A few months ago I wrote a blog saying that I went to an endocrinologist for my alopecia because I was at a loss( i had gone to a dermatologist for months and gotten injections, to no avail) The dermatologist did blood work but they failed to check my hormone levels( they basically checked my iron levels, just protocol). I also went to a regular doctor and got blood work there and they did not see anything out of the ordinary. My endocrinologist on the other h

and was very thorough…

I recently went to a new dermatologist cause my other one only gave me steroid creams which did nothing, and she prescribed me methotrexate for my alopecia. I have to have all my blood test results to come back negative before I can start taking it, but I was just wondering if anybody has had complete hair growth using it. I also have pernicious anemia which is an auto-immune in b12 deficiency and Hoshimotos and auto-immune thyroid disorder. I've never had any problems ever and all of a…

I wish there was a moment where all people with all types of Alopecia could unite, people who have a lot of hair, some hair, or no hair. To just be free to be us. To walk down a street, all of us, taking off our wigs, our hats, our scarves, whatever we have on, to show who we are and what we have, and for some it may be to show what we hide.

Whether you shave your head or not.

Our unique beauty, taking off our coverings would not be for other people or for eachother but, for…

In 2015 BeBold will be undertaking our biggest project to date. We will be launching Captain BeBold as a full HD animation to help schools manage alopecia when needed. Captain BeBold will initially provide the facts in a quick informative 15 minute video.

A superhero with a difference, Captain BeBold has alopecia. We are working within a community who has…

Hi - Today, I want to make it clear that cancer is not my whole life.  So I have fun doing things that don't have Anything to do with the disease.  Like Saturday, I spent the day with one of my granddaughters - we went to a yard sale, went shopping and trying on clothes, had lunch, watched tv; she shared with me some of her favorite things, like Anime' and music - she loves music, and so do I.  Cancer doesn't have to be your whole life or your whole focus.

Today, I am starting to work…

So for some time now my Mum has been asking me when am I going to be giving her grandchildren, this terrifies me... Like A LOT!

I want children one day but first I want to be settled down in a steady relationship but when you are twenty two with thinning hair your hardly attractive to most lads.

I know it's not about looks and what not but you try telling that to a lad you've been trying to get to know and then you eventually meet and he's opening question is 'what happened to…

Highly recommended:

http://www.hishairclinic.com/

Have had no hair for about two years. I have just noticed possible areas of white hair on the back of my head. Am I being hopeful, or could this be a good thing?

Not sure how much of this post will be alopecia related. But I guess the good thing about a blog is that it is yours to express yourself.

I get in these moods there I just curse the randomness of alopecia for example as I was painting my nails I randomly spotted some silly finger hairs growing. Then looked at my arms they are still thankfully hairless but why then do we end up with hair places we don't want.

Another thought that came to me is why can I feel my eyebrows but not…

10/9/14:

I completely forgot yesterday to include one of the Most fun things I have experienced during this Adventure:  Shaving my own head!!  I chopped my hair off first with scissors, as short as I could get it, then used an electric shaver to finish the job.  It actually felt very good, and I enjoy rubbing my bald head now.  Hope to get pictures on here soon!

The other way to make it fun is to look at this as an Adventure/Challenge along the Path of Life, and try to derive…

This may sound, well . . . I don't really know how it will sound to any of you, but I hope not offensive in any way! I had cervical cancer in 2012, went through chemo and radiation and had a hysterectomy, and was clear until this year, when a routine scan showed nodules in my lungs. This is the same kind of cancer as before, just having returned in the lungs. I am undergoing chemo therapy now, and have just lost my hair. I didn't lose it in 2012, because of being treated with a different…

If you had AA, AT, or AU, how do you know if you have scarring alopecia? I know the only way to know for sure is a biopsy but I'm wondering how someone gets scarring alopecia and if its possible for someone who has AA/AT/AU to transform into scarring alopecia aka hair cannot regrow due to dead hair follicles. Any one know anything about this? I know everyone with severe alopecia does not have scarring because hair has grown back for people after years without it. Thanks for any…

Please can someone help me join in on chat at 'main room"?
I type response then "done" I missing seething?
Thank you! BLee

“It has been said, ‘time heals all wounds.’ I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissues and the pain lessens. But it is never gone.” – Rose Kennedy.

When I think about space and time, it reminds me of my past, my future, and who I am now. I think of myself and how others might view me. This is an internal way of interpreting the theme this year, but it seems to be the way I interpret every theme. For the past four years, I…

Hi, all! This is my very first attempt at a blog. Let's see if you really can teach an old dog new tricks  ;-)

I just have to share my granddaughter's story:

She just turned 6. She developed her first patch back in January. One become 2, and so on. It was fairly easy to cover...  Then, about 3 weeks before she started 1st grade in August, the hair loss accelerated dramatically.  Within two months, she had lost almost all of it. Just this week, she decided to shave off what…

I could remember being five years old or so, I was sitting between my mother legs and she was using one of the millions of hair growth products on my hair. She was convinced that my premature birth had caused my hair lost, she was convinced that my hair just needed moisture and she was convinced that my hair would grow back..but it didn’t. Over the years my hair loss gradually had gotten worse, she had sent me to doctors who thought maybe it was a fungus and I just need certain creams. She…