All Blog Posts (5,829)

Alopecia won't be a secret in Hamilton anymore!

I love kids. They just take life as it is right in that moment. There is no regret about the past, or worry about the future. They just live for today. I have been without my wig on a permanent basis for about 3 months now and have been observing people’s reactions. Kids don’t even look, or if they do, they are looking at me, not my hairless head, then they carry on with whatever attracts them next. Adults tend to create a story around my head. They look, look away, come back again, and this…

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Added by Lynda Hykin on March 24, 2014 at 7:30pm — 7 Comments

Am thinking of buying a Freedom wig

I have had AU for many years and have worn scarves and also synthetic wigs. The Revlon wigs that I have loved and bought for a while, now seems to be less good quality - and reading this site I have got to think I would like to try a Freedom wig. I a sure there are many of you who can advise me. Does anyone not like them? Could they feel too tight or too hot ? What kind of weight do you suggest getting?

Would be glad to hear your thoughts and experiences

Added by Jane on March 24, 2014 at 6:00pm — 2 Comments

Mad and wondering

Hi all, first off, I am so glad to finally find a place that understands what "AA" is... other than someone asking me how long I have been sober... *weak attempt at humor" she says.... but anyhow, I am very new at this, diagnosed two months ago. Mine is fast moving, stage 3- 35-40% already and climbing. Currently, I was in stage 2 of steroid treatment and responding (i had some new fuzz on the new spots old ones... nah)... but got the word from my derm that "neither of my insurances will…

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Added by Luchrisha pursell on March 21, 2014 at 11:00pm — 1 Comment

The angry art of alopecian superhero artist David Finch

 

I recently read an article about David Finch, an alopecian super hero artist.  When asked about his emotional details in his drawings Finch responded:

"It does come from both personal…

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Added by Cheryl, Co-founder on March 21, 2014 at 5:00pm — 4 Comments

Beware! Do not buy wigs from eBay by a seller "wiggingandweaving1" - see reason as to why

I have bought items for 15 years on eBay with no problems but if you are going to buy a wig do not buy from the seller "wiggingandweaving" because what you buy and what you get are two different things. I bought a Rachel Welch wig in blonde. When I received the wig it was brown and black and the cap was defective. So I contacted customer service and the seller upon the time of arrival that the wig I ordered was not as described. The seller was aware of it and put a block on me and eBay…

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Added by Dee on March 20, 2014 at 1:00pm — No Comments

So many options!

So I've been doing some research on different hair units (trying to decide what would be best for me). I still have my own hair but I am tired of it looking thin and not feeling comfortable going swimming or even sitting in the sun without thinking about my scalp showing through. I don't want to take Rogaine and save my existing hair by putting foreign chemicals in my body. Anyhow, these are the options I have discovered and I'm wondering if anyone out there can shed some light on them…

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Added by Rosey Girl on March 19, 2014 at 10:00pm — No Comments

A moment

This morning while my family was getting ready for the day my 4 year old was left with coloring (with our permission) for a few minutes. I came back after bring gone for two minutes to find she had cut out a chunk of her hair. I stared with my mouth open... This is probably a rite of passage for both Kids and parents but one that sprung upon me and that I am so sensitive to as a result of my hair loss. After I got over my shock I asked her why she did it. She said she wanted to give me her… Continue

Added by Amanda on March 19, 2014 at 5:45pm — 1 Comment

Where to find reliable/good quality human hair wigs in South Africa

Hi all,

I currently wear a synthetic fibre wig but am doing some research on "upgrading"  Human Hair wig. Based on my research, I believe Full Lace 100% remy hair is the way to go.

Problem is, there dont seem to be many suppliers in South Africa and options are limited.  I am also very afraid of getting scammed, for example paying for 100% human hair yet its mixed with synthetic hair!  

I understand no wigs get manufactured in South Africa and they all get…

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Added by Kim on March 19, 2014 at 4:30am — No Comments

Raw foods and vegetariansm caused my hair loss

Hello,

I wanted to share this post because I wanted people to know that Raw Foods, especially combined with a Vegan or Vegetarian diet can be dangerous for some people. 

I am very conscientious healthy eater and usually a fit, healthy and active person. I go on hikes, swim, run half marathons and about 6 months ago, had eaten a predominately vegetarian diet. I had been a vegetarian for over 7 years, with some parts being Vegan and on occasions, ate fish. My diet had consisted…

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Added by beautybountiful on March 17, 2014 at 8:30am — 7 Comments

Does the pill affect AA?

I'm thinking of going back on the birth control pill. I have had some regrowth of my extensive alopecia areata, and was wondering if going back on birth control would make my AA get worse. In addition, have any of you had success with other forms of birth control? I hear so many horror stories about the pill, what have your experiences been with it? Thanks!

Added by Dominique Cleopatra on March 15, 2014 at 10:30pm — 3 Comments

Shaving hair

i am deciding weather to shave all my hair off or not.

i would like to know what people felt like before they shaved there hair off and how it feels now. i am just scared on what i may look like and i would like to know what other peoples experience's were like

Added by Jade Smith on March 14, 2014 at 3:00pm — 9 Comments

Immune system

This may sound stupid, but I have been diagnosed with Alopecia for about 5 months now.  Hair is thinning badly and hair is about the size of my fist missing on right side of my head.  I have been wondering if anyone has tried auto immune supplements that are sold in drug stores?  If this is caused my immune system then could these supplements help?

Added by tracey on March 14, 2014 at 2:30pm — 1 Comment

Alopecia

Hi could anyone enlighten me, do you gain weight, have low libido erractic menstrual cycles,and fatigue with alopecia.because I am certainly sure you don't. because I have all these and my doctors fob me off saying its alopecia. me personaly think it is hypothyroid, or possibly coming off the contraceptive pill 3 years ago and hormonal.this is when I started to lose my hair. I still have hair but its like a patch work quilt underneath.it  started to get better not sure if it was the evening…

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Added by sharon on March 13, 2014 at 9:30am — 1 Comment

Alopecia sucks but there are worst things in life

Alopecia sucks but there are worst things in life

Added by Franco on March 11, 2014 at 9:48pm — 2 Comments

Hair loss

If I didn't have alopecia it wouldn't have made me the person I am today. I am still trying to come to terms that I am bald and I will never be like most of my mates. But I do hope that one day later on in life I do find a guy that is willing to accept me with hair or even with out it. Having alopecia has made me a stronger person and it means I am able to cope with things a lot better than others.

 

Added by Jade Smith on March 11, 2014 at 3:30pm — No Comments

Cicatricial (scarring) alopecia

I have just become a member of Alopecia World and am really pleased to have the chance to communicate with others affected by this condition. I have lost about 50% of my hair over a 4 year period since being diagnosed with Lichen Planopilaris/Frontal Fibrosing Alopecia and because my hair is curly I have been able to disguise the loss to some extent but this is getting harder to achieve.  My head can become very tender and irritated and I wonder if anyone else has this condition and how they…

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Added by Margaret on March 11, 2014 at 2:30pm — No Comments

Diffuse alopecia

When I was first diagnosed with Alopecia Areata a year ago, I had large patches of hair falling out randomly across my head. Since then, they have shrunk to smaller patches about the size of quarters not only on my head but across my face as well. I dyed my hair platinum blonde not only to hide the grey hair that grew back, but it also did a better job of hiding the missing hair, As it has grown out and the black roots have started to show, I have noticed that I no longer have circular…

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Added by michael on March 10, 2014 at 1:30pm — No Comments

Looking for a friend

I would love to have a girl friend also dealing with alopecia near by. I have had it since I was 8 and have always been pretty isolated. I'm now 41 and looking to spend time with someone who understands the day to day stress of living without hair, wearing a hairpiece and coping in the world. If you are interested or know of someone in southeast wisconsin let me know.

Added by Wendy on March 9, 2014 at 4:50pm — 1 Comment

20-year-old son with alopecia, minerals helped him

My son was 18 years old and a senior in High School when we noticed he was getting a dime size bald spot.  We took him to a dermatologist who offered to do the shots in his head and he didnt want to do this so we said no.  He is challenged and this was just one more thing in his long list of things to deal with.  We went to one of his Neurology appts in Marshfield, WI and the dr looked and said "Yep he has Alopecia, give him Minerals"  Because of his condition we do a lot of chiropractor…

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Added by Karen on March 9, 2014 at 3:30pm — 5 Comments

Lonely

Hi all I. Am looking for friends who. I am able to talk to.my hair loss as made me feel so bad inside I will not go out or date anyone .i really don't no what to do.so if your feeling as I do please do add me .would be nice to here from some one thank you

Added by Deborah on March 9, 2014 at 3:01pm — 1 Comment

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