I have frontal fibrosing which has become very aggressive in the last 5 months. I am going to try these therapies. Does anyone have any experience with either therapy? I have to do something that has the best chance of working because it is going fast. Thank you for any help or information.

Hi! Call me Liz. I am 22 years old and I have been diagnosed with alopecia areata. It started it out with mild loss of hair on my left eyebrow years ago. I never suspected it to be alopecia because I never knew alopecia existed. Nonetheless a few months ago I noticed a tiny bald spot on my left top eyelashes. Later I lost my bottom right eye lashes. I also found a bald spot at the back of my head, but I ignored it because it wasn't serious. Long story short I now have huge bald-ing spots…

I'm 20 years old and I have Alopecia universalis. my main purpose for making this blog is to help people get comfortable with their and to help myself get more comfortable with my alopecia and able to talk about it. I have accepted but im not so comfortable with explaining or talking about it and i think the love from you guys will help. 

New: OMG, can I find a hairstyle that is in fashion to hide this? Will anyone notice? I HAVE to have a wig that is the same color, texture and style as my old hair and looks like it is growing out of my head. I can't let a boy find out or touch my head! Arrrrrrgh...what about eyebrows, intimacy, wedding, children, wind, convertibles, sports, hanging upside down from trees and monkey-bars, sleepovers, swimming, coworkers, gossips, mean girls, overprotective worried relatives, gawkers, rude…

Hi All,

I haven't posted anything other then responding to posts in a while.  A wonderful moment today has prompted this post.  A reminder...51 years developed Alopecia Universalis 3 years ago.  Last June I I went shopping for some make-up tips for my non-existant eye brows and eye lashes. I ended up at my local Shoppers Drug Mart (a chain here in Ontario).  3 cosmeticians spent several hours trying out different pencil/colours, etc.  The experience was nothing but positive.  I've…

Hi all..

Can anyone help me with the following. 

Got AA a couple of years back. 1 big egg sized (goose egg) on the back of my head and a tiny weeny patch on the top. All grew back with the help of a steroid and making my diet a lot better (cutting out sugar etc )

However at the same time I have developed eczema on the back of my neck and scalp, I have lost a lot of weight (which i quite like) and I am so tired all the time. Quite often feeling disorientated and anxious…

So I have finally started exercising regularly and am wondering how others handle it.  I hate how I feel sweating with a wig on.  I am trying to look around for other options for covering but what have found few options.  What are others doing?  Any thoughts will be appreciated.  Thanks!

I have been on this site for over a month yet I have not been on here that much  this is why. In may of 2014 my hair started falling out right after I saw my physician for fatigue and my metabolism being shot. On May1st of 2013 she gave me a low does of synthroid I took it for 3 days on the third day my hair started falling out and I tossed it in the trash. Since then the hair has kept falling out and now my hair is grossly thin receding back to my ears and a bald patch in the front of my…

Hello everyone,

I am new here...in December of 2013 I found out that I  have alopecia...and the worst one! Scarring Alopecia. I never had really thick hair but I had enough to cover my scalp. There were times when the hair would fall out more or less but it always grew back. The spring of 2012 was when I lost alot of hair, but the hair loss stopped and the hair grew back. A year later in the spring of 2013 it started falling out again and it never stopped. I spent many evening crying…

Hello All,

Just thought I would pop in to write about this next stage I am moving into.  I would love to hear peoples thoughts and experiences :)

I have been completely bald for over a year now and wear a wig everyday.  The only folks who know I have alopecia are my close friends and family. I wear the same style/color wig everyday and never switch it up.  I recently started feeling like I want to embrace the fun/flexible and beautiful world of wigs more and rock different…

Hello,

Just an update that it is now Day 24 of my medicine intake and positive improvements! My hair has considerably improved. The amount of hair coming out during showers seems to be 25% of the amount since the start of the treatment. It has been this way for about 5 days now. I am now waiting for hair growth to show after the 2 month mark....

The more I read about the effects of raw foods on my overall heath, the more convinced that it is not for everybody. You need…

Throwing a question out there....

Anyone else or has anyone heard of someone with Alopecia Totalis and have pancreatic cancer?

I have been diagnosed with this, although I am still cautious I don't think the medical people know much!!, I also have hypothyroidism, does anyone think this is connected at all, as I lost my eyebrows first, then patches at the temples, then body hair, now my hair is going ... fast... I am on a high vitamin, protein diet, I have not seen any signs of my hair returning, can I expect it to grow back, I am having trouble coming to terms with this.

Thanks to this site I can talk about it…

Hello again,

My name is Devyn Napier and a few months ago I asked for some advice and guidance regarding my science fair topic because I was entering a science fair and I began hitting dead ends and felt very discouraged. My topic was concerning Alopecia Areata and I have been working for about 10 months on this project. My project involved manipulating the external environment of two proteins involved in this autoimmune disease (i.e. NKG2D and ULBP3). I predicted that by altering the…

Alopecia is one of the most emotionally devastating conditions, but it doesn't have to take over your daily life.

I have recently turned nineteen and I have now been suffering from Alopecia Areata/Totalis for five years. My first episode happened when I had appendicitis and although this was not the immediate cause it was one of the many contributing factors which caused the first bout of hair loss. At the time I was in the middle of exams at school which meant stress levels were…

“And once the storm is over, you won’t remember how you made it through, how you managed to survive. You won’t even be sure whether the storm is really over. But one thing is certain. When you come out of the storm, you won’t be the same person who walked in. That’s what this storm’s all about.” Haruki Murakami

"You've got to be willing to lose everything to gain yourself." Iyanla Vanzant

"The inward journey is about finding your own fullness, something…

Hi

I have just purchased my first human hair wig, and am getting ready to wash it in the next couple of days.  I am very scared of the care of it, but have researched what other people use to shampoo and condition.  Can anybody tell me if I need to be doing something else? I have heard people use oil, but I don't know how often you should do this? how do you know when it needs it,  and also if you use heat what thermal protector do you use? 

Thanks

Ruthie

ABC News reported:

A 9-year-old girl from Grand Junction, Colorado will be allowed to return to school after being banned for shaving her head.

Kamryn…

Rocky: "Cause if you’re willing to go through all the battling you got to go through to get where you want to get, who’s got the right to stop you? I mean maybe some of you guys got something you never finished, something you really want to do, something you never said to someone, something… and you’re told no, even after you paid your dues? Who’s got the right to tell you that, who? Nobody! It’s your right to listen to your gut, it ain’t nobody’s right to say no after you earned the right…