X daily and just last week I got about 7 white, baby fine "vellus" hairs right on top of my head and many, many of the same hairs on my face !! Like forehead, cheeks, etc. I never had hair on my face before just above my upper lip that I would pluck. Thankfully, it is light. There are no other hairs anywhere else right now but I am hoping for more. I just wonder if "vellus" hair always means you will get "terminal" hair with pigmentation? ..
Added by Rose on November 5, 2014 at 8:00pm — 7 Comments
I've been living with this for over a year now and I'm dealing with it better than I used to..i still hate it when people stare at me and give me weird looks or they say ignorant things to me. I work in retail and it hurts when people go out of their way to avoid me..i still have not gotten married because of my baldness...I try so hard to be more confident but when I'm at home I just break down and cry because I don't feel beautiful or pretty...i have talked to counselors and friends and…
ContinueAdded by Leah on November 2, 2014 at 9:00am — 4 Comments
In the last few months I have gone from, barely any alopecia patches to barely any hair. Thru this time frame, I've experienced a mix of back & forth emotions between embracing it and hating it. But thru it all it has been so inspiring to see so many of you, confidently sharing your experiences. Thank you to all of you who have been brave enough to be open about your alopecia, you have all helped me to get to the point where I am now. Happy enough to love the situation I am in, hair or…
ContinueAdded by Melissa on November 1, 2014 at 11:30am — 4 Comments
How did you celebrate Halloween this year?
What costume did you wear?
We'd love to know!
So please upload your photos to
http://www.alopeciaworld.com/photo/photo/new
If you create a cool photo album, we may even feature it:
http://www.alopeciaworld.com/photo/album/new
You can post videos, too:…
ContinueAdded by Alopecia World on November 1, 2014 at 10:00am — No Comments
I wish I could go to the salon and get my hair high lighted and walk out feeling awesome, like I used to.
I wish I could wash my hair with the super expensive shampoo and conditioner that smelled awesome, that made my hair feel great.
I wish I could tie my hair up in a pony tail, instead of tying my bandana over my hairless head.
I wish I didn't have to pretend to be ok with losing my hair, to make people comfortable.
I wish my "courage/strength" wasn't based on…
ContinueAdded by BlondeB4bald on October 29, 2014 at 3:30pm — 12 Comments
We live in a world of all types of diseases. Today I found out that someone I love dearly has stage 4 cancer!!!! There is no chemo that will help her or radiation that will reduce the size or kill it off. With all of my health issues and aches and pains along with hair loss due to AA and LUPUS ............I took a step back today and said to myself............" I am fine!! Its not Cancer and I need to be strong and realize that this is NOTHING compared to CANCER..........Live Lupus and AA…
ContinueAdded by amberlove on October 24, 2014 at 12:00pm — 1 Comment
Fox News reported:
ContinueAn Ohio mother is speaking out after she says her 10-year-old daughter was bullied at school because she cut her hair short to donate it to charity.
FOX45 reported Tuesday that Jetta Fosburg decided on her own to cut 14 inches off of her long blonde hair and donate it to Wigs for Kids, a charity that helps children with cancer and other hair loss issues.
“I have some family members who have cancer so I thought it was the right thing to…
Added by Cheryl, Co-founder on October 22, 2014 at 1:30am — 8 Comments
A few months ago I wrote a blog saying that I went to an endocrinologist for my alopecia because I was at a loss( i had gone to a dermatologist for months and gotten injections, to no avail) The dermatologist did blood work but they failed to check my hormone levels( they basically checked my iron levels, just protocol). I also went to a regular doctor and got blood work there and they did not see anything out of the ordinary. My endocrinologist on the other h
and was very thorough…
ContinueAdded by wiz on October 20, 2014 at 3:00pm — 4 Comments
I recently went to a new dermatologist cause my other one only gave me steroid creams which did nothing, and she prescribed me methotrexate for my alopecia. I have to have all my blood test results to come back negative before I can start taking it, but I was just wondering if anybody has had complete hair growth using it. I also have pernicious anemia which is an auto-immune in b12 deficiency and Hoshimotos and auto-immune thyroid disorder. I've never had any problems ever and all of a…
ContinueAdded by blondfrog on October 19, 2014 at 5:00pm — No Comments
I wish there was a moment where all people with all types of Alopecia could unite, people who have a lot of hair, some hair, or no hair. To just be free to be us. To walk down a street, all of us, taking off our wigs, our hats, our scarves, whatever we have on, to show who we are and what we have, and for some it may be to show what we hide.
Whether you shave your head or not.
Our unique beauty, taking off our coverings would not be for other people or for eachother but, for…
ContinueAdded by BarbaraK on October 18, 2014 at 9:32pm — No Comments
In 2015 BeBold will be undertaking our biggest project to date. We will be launching Captain BeBold as a full HD animation to help schools manage alopecia when needed. Captain BeBold will initially provide the facts in a quick informative 15 minute video.
A superhero with a difference, Captain BeBold has alopecia. We are working within a community who has…
ContinueAdded by The Be Bold Team on October 17, 2014 at 5:00pm — 1 Comment
Added by BLee on October 17, 2014 at 3:52pm — 3 Comments
Hi - Today, I want to make it clear that cancer is not my whole life. So I have fun doing things that don't have Anything to do with the disease. Like Saturday, I spent the day with one of my granddaughters - we went to a yard sale, went shopping and trying on clothes, had lunch, watched tv; she shared with me some of her favorite things, like Anime' and music - she loves music, and so do I. Cancer doesn't have to be your whole life or your whole focus.
Today, I am starting to work…
ContinueAdded by carolcwa on October 15, 2014 at 12:30pm — No Comments
Added by Corrine on October 14, 2014 at 11:46am — No Comments
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