All Blog Posts (5,829)

Waiving the white flag - my surrender to AU

I've been through so many stages of this disease in the past 12 months.  And each has been harder to accept and deal with than the one before.

First, last summer, I watched my little soul patch be whittled away to nothing.  But it still seemed to be locally confined to my face.  I hated the random patches where whiskers still persisted, and explored permanent removal of lingering hairs and endured hundreds of shots, but the fight was a losing one.

Then, this January, I was…

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Added by Schocker on June 6, 2014 at 3:30pm — 2 Comments

Regrowth

I have been experiencing a great amount of regrowth lately and have come to realize that after all my praying and wishing to have hair I don't really want it. I have lived my whole life without hair and it just seems alien for me to have long hair. I realized that I actually prefer being bald to having hair. I am actually scared to have hair. The idea of no longer being bald scares me. I do not want my hair to grow back in I want to stay the same.  I mean it is exactly what a lot of us have…

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Added by Jessica Hoschouer on June 6, 2014 at 2:00pm — 2 Comments

Trying to find a swim wig

Lost my hair in 3 weeks

Never saw it coming

Now it's gone

I was in disbelief and shock

I could not believe I was actually in a wig store

Those where places I used to to just drive by

I was looking for remedies

What will I do when I have to take off my neff Bennie?

How can I swim and expose my scalp?

I ordered a swim wig from hip hats with hair

The owner Christine was compassionate when I discovered that the piece just wasn't a good fit for… Continue

Added by Eneri on June 5, 2014 at 10:54am — 1 Comment

Caring for non-synthetic wig

Hi there: We have a question about the best way to care for a natural (non-synthetic wig).  My sister has conflicting opinions from the two different places where she has purchased wigs and has them cared for.  One place says the wig should not be blown dry, but should dry naturally - the other place says they have a special wig dryer which they use and does not damage the wig.  THe problem is that the wig must also have alopecia because the hair is beginning to fall out. . . The place where…

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Added by Concerned Sister on June 5, 2014 at 12:05am — 2 Comments

Bald head

Hi
Anyone know what to do for bald head color not matching face color? Makes my baldness stand out so much more.

Added by Kat on June 3, 2014 at 6:07pm — 19 Comments

Anniversary of shaved dome

Three years ago today, I finally got my head AND sideburns shaved off, just to see what it was like. Very free-ing, kind of exotic, funny. What the heck, eh? I spent parts of that summer with nothing on my head for road trips or at home, and am grateful for the understanding friend who helped me go through that first process. Even though I still wear wigs to work and a funky cloth hat at other places, I intend to go wigless at my alopecia support group meeting today…

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Added by Tallgirl on June 1, 2014 at 12:30pm — 3 Comments

Eyebrows and lashes are going

Please how do I except this I'm like a freak , I used to be beautiful now I'm a different person. How do I get past this ???

Added by Gemma O'Connor on May 30, 2014 at 6:30pm — 5 Comments

Be strong

I know this is hard for a mother..  my Mom always wanted to "give me her hair"  hold your daughter in your arms and let her feel your love and encouragement. It will be O.K...  don't be sad Mom she feels it..  it is beyond anyone's control...  yours or hers..  be happy you have a sweet daughter.

I have AU..  no hair anywhere..  my friends and family still love me.. maybe even more.  It is a bonus she has an outgoing personality.  It is a rough road no doubt..   but with love and…

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Added by laura on May 29, 2014 at 8:57pm — 1 Comment

I can safely say, I am happy to live with alopecia!

My name is George, and I am 21 years old. Of course I have my bad moments, but who doesn’t? I have been living with alopecia for nearly 8 years now and I have to admit, it’s been quite a journey.

I was first diagnosed with alopecia at the age of 13, I vividly remember the first time I noticed those little round bald bastards. I was at home with my brother and he noticed this spot on me, naturally I ran like crazy and invented the mirror to mirror system-that was later going to come…

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Added by George on May 29, 2014 at 8:30pm — 2 Comments

Secondary DXs?

I'm curious...how many of you out there have more than one autoimmune issue?

I currently have Hashimoto's Thyroiditis, Palmar Plantar Pustular Psoriasis, Psoriatic Arthritis, Alopecia Universalis, and now Pyoderma Gangrenosum...I would care for no more and I've about had it! Anyone else dealing with anything like this? I'm trying to keep my head up but I've been having some bad days lately. I'm 31 with 4 kids 9 and under so I don't have time for a pity party! ;)

Added by jlkramer on May 29, 2014 at 4:30pm — 3 Comments

A mom needs encouragement

Hi. My name is Kerry, and I think I decided to write this blog mainly to get out my feelings of frustration, helplessness, and fear for my 5 year old daughter.

At the end of March 2014, my daughter brought home some adorable school pictures. When I looked at them, I noticed her eyebrows were SO full, and looking at her then, they had drastically thinned. Immediately, I began trying to think back and looking through cell phone pictures of her and I discovered that this had begun…

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Added by Kkerrylynn on May 29, 2014 at 2:00pm — 39 Comments

Sum lamp treatment

Hi I lost my hair in the first quarter of this year, I have heard that sunlight will help it grow back, does anyone know if a standard sun lamp will do this, as I really am not ready to go out into the sun without covering my head.  Any advise would be gratefully received, I think I have UA as all the hair on my body has now gone including my eye lashes.

I am waiting for an appointment for blood tests, and have changed my diet, however there are no signs yet of…

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Added by Poppy UK on May 29, 2014 at 4:30am — 4 Comments

How to hide hair loss

Well I developed alopecia Areata a few months ago. Since then I have gone gluten-free and I see hair growth. It's slow...but it's growing. Anyway, I have invested in some excellent hair extensions (luxy hair extensions) and they match exactly with my hair color and my hair texture. I have also invested in a product called Toppik. It is AMAZING. I kid you not. You just sprinkle it on your hair and it releases like these little fibers and you can't tell that you have a bald spot even if you…

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Added by wiz on May 28, 2014 at 5:30pm — No Comments

An individual doesn't get alopecia, a family does

This is my story.

My wife and I first noticed that my 5 year old daughter Akanei was shedding her hair back in December. We would see hair when sweeping up the floor, hair left on her bed and pillow, and hair in the drain when she took a bath. We didn't think anything of it, since she still had a full head of her on her head.

The next month in January we took a trip to Orlando, Florida(which was awesome btw). Akanei got carsick one day while riding in the car and my wife pulled…

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Added by Mike Cas on May 27, 2014 at 3:00pm — 17 Comments

Struggling

I'm struggling with myself, it's my appearance and dating. Not sure what to do or how to act. Help!

Added by Pamela McGruder on May 27, 2014 at 1:30am — 4 Comments

Day 104 of Chinese Herbal Medicine to treat alopecia due to raw food diet and stress

Just a quick update.

Chinese medicine seems to be still helpful with my hair loss. There is now a steady low amount of hair loss in general. I don't have to vacuum the floor as often and hair loss in the showers, although still collects a ball in the drain, it is nowhere near as much as a month ago. 

The general condition of my hair used to dry, brittle, kinked, thick with fine split ends, reddish brown black tinge and generally flyaway. Now, my hair feels shinier, softer and…

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Added by beautybountiful on May 22, 2014 at 8:30am — 1 Comment

Coloring my hair?

I was wondering if anybody has any information or thoughts on coloring your hair. My hair has been coming back in pretty good, to the point where I am going to not wear a wig if I can find a cute, short hair cut. I am thinking like Pink, the singer! My hair came back pure white but with black splotches. I have had Alopecia Areata now for about 3 years and have had success with steroid injections and topicals. I would like to color my hair -- one color? Anyone…

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Added by Michele Voge on May 21, 2014 at 4:30pm — 1 Comment

My alopecia story in a bit more detail

So my story starts way back in 1994, well 1995 really but some incident/situation in 1994 might have contributed to my acquiring AU. In case you don’t know, AU stands for Alopecia Universalis. It is the most severe and rarest of the main forms of Alopecia.

So my hair loss started in January 1995, and my long (about mid-back) brown locks departed rather quickly and efficiently. It went in a diffuse, even pattern. At one stage, when maybe 80-90% was gone, I looked a lot like the…

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Added by Laura Adams on May 21, 2014 at 4:00am — No Comments

Been a while

Well hey everyone it's been a while hasn't it? Been busy here at home, two of my sisters have had babies so I now have three new baby nieces. All are the cutest little things and have THE reddest hair you have ever seen, well not the youngest one she is still working on growing some lol, and its so curly too. I have been working hard too but it does have its moments as all jobs do working me to the bone I tell you. 

I have been a bit sad of late, a lot of people have been asking if…

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Added by Samantha White on May 20, 2014 at 12:30am — No Comments

"Beautiful Henna crowns bring confidence and joy to women experiencing hair loss"

I recently came across the below article on the Huffington Post website:

"One organization is using all-natural ingredients and artistry to help women coping with hair loss.



Henna Heals was started by Canadian photographer Frances Darwin in 2011 as a small group of volunteers in Toronto, and has since grown to a community of 150 artists worldwide. Those…

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Added by Cheryl, Co-founder on May 19, 2014 at 3:30pm — 2 Comments

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