All Blog Posts (5,829)

I'll think of it as research

This morning still held yesterday's warmth with no doubt that it would be heating up again. It's the first day that I can remember that I went from afternoon, through evening and night and into morning with my head completely bare. I was home, so only my family would have seen me. In the usual mad rush to get lunches made, shoes found and boys off to school (the girl, at two and a half often beats them getting dressed, though I did have to veto wearing her fanciest dress to preschool this…

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Added by GardenJess on May 15, 2014 at 3:13pm — 14 Comments

Outshined and overwhelmed by my 5 year old daughter's resilience, endurance & perseverance

Hi Alopecia World;

My name is Jeanette, and let me introduce to you my Daughter~ Jazzlyn~ As a Parent let me share a PARENT'S... Fears, My Concerns, My Worries, My Knowledge, My Power and Strength, OutShined and Overwhelmed By my 5 year old Daughters Resilience, Endurance & Perseverance

I can sincerely understand how this can be so difficult and hoping and wishing for results the "Fact" that there is no "Cure" for alopecia! Dr, can recommend and make promises but in the end…

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Added by JEANETTE on May 14, 2014 at 3:30pm — 3 Comments

Could Levoxyl have (slowly but surely) worsened my AA

Hello all,

I've had AA quite a long time now and am well-acquainted with its unpredictability and mysterious nature. BUT, something keeps bugging me and I'd be interested in a weigh-in or five.

First let me say that I've had eczema since infancy and had a dime-sized bald spot since kindergarten (though I was not diagnosed with AA till the end of college). So, my autoimmune history is well-established.

Yet. From my diagnosis in 2005 up till Fall 2011, my AA was never as…

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Added by OnlyChild1213 on May 13, 2014 at 11:00pm — 5 Comments

Acceptance

I don't know what I am going to write but I felt inspired to write on this topic. President Gordon B. Hinckley of The Church of Jesus Christ of Latter Day Saint's said, “Some of you may feel that you are not as attractive and beautiful and glamorous as you would like to be. Rise above any such feelings, cultivate the light you have within you, and it will shine through as a radiant expression that will be seen by others” (Ensign, May 1995, 99).

There are two paths you can take. You…

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Added by Jessica Hoschouer on May 12, 2014 at 10:00pm — No Comments

Here we go, again

About a year and a half ago I started out with Alopecia Barbae. Not having any idea what was going on when I started losing hair on my chin, I began to Google my symptoms and quickly figured out that I may possibly have Alopecia. Concerned, I went to a Dermatologist who did blood work to make sure that my symptoms were not being caused by a separate health issue. Luckily, there were no other problems and it was confirmed that I had Alopecia.

Due to never growing a beard and always…

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Added by Thomas on May 11, 2014 at 9:00pm — 2 Comments

Eyebrows from Headcover

so I just got my eyebrows from headcover and I must say that I am very pleased. They look very natural. but now my question is how long do they actually last? According to their website it states that they can last up to 2 to 4 months however that just seems like a long time. So my question is has anyone ever used the product and if so are you able to reuse the eyebrows? Thank you for your feedback.

Added by Sabrina on May 11, 2014 at 8:30pm — No Comments

New relationship and "miraculous" regrowth

I have had extremely extensive AA for the last 7 years, since I had a traumatic breakup, I had not dated anyone since, until 9 months ago, when I started seeing someone great, who accepts my alopecia and my hair system. We are keeping it "casual" but have so much fun together!! : ) Since we started seeing each other my hair has been growing back, the people at the salon I go to for my bonded-on hair system services even asked if I've been doing a new treatment to make my hair grow (I…

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Added by Dominique Cleopatra on May 6, 2014 at 3:30am — 6 Comments

Eyebrows

Does anyone know of any alternatives when AA begins to attack your eyebrows. I know women sometimes tattoo them on or use that permanent makeup. Being a guy, I'm not sure that i could do that. I've had AA for over a year and for the most part have come to terms with it. this has set me right back to square one. I've gone back to just not leaving the house anymore and i hate it. Has anyone out there tried immune suppression? If so, what are the consequences? I hope someone will reply. I have…

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Added by michael on May 5, 2014 at 6:00pm — 6 Comments

New treatment that tricks the immune system

Just read an interesting article on a possible new treatment for MS. In a nutshell, it re-establishes immune tolerance to whatever protein it is trying to attack.  In the case of MS - myelin.  The beauty of it is that it apparently does not effect any other immune function.  Additionally, the technique could potentially be used for other autoimmune diseases.  Has anybody heard of this?  Here's the link, …

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Added by spettro on May 2, 2014 at 11:12pm — 1 Comment

I hate the stares and whispering

My 4 year old son has AA.his hair has been falling slowly from july 2013 thru now he has lost about 40% of his hair He has patches here and their i always try to keep his head bald and he usually wears a hat but somthimes he takes it off and when we are at stores or any public place lots of people stare or whisper to one another point and just look at him like hes not normal I Hate It it makes me stress because i feel like i just wanna do so much for him and i cant relly do anything i wanna… Continue

Added by BABY CHIKI on May 2, 2014 at 6:48pm — 9 Comments

There is hope

I wanted to share my story with those struggling with their alopecia. I am currently a 16 year-old high school sophomore  and I want to tell you that there is in fact hope. In 6th grade and again in the beginning of this year, I had alopecia areata, which resulted in all of my hair being lost. I know the anguish, feelings of being ostracized, endless shame and lack of self-confidence. However, through the dermatology center at the University of California Irvine, I now have a full head of…

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Added by Jason on May 2, 2014 at 12:30am — 4 Comments

A year ago I had hair

Just another bald woman. Well, I'm not entirely bald, but the few straggly remnants and the white mohawk weren't doing me any good. I got up the resolve to shave it off. The cleaned up look is definitely better, but my initial reaction was just sadness, as if I really had been kidding myself for the past months that my hair would grow back and be OK. Going from a little hair to no hair felt like a big step even if it didn't look like a big one on my scalp.

When I first envisioned…

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Added by GardenJess on May 1, 2014 at 1:58pm — 25 Comments

I am newly diagnosed with AA; this is what I have started trying

Hello,   I am newly diagnosed with AA, it all started in Jan. 2014, I too have had long very thick and fast growing hair my whole life.  But in Jan. it started to fall out, I was not concerned because secretly I have had lots of challenges with the thick hair.  Feb., it still kept falling out, no bald patches just continuously falling out, lots and lots of hair in bathtub, on floor when styling. By March it was getting thin all over, hair changed its normal thick, somewhat coarse texture to…

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Added by hoofpick on April 29, 2014 at 1:30pm — 2 Comments

A poem I wrote today for my girls

I'm posting this for my daughters, myself and anyone with alopecia :)



The first chunk of hair came out in my brush

The tender age of 14, my heart was crushed

How would I live without any hair?

If it all falls out, I wont go anywhere

Month after month, needles in my head

Weighted on my chest, an anvil of lead

Year after year it continued to spread

The pop of the needle, blood trickling down my head

The treatments weren't working anymore…

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Added by Ashley on April 29, 2014 at 2:00am — 2 Comments

First bald photo shoot & a declaration of my rights

Here’s how my rights work…

I have the right to my own body,

to the expressions I make,

to the decision to smile or not to smile,

to flatter you or not flatter you.

I have the right to have hair or not and still be beautiful,

I have the right to make myself into a canvas-

of emotions, of color, or…

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Added by Ann on April 27, 2014 at 12:30am — No Comments

Effective treatment for AU

Hello Friends,

I am new member on this site. I am suffering from Alopecia Universalis from last 7 years and have tried many treatments like steriods. Initially hair regrow but after reducing the medicine dose it starts falling again. Has anyone know about effective treatment for Alopecia Universalis especially available in india, then plz help me out !!

Added by Jass kaur on April 24, 2014 at 5:08am — 4 Comments

Hair loss again!

Hello I've not been on here for a long time. I have had my hair back and it got quite long so guess I was happy and didn't need the support. I was diagnosed with endometriosis in dec 2012 and have struggled since. Had 2 operations in less than a year and been I a couple of hormones and stopped them after suffering hair loss again. I have lost so much hair it's really thin now, I do wear a hair piece everyday now and just asked for a full real hair wig as I'm so worried it's going to come out… Continue

Added by lynne on April 21, 2014 at 3:48pm — 3 Comments

Just lost my eyebrows. Any suggestions to help them grow back or to draw them on?

Hello everyone! I have au and I recently lost my eyebrows. I was using women rogaine but recently it stop working. Do any one knows how to draw eye brows that look semi natural? I'm not the most creative/arty person lol. Thanks!

Added by Sabrina on April 20, 2014 at 9:30am — 12 Comments

Stress, alopecia and endocrine system?

For me, all of my flaire ups of alopeica have happened directly after large stressful events in my life... and while I know it may not be the case for everyone, for me I believe that stress has a direct correlation with my alopeica.

I was doing some research on autoimmune disease and stress and found a few articles that described the relationship. One site said "recent reviews discuss the possible role of psychological stress, and of the major stress-related hormones, in the…

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Added by Julie on April 19, 2014 at 9:00pm — 2 Comments

iGrow

Has anyone used the iGrow system? I'm going to a dermatologist Tuesday who advocates it. Looks interesting and I'm wondering if anyone has experience with it.

Added by MJ on April 19, 2014 at 3:30pm — 2 Comments

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